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Mar 18, 2020 01:06PM
Hey SB, thanks for asking. Life sure is getting surreal, isn't it? I live in one of the early hotspots so things have been crazy here for a while. I'm a little concerned about my ability to get fresh produce and meat (protein) going forward because our grocery stores are always emptied within minutes of opening and by the time my husband leaves work he is left picking over scraps. We won't starve, I keep a good earthquake kit and a well-stocked pantry. I even have a 3-week Mountain House kit if it comes down to it. But I've been eating a diet of protein and lots of fresh fruits and veggies to try to keep my body as strong as possible, so I'm not excited about the prospect of eating a diet of mainly shelf-stable carbs if it comes down to that. It's impossible to find bananas here and I keep picturing dozens of black bananas sitting in people's kitchens. People hoard the strangest things. At least we did manage to snag a bag of Halos because I like to eat an orange every day.
I've been self-isolated for 3 weeks now because my WBC dropped like a rock for some reason. Even had to cancel lunch with a friend I hadn't seen since last year because she just returned from a Mexican cruise. It's the first time my labs have shown any changes during 2.5 years of chemo, so I'm hoping it was just a one-off thing and tomorrow they show a rebound. Can't say I'm excited about leaving the house for chemo tomorrow, but I'll see what they are doing to protect people like me.
On top of all that, I had a water leak in the pipe between the street and the house. My husband was glad that I always make sure our earthquake kit has plenty of water because we had no running water in the house for a week. But the timing double sucked because although we could refill the jerry cans of water from the tap, it was hard to replace the bottled water we had used because it was all sold out. I don't know why people think they need to hoard bottled water for this damn virus. They had to take a jackhammer to the courtyard in front of the house, oh yay. It's been raining ever since (can you believe that, rain in SoCal for two straight weeks??) so it will be at least another week before that can be repaired, and we'll probably end up having to tear ALL of it up and redoing it otherwise it won't match, right when the economy is crashing and we're about to go into a shelter-in-place lockdown (my husband is self-employed, so lockdown means no income),
Then after they fixed the leak and turned the water back on, apparently debris got in the pipes and I had no hot water in the master shower. Took another four days to get the part in and fix that.
AND THEN the charging port on my stupid phone died. I hate spending money on myself when I don't know if I'll be alive long enough to justify it, but after 3 days of trying to get the phone to charge I realized that I really needed to have a reliable phone in case of an emergency, so now I have a new phone. My old phone was a Note 4, so it was time to upgrade anyway but I really loved that phone. ;)
So life has been throwing us a few extra curveballs on top of the COVID-19 situation, but we're still in good spirits and doing okay. My husband would fly to the moon and back to get me what I need, but I feel so bad about all of the extra work and stress on him now because it's not safe for me to leave the house even to run to the grocery store. We don't even want me to chance going during the first hour many stores are doing for the elderly and at-risk because it's still very crowded and my immune system is seriously challenged right now. Last week he stayed on the phone with me the entire time as he walked each aisle and told me what was left (not much) so I could choose what he should buy haha! Poor guy.
How is everyone else doing with this craziness? Hope all are well!
IBC Stage IV de novo - mets throughout skeleton, liver, distant nodes, chest wall, skin, tumor in brachial nerves.Still trying to get it to slow down.
9/8/2017, IBC, Right, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2+ (IHC)
9/26/2017 Taxol (paclitaxel)
2/6/2018 Perjeta (pertuzumab)
2/6/2018 Herceptin (trastuzumab)
11/26/2018 Taxol (paclitaxel)
1/30/2019 Whole-breast: Breast, Lymph nodes, Chest wall
Kadcyla (T-DM1, ado-trastuzumab)