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May 1, 2020 08:25AM
Lots of people saying they thought they had it in Dec/Jan/Feb because they had bad flu symptoms. I'm pretty sure I had the flu in early January. But the actual percentage of positive test results is around 10% in the US, so 90% of people who think they have it, don't. That makes me a bit skeptical of the claims that it was circulating widely that early. And I agree with you, if it had been circulating earlier at the rate some are hypothesizing, our healthcare system would have seen some indication of it. Sorry you weren't able to act on your good intentions SB.
My latest development - not sure if I mentioned that my fevers have been trending higher. Kadcyla directs the immune system to attack cancer cells and is a type of targeted immunotherapy. Low-grade fevers are a known side effect, part of the immune response, and I've had low-grade fevers since I started this chemo. I monitor my temperature religiously throughout the day and have seen it trending higher recently. After my last two infusions I woke in the middle of the night with intense rigors and a fever of 101.7. I was able to bring the fever down with ibuprofen and an ice bag on my head and neck, but it was a very frightening situation. My onc thinks I'm headed toward a cytokine storm, same thing that has been killing many COVid-19 patients when the immune system starts attacking healthy cells and tissue like lungs and heart. Just had infusion yesterday and we're going to see if we can head off the intense immune response and fever this time. If not I may have to stop this treatment because my immune system is overreacting to it.
And my hemoglobin and hematocrit were higher again. :(
Not sure if I mentioned the bleeding episode I had two weeks ago, or the headache that knocked me out for 3 days straight. All I could do was sleep around the clock to escape the pain. Polycythemia affects memory and I can't remember what I said or did 5 minutes ago sometimes.
COVID-19 causes treatment complications. They originally wanted me to wait until the situation settled down before having my next echo, but with everything else going on in my body now they are insisting I have it done before my next infusion to make sure my heart is okay since Kadcyla is cardiotoxic.
It's hard to explain how I can feel like crap most of the time right now, but still am doing okay, feel healthy and strong enough to deal with all of these complications and just need to push through it.
IBC Stage IV de novo - mets throughout skeleton, liver, distant nodes, chest wall, skin, tumor in brachial nerves.Still trying to get it to slow down.
9/8/2017, IBC, Right, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2+ (IHC)
9/25/2017 Taxol (paclitaxel)
2/5/2018 Perjeta (pertuzumab)
2/5/2018 Herceptin (trastuzumab)
11/25/2018 Taxol (paclitaxel)
1/30/2019 Whole-breast: Breast, Lymph nodes, Chest wall
Kadcyla (T-DM1, ado-trastuzumab)