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Topic: Been here before terrified please read

Forum: IBC (Inflammatory Breast Cancer) —

Just diagnosed, in treatment, or finished treatment for IBC. Posting pictures of symptoms is prohibited per our Community Rules -- you are encouraged to seek medical advice from your doctor in the event of any concerns.

Posted on: Oct 16, 2013 05:05AM

champy wrote:

Hi there I've been here before about 12 months ago was worried about something different I'm quite an anxious person and worry about the littlest things :( ...

I have only just noticed that on BOTH breasts I have broken capillaries close to the surface all around the nipples and extending about 3 inches out sounds fine eh !! Lol well they are new for me and I'm 41 had a baby 12 months ago ( did not breast feed ) but my breasts Are very large with fine skin and the skin is quite thin/ stretched.

Is it normal to see red tiny veins all over them? Slightly more so in right than left no swelling skin changes heat etc does anyone else have this or seen this I'm worried it's a sign of IBC even though bilateral ? I'm seeing a breast surgeon Monday is this a normal aging appearance or should I be more worried than I already am ? Thanks so much

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Oct 16, 2013 06:17AM MelissaDallas wrote:

Sounds like perfectly normal breast changes from pregnancy to me. Glad you're getting it checked out.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Oct 17, 2013 08:59AM Kicks wrote:

Does not sound at all like IBC.  Probably just signs of ageing and the stress of pregnancy at a somewhat 'older' age.  An appointment with OB/GYN or PC would be the first appointment I'd make - not with a Surgeon.

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/25/2009 AC Surgery 10/21/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/11/2009 Taxol (paclitaxel) Radiation Therapy 2/4/2010 Breast, Lymph nodes
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Oct 17, 2013 01:45PM champy wrote:

Thanks guys I do have a strange red mark at the site of one of the capillaries and am wondering if it burst or clotted as its quite dark like two mosquito bites that won't go away does that sound at all like IBC ? When the Breast is warm or I'm stressed both take on a rash or flushed appearance but it is in both ?

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Oct 17, 2013 02:12PM MelissaDallas wrote:

it does not sound like IBC.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Oct 17, 2013 03:32PM - edited Oct 17, 2013 08:57PM by Moderators

NO! iBC does NOT look like a Skeeter (mosquito) 'bite'!

I grew up in SW FL so have had thousands/millions of 'skeeter' bites and I NEVER had "quite dark" spots.
Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/25/2009 AC Surgery 10/21/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/11/2009 Taxol (paclitaxel) Radiation Therapy 2/4/2010 Breast, Lymph nodes
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Oct 17, 2013 03:41PM - edited Oct 17, 2013 08:57PM by Moderators

This Post was deleted by Moderators.
Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Oct 17, 2013 03:55PM MelissaDallas wrote:

She is not a "scammer". She was here last year and clearly stated she suffers from anxiety so please don't be unkind.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Oct 17, 2013 08:34PM - edited Oct 17, 2013 09:36PM by Beesie

Edited to remove my comments since the Mods took care of the issue. Thanks, Mods!

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Oct 17, 2013 11:19PM champy wrote:

Thanks guys no definately not a scammer :( look up my previous posts I suffer HIGH anxiety related to getting breast cancer and I've only noticed these veins and the motly flushed look that is around both nipples at times what worries me is it's worse on one side if it were even on both of be a lot less worried :(( does anyone else get the tiny red veins all over skin surface and looks like rosy flushed look or not ? Thanks and thanks Melissa :)

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Oct 18, 2013 01:53AM champy wrote:

Ok I figure the red 'rash' I get on both breasts when hot is the capillaries coming to the surface to cool down and turns the breast a motly colour ?? And the veins that are there all the time are spider veins??? Would this make sense? Does anyone else get it when hot and does anyone else have spider veins or can see tiny purple veins on their breasts ?? Please is it normal ??

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Oct 18, 2013 01:57AM champy wrote:

Also are capillaries visible on skin and spider veins a sign of inflammatory BC ?!? Sorry my anxiety is out of control until I see dr Monday did anyones rash look like capillaries ? Thanks again

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Oct 18, 2013 11:41PM ibcmets wrote:

Have to tell you that mine did look like a spider bite--did not have capilleries or veins protruding.

Terri

6/2009 stage IV diagnosis w bone mets ,Xgeva , 2015 brain mets, liver metastasis
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Oct 19, 2013 12:08AM champy wrote:

Thanks so much ladies :) IBC mets what does a spider bite look like? My blotchinrss is definately tiny capillaries coming to the surface and the spider veins are there all the time the blotchinrss is not there when I get out of bed but quickly shows when I stand up wonder of its extra blood flow because I'm big breasted in any case I'll ask Monday but are you saying the rash with inflammatory cancer does not look like or have any association with capillaries ???? Thanks so much for listening it's hard when fuelled by anxiety :( xx

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Oct 20, 2013 05:50PM champy wrote:

Thanks Bon it's so debilitating :((( Thanks ladies saw breast surgeon this morning and she said my breasts are nice and soft no skin changes or inflammation etc she said they are just spider nevi from pressure ( I guess big heavy breasts hang all day ;) ) and that she has never seen spider nevi associated with breast cancer I sure hope she is right she said women go to her with them to assess before getting them removed for cosmetic reasons and that even though she knows I'm anxious if she were worried she would explain to me why and do testing ...she said its not a rash purely tiny veins. I will try very hard to move on and of course keep and eye for any other changes and hope none come lol thanks for the support and good luck to you all your such a blessing to take time out to help reassure women like myself xxxx

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Oct 20, 2013 06:50PM MelissaDallas wrote:

I'm happy the doc was able to reassure you. Best wishes Champy.

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Dec 9, 2020 01:04PM Smb78 wrote:

I’m currently experiencing the same exact thing .. even the blushed skin and I am freaking out! My anxiety sky rockets most of the time :( have an appt in January hopefully to get the anxiety under control..

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Dec 9, 2020 01:11PM Moderators wrote:

Smb78, we're so sorry you are having this anxiety and concern.As you'll notice, this is a rather old thread, but glad you found it. Managing the waiting/anxiety can be very overwhelming. We hope that you can join our more "fun" threads to help you get your mind off of it, for now. And glad you have an appointment in January. We're here for you Medicating

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Dec 9, 2020 11:40PM blue22 wrote:

Smb78 I suggest you start a new post if you want responses, however I suggest you try to do more helpful things that might reduce your anxiety! (Yoga, meditation, exercise etc.)

The symptoms of the original poster - which apparently you are having - do NOT sound like IBC


Dx 1/2019, IBC, Left, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2- (FISH) Chemotherapy 2/15/2019 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Dx 7/30/2019, IDC/IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/14 nodes, ER+/PR+, HER2+ (IHC) Surgery 7/30/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left Dx 8/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+ Radiation Therapy 10/8/2019 Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine)

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