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Topic: Cardiomyopathy and Herceptin

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jan 9, 2020 06:51PM

ano wrote:

Hi -

This is my first post and I am not sure if this is the right place to post, please let me know if it is not. I am writing on behalf of my mother.

She was recently diagnosed with Triple Positive IDC with lymph node involvement. The problem is that she has cardiomyopathy and her cardiologist has told her to avoid Herceptin completely due to the side effects . I understand that Herceptin is the default treatment for this kind of cancer, I am looking for stories of women who have gone through HER2+ cancer without herceptin

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Feb 4, 2020 05:25AM Kimmh012 wrote:

have you tried searching speficially for a "Cardiology Oncologist" near you, they are trained a little different and know more how to protect the heart from Herceptin and other cancer medications.

Seek a second opinion with Cardio Onc, it is well known HER2 patients need Herceptin.

~ALWAYS AN ADVENTURE~ Dx 3/22/2019, IDC, Left, 2cm, Stage IIA, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 4/2/2019 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 4/30/2019 Lumpectomy: Left Dx 5/1/2019, DCIS, Left, 1cm, Stage 0, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 5/12/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 6/23/2019 AC Targeted Therapy 9/17/2019 Herceptin (trastuzumab) Surgery 11/5/2019 Lumpectomy Radiation Therapy 1/12/2020 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/27/2020 Arimidex (anastrozole), Aromasin (exemestane) Hormonal Therapy 10/14/2020 Arimidex (anastrozole)

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