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All TopicsForum: HER2+ (Positive) Breast Cancer → Topic: ATEMPT Clinical Trial - Roll Call

Topic: ATEMPT Clinical Trial - Roll Call

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Nov 21, 2014 11:43AM - edited Feb 7, 2017 10:43AM by MaggieCat

MaggieCat wrote:

The ATEMPT clinical trial has been going on for several years.

Are you participating?

The recruiting period is over. The planned participant level of 500 has been met.

Dx 10/16/2014, IDC, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2+ Dx 10/16/2014, DCIS, <1cm, Stage 0, Grade 3, 0/6 nodes, ER-/PR-, HER2+ Surgery 10/30/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 3/18/2015 Whole-breast Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab)
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Jul 31, 2017 07:25AM IsabelArcher wrote:

MIPat, I had feelings of Oh no what do I do now when my treatment ended. You feel suddenly like no one is taking care of you and you're not actively fighting the stupid cancer. I promise you this goes away. I also had issues left over--low platelets--that didn't resolve for a while. It gets better and better slowly--the return to normal life, though altered by your experience for sure.

Dx 5/2013, IDC, <1cm, Stage IB, Grade 3, 0/0 nodes, ER+/PR+, HER2+ Surgery 7/8/2013 Mastectomy: Left; Reconstruction (left): Silicone implant Targeted Therapy 9/4/2013 Kadcyla (T-DM1, ado-trastuzumab)
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Aug 1, 2017 09:52AM Sara506 wrote:

Hi,

I will be having my LAST treatment next week! #17 - yay!! I can't believe I have (almost) made it this far. I travel by plane out of state EVERY 3 WEEKS to get this, and I'm just plain tired (or "plane tired." sorry, it was too easy!).

But here's my SE question - I just had a teeth cleaning (2 weeks ago?) and now my teeth are turning gray!! Eek! My dental hygienist said this is chemo-related and that it will go away. Is this correct? Have any of you experienced this?



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Aug 2, 2017 07:46AM IsabelArcher wrote:

Hi Sara506-- so exciting that you're almost done! I didn't have the dental SE that you describe, and I haven't seen any other posts about it from this group. If the dentist has seen this before as a chemo SE then it's almost surely nothing to worry about. But I'd mention it to your oncologist just for the record.

Dx 5/2013, IDC, <1cm, Stage IB, Grade 3, 0/0 nodes, ER+/PR+, HER2+ Surgery 7/8/2013 Mastectomy: Left; Reconstruction (left): Silicone implant Targeted Therapy 9/4/2013 Kadcyla (T-DM1, ado-trastuzumab)
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Aug 4, 2017 06:14PM MIPat wrote:

Wabals - Thank you. It is reassuring to know that I am not alone in having this type of response.

IsabelArcher - I think that not actively fighting "stupid cancer" is making me feel vulnerable. It is a feeling that I don't like at all. I know that it will take awhile before it is not all in the front of my brain. It will help when the liver issue resolves itself and my port comes out

Surgery 5/30/2016 Lumpectomy: Right Dx 5/31/2016, IDC, Right, 1cm, Stage IA, Grade 2, ER-/PR-, HER2+ (IHC) Surgery 6/22/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/23/2016, DCIS, Right, Stage 0, 0/1 nodes Targeted Therapy 7/31/2016 Kadcyla (T-DM1, ado-trastuzumab) Targeted Therapy 1/16/2017 Herceptin (trastuzumab)
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Aug 14, 2017 11:47AM TinyDancer5 wrote:

I met with my MO today for the one year after treatment follow up visit, vitals, and blood test. I asked how the other patients were doing - all are well and will or have already completed their treatments. My platelets are still a bit low, but higher than this time last year, so I guess that's a good sign. We discussed hot flashes and possibly Effexor may be an option soon. Anyone here taking Effexor?

Dx 5/28/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/22/2015 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 8/19/2015 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/9/2015 Whole-breast: Breast Hormonal Therapy 1/18/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/25/2016
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Aug 18, 2017 03:50PM Serenitysis wrote:

TD, congrats on your 1year!!!

Dx 5/2015, DCIS, Right, Stage 0, Grade 3, 0/1 nodes, ER+/PR- Dx 7/2015, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-, HER2+ Targeted Therapy 11/9/2015 Kadcyla (T-DM1, ado-trastuzumab) Surgery Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (right): Silicone implant
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Aug 18, 2017 06:28PM TinyDancer5 wrote:

Thanks Serenitysis! Pretty soon you will be celebrating your 1 year too.How are you doing?

Dx 5/28/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/22/2015 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 8/19/2015 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 11/9/2015 Whole-breast: Breast Hormonal Therapy 1/18/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/25/2016
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Aug 24, 2017 04:03AM Serenitysis wrote:

I am doing so much better, both physically & emotionally. Still trying to gain back a little more of the weight I lost during treatment (20 lbs.), due to appetite loss. Looking back, wasn't that year-long treatment a slog?!

I hope everyone's doing well! I have my one-year coming up in October.

Dx 5/2015, DCIS, Right, Stage 0, Grade 3, 0/1 nodes, ER+/PR- Dx 7/2015, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-, HER2+ Targeted Therapy 11/9/2015 Kadcyla (T-DM1, ado-trastuzumab) Surgery Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (right): Silicone implant
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Aug 25, 2017 09:15AM IsabelArcher wrote:

Serenity--so glad you're feeling better! Yes for sure that year was a slog. I wish I could lose the 15-20 pounds I gained AFTER the treatment (without doing anything to cause weight gain)!

Dx 5/2013, IDC, <1cm, Stage IB, Grade 3, 0/0 nodes, ER+/PR+, HER2+ Surgery 7/8/2013 Mastectomy: Left; Reconstruction (left): Silicone implant Targeted Therapy 9/4/2013 Kadcyla (T-DM1, ado-trastuzumab)
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Oct 8, 2017 07:35PM Reikion wrote:

Hair loss question:

I had my last TDM1 infusion on April 28th. Over the last couple of months I have been experiencing excessive hair loss. Had some hair loss at the start but then it had stopped. Now after treatment sudden excessive hair loss ... am taking b12 and biotin.

Any advice?

Thanks!

Dx 12/10/2015, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ (FISH) Surgery 2/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Targeted Therapy 5/20/2016 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/16/2016 Whole-breast: Breast
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Oct 9, 2017 02:19PM Ozoner wrote:

My hair got stronger with Omega-3 capsules. I had a previous prescription for Lovaza, which has absolutely no fishy smell or taste. The best outcome was with my fingernails, which were getting ridges and also tearing easily.

You did great to stick with the TDM1 infusions!My body took a long time to slough off the effects of treatment, but I figure this is a strong and effective medication that I was lucky to have available (btw, I only had seven infusions before I stopped because of neuropathy in my feet and legs).

Dx 3/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 3/9/2015 Lumpectomy: Left Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Chemotherapy Other Targeted Therapy Herceptin (trastuzumab)
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Oct 11, 2017 07:16PM Reikion wrote:

Thanks Ozoner! I will try Omega-3.

As a side note, just wanted to mention that I recently joined the "Living well Living strong" exercise program. Am enjoying getting back to the gym.

https://lslw.stanford.edu/

Best,

Reikion


Dx 12/10/2015, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ (FISH) Surgery 2/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Targeted Therapy 5/20/2016 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/16/2016 Whole-breast: Breast
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Oct 12, 2017 07:27AM IsabelArcher wrote:

Reikion-- I didn't have hair loss during TDM1 treatment and I wouldn't say I had any afterward as a result of the treatment. However, I do find much more hair in my comb than I used to when i was younger, and my very, very thick hair is now, at age 56, kind of average I guess. I assume it's part of postmenopausal aging, but I don't like it one bit! How old are you, and might the hair loss you're experiencing be related to menopausal changes and not the TDM1? I got my diagnosis at the same time that I stopped having periods (51, going on 52), and it can be hard to separate out one cause from another.

Dx 5/2013, IDC, <1cm, Stage IB, Grade 3, 0/0 nodes, ER+/PR+, HER2+ Surgery 7/8/2013 Mastectomy: Left; Reconstruction (left): Silicone implant Targeted Therapy 9/4/2013 Kadcyla (T-DM1, ado-trastuzumab)
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Oct 12, 2017 07:42PM Reikion wrote:

Isabel,

I'm 44 and my periods are normal. I had a lot of hair loss happen 2 years ago before diagnosis, hence some concern ....

Reikion

Dx 12/10/2015, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ (FISH) Surgery 2/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Targeted Therapy 5/20/2016 Kadcyla (T-DM1, ado-trastuzumab) Radiation Therapy 8/16/2016 Whole-breast: Breast
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Oct 13, 2017 07:09AM IsabelArcher wrote:

Reikion--

I see. Different set of issues. I hope the omega 3 that Ozoner recommended gives you good results--I might try that myself.

Dx 5/2013, IDC, <1cm, Stage IB, Grade 3, 0/0 nodes, ER+/PR+, HER2+ Surgery 7/8/2013 Mastectomy: Left; Reconstruction (left): Silicone implant Targeted Therapy 9/4/2013 Kadcyla (T-DM1, ado-trastuzumab)
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Oct 15, 2017 03:43PM MIPat wrote:

My liver values returned to normal and on Friday they took out my port. Now I feel like my treatments are finally over

Surgery 5/30/2016 Lumpectomy: Right Dx 5/31/2016, IDC, Right, 1cm, Stage IA, Grade 2, ER-/PR-, HER2+ (IHC) Surgery 6/22/2016 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/23/2016, DCIS, Right, Stage 0, 0/1 nodes Targeted Therapy 7/31/2016 Kadcyla (T-DM1, ado-trastuzumab) Targeted Therapy 1/16/2017 Herceptin (trastuzumab)
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Oct 15, 2017 04:11PM TTfan wrote:

great news MIPat! Congratulations!!

Dx 9/21/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ Surgery 10/9/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 12/2/2014 Herceptin (trastuzumab) Chemotherapy 12/2/2014 Taxol (paclitaxel) Radiation Therapy 3/23/2015 Whole-breast: Breast Hormonal Therapy 4/27/2015 Arimidex (anastrozole) Hormonal Therapy 3/1/2016 Aromasin (exemestane) Hormonal Therapy 8/7/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 15, 2017 05:37PM Ozoner wrote:

Hey MIPat!

So happy for you!!!

Feels weird for a long while after conclusion of treatment, doesn't it. Sometimes I had to remind myself that I could finally exhale and take it easy.

Congratulations!

I'm looking forward to someday finding the results of this trial--while concurrently leaving my concerns in the dust. Wishful thinking, I know, but we can do this

Dx 3/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2+ Surgery 3/9/2015 Lumpectomy: Left Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Chemotherapy Other Targeted Therapy Herceptin (trastuzumab)
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Oct 16, 2017 08:10AM IsabelArcher wrote:

MIPat-- Great news! So glad to hear this!

Dx 5/2013, IDC, <1cm, Stage IB, Grade 3, 0/0 nodes, ER+/PR+, HER2+ Surgery 7/8/2013 Mastectomy: Left; Reconstruction (left): Silicone implant Targeted Therapy 9/4/2013 Kadcyla (T-DM1, ado-trastuzumab)
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2 hours ago Serenitysis wrote:

Congrats on finishing your last steps, MIPat!

Nice to see some activity here again!

I had my one year follow-up appointment last week. Very uneventful, fortunately! Hard to believe it's been a year. I’m doing very well, finally, and have gained back most of the weight I lost. I have residual neuropathy in the toes of my right foot that may never go away, but small price to pay in the scheme of things. Of course my mastectomy/reconstruction is an unavoidable daily reminder, but I’m pretty used to it by now. I’m grateful for the TDM1 treatments and look forward to finding out the trial outcome someday

Similar to Reikion’s exercise program, many Y’s offer the Livestrong program for cancer survivors. I did it and it was great. It’s free.


Dx 5/2015, DCIS, Right, Stage 0, Grade 3, 0/1 nodes, ER+/PR- Dx 7/2015, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR-, HER2+ Targeted Therapy 11/9/2015 Kadcyla (T-DM1, ado-trastuzumab) Surgery Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery Lumpectomy: Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (right): Silicone implant

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