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Nov 10, 2017 11:07PM
hi everyone, I know cold is all the rage in new therapy for peripheral neuropathy but I have only seen that work for patients new to the symptom in my experience under 6 months to a year. I have heard many happy stories of using snow layer in hats and socks with one hat snow and second hat after bathing to try to avoid hair loss with limited success but great for hot flashes at least!
Didn't work nearly as well as I hoped either, once it started falling out fast it was gone in under a week no matter what I did so I got a free shave and new wig at a fabulous salon that donates everything to patients and survivors every month and it's such an amazing gift to be able to be a part of it all I had to share the latest tidbits we talk about in what we all call living with it!
I'm unique on a few levels more than previously joked about with family and friends, and having genetic proof of that now I hope it helps others to adapt and heal the way my body is right now during chemotherapy treatments that doctors can't explain. Not only do I have active hair regrowth on taxol now, it turned from white to brown last 2 months without any fallout at all, patches are changing color as they get longer and thicker it's freaky!
I've had peripheral neuropathy in my hands and feet for over 12 years now and I am very blessed that it was rarely painful but gradual heat therapy always worked better for me than anything else I have ever tried. My skin does not burn only when it is cold but I cannot accurately determine temperature on my skin below my elbows so it is important to know personal limitations and risks to any type of therapy you plan to use during chemotherapy treatments that make symptoms flare on top of new ones!! My team was quick to address it and my results of therapy are amazing benifit to my quality of life I wanted to share with you all.
Bottom line is, I HATE being cold, even during hot flashes I want wind over cold because I was sensitive to it before but on chemo I feel like I need a plastic bubble with a temperature of 70 to cruise around in!
so it's more about what you find comfortable in your circumstances and practical and safe for your total care plan.i do enough damage with a scooter in a store I can't imagine how much fun a huge hampster ball would be!
Take care and best of luck to everyone
6/25/2017, IDC, Both breasts, Stage IIIC, ER+, HER2-
7/13/2017 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide), Doxil (doxorubicin), Methotrexate (Amethopterin, Mexate, Folex), Taxol (paclitaxel), Taxotere (docetaxel)
9/1/2017 AC + T (Taxol)
1/8/2018 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left, Right; Reconstruction (left): Nipple reconstruction, Tissue expander placement; Reconstruction (right): Nipple reconstruction, Tissue expander placement
1/8/2018 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement