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Topic: Herceptin maintenance done, now what?

Forum: HER2+ (Positive) Breast Cancer —

Testing, treatment, side effects, and more.

Posted on: Aug 20, 2021 07:19AM

Perea66 wrote:

I wrapped up a year of treatment on July 22nd with my final herceptin infusion. Yay, so glad that's over!!! My diagnosis was stage 1 and triple positive; post surgery I'm cancer free. I'm wondering what others have experienced after the herceptin infusions are over. I'm experiencing more aches (muscle and joint) now than during the infusions. I read that it takes about 2 + months for the herceptin to completely leave the body. Hopefully this will be over soon. Would love to hear from you.


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Aug 20, 2021 09:26AM SpecialK wrote:

perea - are you on anti-hormonals? If so, that could be responsible for the muscle and joint aches. There is an active triple positive thread on this site, here is a link:

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Aug 26, 2021 07:16AM Perea66 wrote:

Hello SpecialK,

I am not yet taking hormone suppressant therapy. I wanted to make sure that the herceptin has time to come out of my body so that i don't confuse the side effects of the suppressant with the waning levels of herceptin. From what I read, it can take 65 days +/- for herceptin to leave the body so I plan to give it a try in October. Thank you for your guidance!

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Aug 26, 2021 07:05PM Cowgirl13 wrote:

Perea66, I hear you about wanting to separate out what's causing what side effect but do know that there is an optimum of time to start the anti-hormonals. Do talk to your oncologist so you don't miss that window of time or if it's most important to separate everything out, at least you will have the information and be confident with your decision, whatever you decide.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/17/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)

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