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Topic: IBC lounge: roll call, support and just a good place to hang out

Forum: IBC (Inflammatory Breast Cancer) — Just diagnosed, in treatment, or finished treatment for IBC. Posting pictures of symptoms is prohibited per our Community Rules -- you are encouraged to seek medical advice from your doctor in the event of any concerns.

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Posted on: Mar 31, 2016 07:23PM

Posted on: Mar 31, 2016 07:23PM

PurpleMinion wrote:

Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are:

I'll go first: dx June 2015 TN IBC, not NED but hoping to get there.

IBC is such a different diagnosis than so many of the other types of BC I think it is really important for us to talk and share and learn from each other.

I am taking a "board break" mid June 2016, I will be back but mentally exhausted right now. Peace be with all of you. Diagnosed at 46 triple negative IBC. Mets to skin, lungs, bones. Dx 6/29/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2- Chemotherapy 7/22/2015 Carboplatin (Paraplatin), Taxol (paclitaxel) Chemotherapy 10/22/2015 CEF Dx 1/7/2016, IBC, Right, Stage IV, metastasized to other, Grade 3, ER-/PR-, HER2- Targeted Therapy 2/4/2016 Dx 5/6/2016, Stage IV, metastasized to bone Chemotherapy 5/9/2016 Carboplatin (Paraplatin), Gemzar (gemcitabine) Dx Stage IV, metastasized to lungs
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Jul 31, 2017 09:42AM meadow wrote:

Good day to all my friends! As promised, this is a picture of our little camper we had restored this spring. We love it! It had been in my husband's family for years, and had fallen into disrepair...it was just about gone from all hope! But a friend took on the challenge and now it is back in action. We hope to use it for many years. It is a 1968 Serro Scotty. I will post some pics of the inside.

On another note, I too am thinking of Purple, and miss her. Thank you all for continuing this board in it's reinvented form, we are a true family of support.

Dx 8/15/2013, IBC, ER-/PR-, HER2- Chemotherapy 8/26/2013 AC + T (Taxol) Radiation Therapy 2/11/2014 Breast, Lymph nodes Surgery 1/15/2017 Reconstruction (Left)
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Jul 31, 2017 09:46AM meadow wrote:

Dx 8/15/2013, IBC, ER-/PR-, HER2- Chemotherapy 8/26/2013 AC + T (Taxol) Radiation Therapy 2/11/2014 Breast, Lymph nodes Surgery 1/15/2017 Reconstruction (Left)
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Jul 31, 2017 09:51AM meadow wrote:

Dx 8/15/2013, IBC, ER-/PR-, HER2- Chemotherapy 8/26/2013 AC + T (Taxol) Radiation Therapy 2/11/2014 Breast, Lymph nodes Surgery 1/15/2017 Reconstruction (Left)
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Jul 31, 2017 09:54AM meadow wrote:

Dx 8/15/2013, IBC, ER-/PR-, HER2- Chemotherapy 8/26/2013 AC + T (Taxol) Radiation Therapy 2/11/2014 Breast, Lymph nodes Surgery 1/15/2017 Reconstruction (Left)
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Jul 31, 2017 01:32PM Scwilly wrote:

Meadow - what a beautiful and homely caravan. Enjoy allyour trips in it!

Dx 11/4/2013, IBC, Left, 2cm, Stage IIIB, Grade 2, 0/3 nodes, ER-/PR-, HER2- Chemotherapy 11/14/2013 AC Chemotherapy 1/14/2014 Taxol (paclitaxel) Surgery 4/29/2014 Radiation Therapy 6/24/2014 Whole breast: Breast, Lymph nodes, Chest wall Dx 2/16/2015, DCIS, Right, 2cm, Stage 0, Grade 2, 0/6 nodes, ER+/PR-, HER2- Surgery 4/6/2015 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 3/23/2016 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Dx 11/15/2016, Stage IV, metastasized to liver, ER+ Hormonal Therapy 11/15/2016 Arimidex (anastrozole) Targeted Therapy 2/17/2017 Ibrance (palbociclib) Chemotherapy 8/31/2017 Xeloda (capecitabine) Dx 4/5/2018, Stage IV, metastasized to bone, ER+ Surgery 4/5/2018 Radiation Therapy 4/18/2018 Chemotherapy 5/3/2018 Other Chemotherapy 7/27/2018 Carboplatin (Paraplatin) Chemotherapy 9/20/2018 Abraxane (albumin-bound or nab-paclitaxel) Hormonal Therapy Aromasin (exemestane)
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Jul 31, 2017 03:03PM noor46 wrote:

What a beautiful caravan Meadow! The interior is splendid. Reminds me of the caravan we had when I was a child, but ours was not that beautiful though.

Traveltext, very good article on male bc

Only 2 days left to work before holidays. Looking forward to spend them with my children, who are studying in the Netherlands, so I don't see them as often as I would like.

Noor

L'air du paradis est celui qui souffle entre les oreilles d'un cheval. The wind of heaven is that which blows between a horse's ears. Arabian Proverb Dx 11/19/2014, IBC, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 12/28/2014 CEF Chemotherapy 3/23/2015 Taxotere (docetaxel) Surgery 6/23/2015 Mastectomy; Mastectomy (Right) Radiation Therapy 8/17/2015 Whole breast: Lymph nodes, Chest wall Hormonal Therapy 9/22/2015 Femara (letrozole)
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Jul 31, 2017 06:31PM traveltext wrote:

Wow, Meadow, that's a classic 50-years-young van that's been beautifully restored. So much character and love the teal interior. Happy travels.


Chemotherapy 3/6/2014 Other Chemotherapy 3/6/2014 AC + T (Taxotere) Chemotherapy 3/10/2014 FAC Hormonal Therapy 4/16/2014 Surgery 7/1/2014 Lymph node removal (Left); Mastectomy (Left) Surgery 7/23/2014 Lymph node removal (Left); Mastectomy (Left) Radiation Therapy 8/8/2014 Whole breast: Left breast, Lymph nodes Radiation Therapy 8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes Hormonal Therapy 10/24/2014 Liquid tamoxifen (Soltamox) Hormonal Therapy 10/30/2014 Hormonal Therapy 11/1/2014 Surgery 5/8/2022 Radiation Therapy Surgery Surgery Surgery Hormonal Therapy Surgery
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Aug 2, 2017 01:33PM Valstim52 wrote:

Wow Meadow. It is stunning. It could be in a holiday magazine!!! Happy travels. So good to hear from you.

TT a wonderful article....

The glass is half full. Do not live life looking in the rear view mirror. Can't go forward that way Dx 11/24/2015, IDC/IBC, Left, 6cm+, Stage IIIB, Grade 1, 2/19 nodes, ER-/PR-, HER2- Chemotherapy 1/11/2016 AC + T (Taxol) Surgery 5/24/2016 Mastectomy: Left, Right Radiation Therapy 6/21/2016 Whole breast: Breast, Lymph nodes, Chest wall Surgery Mastectomy: Left, Right
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Aug 3, 2017 06:04PM moreshoes wrote:

Wow! What a beautiful camper! I love the teal, it's so joyful. Have a great time!

Dx 4/9/2008, IDC, Left, 2/16 nodes, ER-/PR-, HER2- Dx 6/21/2012, IDC, Right, 0/1 nodes, ER-/PR-, HER2- Dx 10/30/2015, IBC, Left, ER-/PR-, HER2-
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Aug 4, 2017 09:27AM minimoocher wrote:

As my kids would say OMG Meadow! The camper van is amazing. I was born in '68 so it's pushing fifty like me. You have done a great job on the interior. I love it. Wishing you many happy years of rambling and exploring.

TT, thanks for the link to the articles. You write so well. I think you should write a book.... Bet I am not the first person to say that to you.

On the health front had routine echo cardiogram yesterday, all fine. So next Kadcyla on Tuesday.

Best wishes to all. Enjoy your holidays and short breaks,

Mini x


Dx 2/25/2016, IBC, Right, Stage IIIC, 15/20 nodes, ER-/PR-, HER2+ Chemotherapy 3/8/2016 Taxotere (docetaxel) Targeted Therapy 3/8/2016 Perjeta (pertuzumab) Targeted Therapy 3/8/2016 Herceptin (trastuzumab) Surgery 7/20/2016 Lymph node removal: Right; Mastectomy: Right Targeted Therapy 8/2/2016 Herceptin (trastuzumab) Targeted Therapy 8/2/2016 Perjeta (pertuzumab) Dx 8/30/2016, IBC, Right, Stage IV, metastasized to other, 15/20 nodes, ER-/PR-, HER2+ Targeted Therapy 9/20/2016 Kadcyla (T-DM1, ado-trastuzumab) Chemotherapy 12/11/2017 Xeloda (capecitabine) Targeted Therapy Herceptin (trastuzumab)

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