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Topic: Triple Positive Breast Cancer DX Today

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Jul 16, 2020 12:57PM

MominDC wrote:

Hi,

I found out today my cancer is triple positive and I am terrified as I am reading very scary information.

I am not sure where to go for accurate information.


Thank you so much in advance.


-Lauren

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Jul 16, 2020 01:26PM Moderators wrote:

Hi MominDC,

We're so sorry to hear of your diagnosis, but we're really glad you've reached out for support. We know it's a scary time, but please know that being triple positive ALSO means that you have more options for medicines and treatments to treat this type of cancer.

There is a ton of great support here in the Triple Positive Group -- make sure to stop in and introduce yourself. You're sure to get some great insight and encouragement!

We hope this helps!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jul 16, 2020 07:40PM YesIamaDragon wrote:

I am one year out from starting the chemo. It is completely normal to be freaked out and overwhelmed. In my case there was a delay in getting HER2 results and I was scheduled for surgery 3 days from when I actually got the HER2 results, so all of a sudden I went from surgery to port placement. I had just kind of found some even ground when all of a sudden my world was spinning again. Had a family member flying in to help me post-op, so she helped me post-port and helped cheer me up and that helped.

I hope you have a fairly local NCI/Academic cancer center, though in these days care should be pretty standard. Read the threads here, and the info on the main site. If you don't trust your team, get another opinion, but get it fast, because early start to chemo improves outcomes. But getting the RIGHT treatment improves it more.

I had 6 rounds of TCHP, was pretty worn out by the end, though I will say I never vomited, I had terrible constipation (I gotta be different) I did gain weight as I was warned I would. Be easy on yourself, do not be afraid to ask for help! look into Caring Bridge. My hair is growing back as thick as ever, and I am finding that even though pandemic would give me a good chance to grow it past the awkward stage I am liking it short! And at the moment it is purple, which I have always wanted to do but was afraid of the grow-out when it was really long :) OH! And at work I wore wigs, which felt REALLY obvious to me. My pre-chemo hair was THICK and CURLY and LONG. Could not find any wigs (for less than thousands) anything like my hair. But even people who know me well and have known me for years thought I had cut, straightened and highlighted my hair, which I thought was a hoot! And the cheaper wigs ended up looking better!


Ask any questions! There are a lot of us in this boat.

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Aug 4, 2020 11:41PM Nottodaycancer2020 wrote:

Hi Lauren,

I’m new to the thread and came across your post. I just got my diagnosis also in July.

34 years old, DX-DCIS on 6/25, DX-IDC-HER2 triple positive in July, 1 node involved, grade III, positive for CHEK2 gene, started TCHP regimen on 7/24/2020
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Aug 5, 2020 09:19AM - edited Aug 5, 2020 09:23AM by Moderators

Nottodaycancer, we're sorry for your diagnosis but really glad you found us and decided to reach out to our members. If you want, you can also contact Lauren via private message. Click on her user name and there you'll see the option "Send member a Private Message". Please let us know if you need help with that. We're here to help!

Sincerely,

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...

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