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Jun 19, 2019 07:39PM
I don't know what autism gut is, but I would say my GI tract had always been touchy, and leaning towards constipation much like yours. I had been managing that with a very (and I mean VERY) high fiber diet for the last 10 or so years with some pretty good success. I had more constipation than diarrhea on chemo and it has been much the same on Nerlynx. I have had only 1 episode of diarrhea and that was triggered (I think) by a very greasy meal, which can trigger diarrhea for me normally, as I rarely eat greasy things. I was very worried that I would have more problems with it during my treatments but the high fiber diet continued to work for me through everything. I would just eat some extra bananas whenever things were looser than I liked and watermelon when things were stopped up. I felt like I got off much easier than I expected.
My MO told me that any side effects I have on Nerlynx would go away once I stop taking the pills. I have had very little issue with this medication. The specialty pharmacist that is managing my dosage told me that people who don't have much diarrhea on Perjeta tend to do well on Nerlynx as well. And another pharmacist told me that most people start getting D at five pills/day, and not to increase the number of pills/day until everything is under control. So starting low and working up is a good idea. I am up to six pills/day and I'd say my GI tract is functioning pretty normally now.
I also had some neuropathy on TCHP. It was actually not terrible during chemo, but after surgery it came on pretty hard in my feet. I wonder if the neuropathy was aggravated by not exercising and also by walking around on my cold hard tile floors all day (since I wasn't leaving the house). I went out and bought some cushion-y flip flops to walk around the house in but by then the damage was done. I got acupuncture, took supplements (B12 and B6), increased my protein intake, but none of it helped. Finally when I was able to get back out running again the neuropathy cleared up. I don't know if it was actually the running or just the passage of time, of course. I also found it wasn't as severe if I kept my hands and feet warm, so I would always wear socks, and gloves if I was outside, and dish gloves if I was cleaning. Neuropathy is really hard because it lasts for so long and it's hard to get rid of. I'm not convinced anything I did actually helped, you may just have to wait it out. Best of luck to you with the neuropathy.
I hope all of this helps.
12/14/2017, IDC, Right, 3cm, Stage IIIA, Grade 3, ER+/PR+, HER2- (FISH)
1/2/2018 Zoladex (goserelin)
1/2/2018 Arimidex (anastrozole)
2/14/2018 Ibrance (palbociclib)
3/20/2018, IDC, Right, 3cm, Stage IIIA, 3/18 nodes, ER+/PR+, HER2+ (FISH)
3/28/2018 Perjeta (pertuzumab)
3/28/2018 Herceptin (trastuzumab)
3/28/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
8/22/2018 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
10/22/2018 Whole-breast: Lymph nodes, Chest wall
12/21/2018 Arimidex (anastrozole), Zoladex (goserelin)