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Topic: What were your symptoms of IBC?

Forum: IBC (Inflammatory Breast Cancer) —

Just diagnosed, in treatment, or finished treatment for IBC. Posting pictures of symptoms is prohibited per our Community Rules -- you are encouraged to seek medical advice from your doctor in the event of any concerns.

Posted on: Feb 20, 2016 08:57PM

Aguafria wrote:

And please forgive me if this is the wrong forum :) I'm just curious as to what your story was. Thanks

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Posts 31 - 38 (38 total)

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Aug 15, 2016 05:24PM jcpriest0469n wrote:

my inflammory breast cancer presented very quickly,except for the iching,but I didn't realize what it was until after the dianogsis. The itching starter in the summer and the other symbols showed in Oct. My left breast double in size with two lumps and an inverted nipple. It didn't show on mammogram, or ultrasound. A biopsy did the job.

Dx 12/9/2013, DCIS/IBC, Left, 3cm, Stage IIIB, Grade 3, ER-/PR-, HER2- Chemotherapy 12/17/2013 AC + T (Taxol) Surgery 3/31/2014 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 7/3/2014 3DCRT: Breast, Lymph nodes
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Aug 22, 2016 04:06PM kjprice35 wrote:

Just wondering if you ever got your diagnosis?


I woke up last Tuesday with a bright red angry area on my right breast.

It was the entire length of my mastectomy scar and an inch or so above and below it. So, basically 8 or 9 inches long by 3 inches high or close to the entire breast! I freaked out and am still concerned that it may be a reoccurance or IBC.  It was such a large area, came out of no where, and it was so very red hot.  I called the breast clinic and they made an appt for Thursday but that was all they could do. 

I have implants (silicone) so I was concerned that it may be an infection so I called my PS. My PS was out of the office for the week but his partner did call me in some anitbiotics, sulfa meds, and antibiotic cream.  He asked that I come in the next day and when I did he said he was fairly sure that it was contact dermatitis but I have done nothing new, changed nothing, nor had I come in contact with anything new or different than normal.  I had a reaction to the sulfa meds so I took a Benadryl and didn't take any more but continue to take the clyndamicin. Also, the cream made me ITCH like crazy and seemed to aggravate the other breast so I discontinued it after 24 hours. Once I discontinued it the area on my left breast that was aggravated and itchy gradually went away so I'm assuming that was the cream. 

On Wednesday the red area on had lightened up but both breasts were aggravated and itchy (from the cream) and at that point I called the breast clinic and told them that and they switched to appt to that day. So I went in with what looked like a rash on both breasts but that wasn't in reality what it was/is. I had an ultrasound at the breast clinic and the Dr there said he thought I was fine (he didn't even look at my chest or the area involved!).  He based his diagnosis on the ultrasound only and gave me absolutely no answer as to what it was. I got very angry and he finally said he could bring me back in 2 weeks for an US... I asked him why I would come back for the same test that showed absolutely nothing so he begrudgingly said that we could make it an MRI if that would make me feel better.  I told him it was better than a repeat of that visit.

The left breast is back to normal and, as of this morning, the right has faded to a very faint pink flushed color.  I am having pains in my arms along with muscle fatigue. I am also having some continued itching and shooting pains in my right breast and serious pain in the center of my chest between the two. That pain feels like its just below the surface or on the bone?I had an MRI in the fall last year because I saw a spot on my bone scan that was brighter than the rest.  The radiologist said it was a hemangioma but only after I insisted on the MRI to look at it. I have had and continue to have pain under my right shoulder blade right next to the area on the spine where the "hemangioma" was/is. 

Am I just being a hypochondriac? and really, how is it possible to not be concerned? Any one else have any of these issues?


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Aug 23, 2016 09:33AM tracy616 wrote:

I'm 67 and had a 3D mammogram that did not pick up my IBC. It took almost seven weeks for the doctors to find it. All I had was a very pale pink around the breast. No fever, no warm skin, no orange peel affects and no lumps. Because something just didn't feel right I just kept pushing until the doctors were finally able to see skill thickening on the MRI and confirmed it with an ultra sound then a biopsy. Be persistent if you think you have this. I know the front desk of the doctors offices were probably calling me all kinds of names because I pushed to be seen sooner than they wanted to schedule me. I will hopefully start treatment on Monday (8/29).

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Aug 23, 2016 06:35PM Traveltext wrote:

Excellent work pushing your case tracy616. Sorry you have to be here, but when you have a treatment plan, come over and meet the crew on the BCO IBC Lounge HERE.


Have breast & prostate cancer. NED both. More on Male BC

Dx 06/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

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Aug 12, 2017 07:40PM dunegrass wrote:

In answer to "What were your symptoms..." Like Tracy616 I have had slight reddish purple mottled coloration with almost spider-vein like markings on right breast around the ariola and extending out 1.5 to 3 inches around. (Slightly farther on right side of breast.) Have also had vague aches and pains in that breast. These symptoms have been present for 2 to 3 months. My P.A. looked at it a couple weeks ago and did not think it was IBC because symptoms were few and mild. I do remember itchiness in that breast which began about 3 to 4 months ago, and has since gone away. I also had my sister, a certified nurse midwife look at it. She also thought it was nothing. I still think it unusual to have this discoloration and vague pain for no reason. After reading Tracy616's experience, I'm back to worrying about IBC again. Thank you for this forum. I would be grateful for any advice!

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Aug 12, 2017 07:45PM dunegrass wrote:

I hope your treatment went well and that you are doing fine, Tracy616. Thank you so much to you and all on this site for sharing your experience and wisdom.

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Aug 12, 2017 10:39PM Kicks wrote:

Tracy616 has only posted once and has not been back to Site since the day she signed up and wrote the only post.

IBC is rare - only between 1% - 4% of all DXd types of BC. It is rapid in presentation and aggressive in progression. Literally can present over night and progress in days. It has no 'set in stone' rules it has to/does follow. It does not go away once it presents.

I can only speak for myself - I never had any 'redness/rash', pain, or 'itchiness. Mine present literally overnight with an enlarged lymph node. I saw my PA a week later and had a new mammo, an US and biopsies that afternoon and the path. report at 8 the next morning. Lots of appts, scans and port placement in the next 17 days and started neoadjuvant. Total of 24 days from presentation to starting Chemo.

There are a MANY possibilities/probabilities for what you've experienced that have nothing to do with a y type of BC. An appt with a Dermatologist might be in order. If it persists/worsens - see your PA again.

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes
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Aug 14, 2017 01:23AM dunegrass wrote:

Thank you, Kicks. I will follow up with dermatologist.

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