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Topic: HER2+ treatment program

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jul 25, 2019 11:46AM

CCCooper wrote:

I have had two of my treatments out of the six scheduled over 4 months. I can no longer feel the tumor in my breast and I have an appointment scheduled next week to check for shrinkage. Has anyone ever had less than the 6 recommended treatments and gone right into having surgery for a full removal of the breast with success?

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Jul 25, 2019 12:02PM el7277 wrote:

Mine was no longer palpable...was 1.7 cm...but they do not know what is left until they do surgery. The docs could feel nothing but I still had residual tumor cells remaing after 6 tch treatments. My treatments ran from Dec 19 to April 4 with 2 weeks targeted therapy inbetween each infusion


Dx 12/3/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Targeted Therapy 12/19/2018 Herceptin (trastuzumab) Surgery 4/25/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jul 25, 2019 12:23PM illimae wrote:

I’m not saying it’s not possible but probably unlikely. Since the standard protocol is based on clinical trials, the usual course of treatment is proven for its overall benefits and doctors/insurance companies may not move forward with surgery unless the chemo is completed.

Just curious, if you’re able to stop early and have surgery, would you still have radiation and herceptin for a year?

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/20/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/23/2019 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 25, 2019 01:44PM MinusTwo wrote:

I'm assuming you mean chemo with TCHP? I agree agree with illimae about completing chemo. You have no way of knowing how many microscopic rogue cells are wandering around your body.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 25, 2019 03:06PM el7277 wrote:

TCH was it...no P for me under 2 cm.

CCC...my BS echoed what Minus is saying...chemo treats the whole body.

Dx 12/3/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ Targeted Therapy 12/19/2018 Herceptin (trastuzumab) Surgery 4/25/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jul 26, 2019 11:11AM MissouriCatLady wrote:

I don't know for sure, but would agree with Illimae. They could not feel mine either after a few rounds of chemotherapy, and doctor never mentioned stopping.

diagnosed at 55, DX 10/17/18 IDC Left IIB grade 3 0/2 nodes ER+PR-HER2+, 11/7/18 TCHP, 4/4/19 Left Lumpectomy, 4/29/19 anastrozole (name-brand at CVS with a GoodRX coupon), 6/3/19 Rads, HP done 1/8/20, complete response to neoadjuvant therapy
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Jul 27, 2019 11:08AM WC3 wrote:

My tumor was no longer palpable after my 3rd or 4th infusion and the radiologist said the MRI after my 4th infusion no longer showed cancer in my breast but the path report found that I had DCIS remaining at the time of my BMX.

Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 5/31/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/14/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jul 30, 2019 10:07AM Proud_Patriot wrote:

My original tumor was 2.5cm. After a few TCHP it could not be felt. I did 6 treatments and when mastectomy was done there was still a residual tumor of 1.4 cm. Remember chemo is not only to shrink the tumor but also to try to kill any stray cells that have escaped into the blood/lymphatic system.

Dx 4/26/2018, IDC, Left, 2cm, Grade 2, ER+/PR-, HER2+ (FISH) Chemotherapy 5/15/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 5/15/2018 Perjeta (pertuzumab) Targeted Therapy 5/18/2018 Herceptin (trastuzumab) Hormonal Therapy 10/1/2018
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Aug 22, 2019 05:45PM Margun wrote:

Anyone here with her2 could avoid radiotherapy or it is a must

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Aug 22, 2019 06:30PM MinusTwo wrote:

Margun - If you could go to 'my profile' and add your specs and make them public, it would be easier to answer. There's not really enough info in your post to see your diagnosis. But if you had lumpectomy, I believe the protocol is always rads. And if you didn't have neoadjuvant therapy with pCR, the protocol is still rads.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Aug 25, 2019 04:09AM Turkeypoult wrote:

I had a lumpectomy, then mastectomy and no radiation. Chemo TCHP starts 9/9.

“I finally threw in the towel. But God threw it back and said, ‘Wipe your face, girl. We are almost there.’” Dx 6/5/2019, IDC, Right, 1cm, Stage IA, Grade 3, ER+/PR-, HER2+ (IHC) Surgery 7/30/2019 Mastectomy: Right; Reconstruction (right): Tissue expander placement Targeted Therapy 9/8/2019 Perjeta (pertuzumab) Targeted Therapy 9/8/2019 Herceptin (trastuzumab) Chemotherapy 9/8/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary
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Aug 25, 2019 05:13AM - edited Aug 25, 2019 05:14AM by DogMomRunner

I got clean margins from surgery with no lymph node involvement. I still had to do the 12 (for me it was 11 due to WBC) Taxol and I will have Herceptin for a year. Plus I will have radiation therapy. None of my doctors have said anything about not doing all of the treatment

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Aug 25, 2019 08:11AM - edited Aug 25, 2019 10:37AM by Margun

hi Dogmomranner- did you have lumpectomy or mastectomy. I see lumpectomy in your history but I want make sure. In case of lumpectomy for her2 rads are a must, unfortunately. My friend had very small er and or positive but her2 negative tumour. With no node involvement She is having only lumpectomy and nothing else: no chemo, no rads, no targetedor hormon therapy..cancers are so different

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Sep 6, 2019 01:13PM ByUmom2 wrote:

Hi Margun, I did a lumpectomy due to a time constraint. Would have done the DMX then had I not had my youngest daughter graduating from high school. Did lumpectomy so I could attend all her ceremonies. I am meeting with my BS Tuesday and will be scheduling a DMX. I am choosing this in order to avoid radiation and also because of the dense breast. I have met with plastic surgeon to discuss options for reconstruction. I am choosing to go flat. Really do not want longer surgery table time and recovery time if I can help it. Best of luck to you! I am now following this thread since I have just started my year of Herceptin every 3 weeks.
Dx 4/3/2019, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/2/2019 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/28/2019 Herceptin (trastuzumab) Chemotherapy 5/28/2019 Taxol (paclitaxel)
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Sep 11, 2019 09:23AM Margun wrote:

Byumom- did you have your bmx scheduled? I see you have no lymph node involvement therefore with mastectomy you will avoid rads. Some say rads are easy why do not take it and some talk about fatigue and lingering se. On why or another I think rads hav some effect on our bodies. I learned that even after mastectomy rads will decrease (slightly ) recurrence but majority of docs do not think it is worthy to do rads for such small improvement. In the same time the cancer is so scary that some would accept an over treatment

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Sep 12, 2019 09:42AM ByUmom2 wrote:

Margun...yes I am scheduled for BMX on Oct.3. When I did the lumpectomy my margins were clear, but one margin was close. I also had a Mammo this week. Radiologist came out personally to tell me that it was clear and looked great! She is the one who did my biopsy back in April. I have chosen no reconstruction. As for the rads, my skin is super sensitive so I know I would more than likely have some issues and se’s from it.
Dx 4/3/2019, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/2/2019 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/28/2019 Herceptin (trastuzumab) Chemotherapy 5/28/2019 Taxol (paclitaxel)
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Oct 20, 2019 05:06PM Brooklyn1234 wrote:

Looks like I'm the odd one out: My MO is very happy with the way my tumour is shrinking after a few rounds of low-dose taxol and herceptin and she has said if it disappears completely on MRI she will stop the taxol early. She says there's nothing magical about the number 12 -- it's just the number they settled on when this protocol was being studied.

Not sure how I feel about potentially stopping early. The low-dose taxol is such light chemo to begin with, and I'm not getting any other drug, not even perjeta. Just radiation.

Dx 11/1/2009, 1cm, Stage I, 0/9 nodes, ER-/PR+, HER2+ Dx 9/2019, IDC, Left, 1cm, ER-, HER2+ Chemotherapy Taxol (paclitaxel)

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