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Topic: Questions regarding treatment

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jul 6, 2020 11:16PM - edited Jul 7, 2020 12:09AM by Graceandbeauty1

Graceandbeauty1 wrote:

I was diagnosed in May 2018 with three separate diagnisis'. Triple negative in the right breast and Her2+\HR-, and Triple positive in left breast. DCIS was found throughout entire breast on both sides. I had bilateral mastectomy in July 2018, no reconstruction due to health issues. I was 43 at diagnosis.

No other treatment has been done. Tumors were 1.12cm, 1.3cm and a .17 mm. No chemo, no radiation.

My doctor has done no scans except for a lung ct which showed 8 nodules 9-11mm last Dec. All she does a check my temp and push on my scar. The scar is a whole separate issue. She butchered me!! Didn't even attempt to make decent incision lol. I'm in and out in leas than 5 minute.

Everything I have read says how aggressive the Triple negative and Her2+ is and that standard treatment is usually some type of chemo/meds even with smaller tumors. I have taken studies in, asked questions, and asked for additional tests/scans. Nothing. No blood work. NOTHING!!

Am I right to be scared, mad, feel like a number etc!!? I'm in the damn Research Triangle and this is care I have gotten! Why?

Any help/advice would be appreciated! Thanks!

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Jul 12, 2020 08:23AM Shar2020 wrote:

Is she a surgical oncologist or a general surgeon? Sounds as if you may benefit from a second opinion from an oncologist on what additional follow up is required.

Dx 6/1/2020, IDC, Right, 2cm, Stage IIA, Grade 3, ER+/PR-, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jul 12, 2020 11:05AM MinusTwo wrote:

I agree. You need to meet with a medical oncologist. Or maybe two. Usually they are the docs who "drive the bus". Surgeons cut. MO's determine everything else. Below is a link to major NCI cancer facilities so you can find one close to you.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 12, 2020 06:24PM - edited Jul 12, 2020 06:24PM by Gundersk

Yes, you should get another opinion. I agree with the others who said make sure you talk to an oncologist and a surgeon who specializes in oncology.

Dx 10/2019, IDC, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2+ (FISH) Targeted Therapy 12/29/2019 Perjeta (pertuzumab) Targeted Therapy 12/29/2019 Herceptin (trastuzumab) Chemotherapy 12/30/2019 Carboplatin (Paraplatin), Taxotere (docetaxel)

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