Posted on:
Mar 31, 2016 07:23PM
P
Joined:
Mar 2016
Posts:
162
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Jul 3, 2016
Posted on:
Mar 31, 2016 07:23PM
PurpleMinion
wrote:
Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are:
I'll go first: dx June 2015 TN IBC, not NED but hoping to get there.
IBC is such a different diagnosis than so many of the other types of BC I think it is really important for us to talk and share and learn from each other.
I am taking a "board break" mid June 2016, I will be back but mentally exhausted right now. Peace be with all of you. Diagnosed at 46 triple negative IBC. Mets to skin, lungs, bones.
Dx
6/29/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2-
Chemotherapy
7/22/2015 Carboplatin (Paraplatin), Taxol (paclitaxel)
Chemotherapy
10/22/2015 CEF
Dx
1/7/2016, IBC, Right, Stage IV, metastasized to other, Grade 3, ER-/PR-, HER2-
Targeted Therapy
2/4/2016
Dx
5/6/2016, Stage IV, metastasized to bone
Chemotherapy
5/9/2016 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Dx
Stage IV, metastasized to lungs
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M
meadow
Joined:
Mar 2014
Posts:
1,925
Latest activity:
Jan 25, 2022
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Jul 31, 2017 09:42AM
meadow
wrote:
Good day to all my friends! As promised, this is a picture of our little camper we had restored this spring. We love it! It had been in my husband's family for years, and had fallen into disrepair...it was just about gone from all hope! But a friend took on the challenge and now it is back in action. We hope to use it for many years. It is a 1968 Serro Scotty. I will post some pics of the inside.
On another note, I too am thinking of Purple, and miss her. Thank you all for continuing this board in it's reinvented form, we are a true family of support.
Dx
8/15/2013, IBC, ER-/PR-, HER2-
Chemotherapy
8/26/2013 AC + T (Taxol)
Radiation Therapy
2/11/2014 Breast, Lymph nodes
Surgery
1/15/2017 Reconstruction (Left)
M
meadow
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Mar 2014
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1,925
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Jan 25, 2022
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Jul 31, 2017 09:46AM
meadow
wrote:

Dx
8/15/2013, IBC, ER-/PR-, HER2-
Chemotherapy
8/26/2013 AC + T (Taxol)
Radiation Therapy
2/11/2014 Breast, Lymph nodes
Surgery
1/15/2017 Reconstruction (Left)
M
meadow
Joined:
Mar 2014
Posts:
1,925
Latest activity:
Jan 25, 2022
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Jul 31, 2017 09:51AM
meadow
wrote:

Dx
8/15/2013, IBC, ER-/PR-, HER2-
Chemotherapy
8/26/2013 AC + T (Taxol)
Radiation Therapy
2/11/2014 Breast, Lymph nodes
Surgery
1/15/2017 Reconstruction (Left)
M
meadow
Joined:
Mar 2014
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1,925
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Jan 25, 2022
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Jul 31, 2017 09:54AM
meadow
wrote:

Dx
8/15/2013, IBC, ER-/PR-, HER2-
Chemotherapy
8/26/2013 AC + T (Taxol)
Radiation Therapy
2/11/2014 Breast, Lymph nodes
Surgery
1/15/2017 Reconstruction (Left)
S
Scwilly
Joined:
Jan 2014
Posts:
443
Latest activity:
Feb 21, 2019
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Jul 31, 2017 01:32PM
Scwilly
wrote:
Meadow - what a beautiful and homely caravan. Enjoy allyour trips in it!
Dx
11/4/2013, IBC, Left, 2cm, Stage IIIB, Grade 2, 0/3 nodes, ER-/PR-, HER2-
Chemotherapy
11/14/2013 AC
Chemotherapy
1/14/2014 Taxol (paclitaxel)
Surgery
4/29/2014
Radiation Therapy
6/24/2014 Whole breast: Breast, Lymph nodes, Chest wall
Dx
2/16/2015, DCIS, Right, 2cm, Stage 0, Grade 2, 0/6 nodes, ER+/PR-, HER2-
Surgery
4/6/2015 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Surgery
3/23/2016 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting
Dx
11/15/2016, Stage IV, metastasized to liver, ER+
Hormonal Therapy
11/15/2016 Arimidex (anastrozole)
Targeted Therapy
2/17/2017 Ibrance (palbociclib)
Chemotherapy
8/31/2017 Xeloda (capecitabine)
Dx
4/5/2018, Stage IV, metastasized to bone, ER+
Surgery
4/5/2018
Radiation Therapy
4/18/2018
Chemotherapy
5/3/2018 Other
Chemotherapy
7/27/2018 Carboplatin (Paraplatin)
Chemotherapy
9/20/2018 Abraxane (albumin-bound or nab-paclitaxel)
Hormonal Therapy
Aromasin (exemestane)
N
noor46
Joined:
Jan 2015
Posts:
58
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May 12, 2022
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Jul 31, 2017 03:03PM
noor46
wrote:
What a beautiful caravan Meadow! The interior is splendid. Reminds me of the caravan we had when I was a child, but ours was not that beautiful though.
Traveltext, very good article on male bc
Only 2 days left to work before holidays. Looking forward to spend them with my children, who are studying in the Netherlands, so I don't see them as often as I would like.
Noor
L'air du paradis est celui qui souffle entre les oreilles d'un cheval. The wind of heaven is that which blows between a horse's ears. Arabian Proverb
Dx
11/19/2014, IBC, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2-
Chemotherapy
12/28/2014 CEF
Chemotherapy
3/23/2015 Taxotere (docetaxel)
Surgery
6/23/2015 Mastectomy; Mastectomy (Right)
Radiation Therapy
8/17/2015 Whole breast: Lymph nodes, Chest wall
Hormonal Therapy
9/22/2015 Femara (letrozole)
T
traveltext
Joined:
Jul 2014
Posts:
2,001
Latest activity:
May 16, 2022
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Jul 31, 2017 06:31PM
traveltext
wrote:
Wow, Meadow, that's a classic 50-years-young van that's been beautifully restored. So much character and love the teal interior. Happy travels.
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
V
Valstim52
Joined:
Dec 2015
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1,314
Latest activity:
Jan 16, 2022
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Aug 2, 2017 01:33PM
Valstim52
wrote:
Wow Meadow. It is stunning. It could be in a holiday magazine!!! Happy travels. So good to hear from you.
TT a wonderful article....
The glass is half full. Do not live life looking in the rear view mirror. Can't go forward that way
Dx
11/24/2015, IDC/IBC, Left, 6cm+, Stage IIIB, Grade 1, 2/19 nodes, ER-/PR-, HER2-
Chemotherapy
1/11/2016 AC + T (Taxol)
Surgery
5/24/2016 Mastectomy: Left, Right
Radiation Therapy
6/21/2016 Whole breast: Breast, Lymph nodes, Chest wall
Surgery
Mastectomy: Left, Right
M
moreshoes
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Nov 2015
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302
Latest activity:
May 5, 2022
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Aug 3, 2017 06:04PM
moreshoes
wrote:
Wow! What a beautiful camper! I love the teal, it's so joyful. Have a great time!
Dx
4/9/2008, IDC, Left, 2/16 nodes, ER-/PR-, HER2-
Dx
6/21/2012, IDC, Right, 0/1 nodes, ER-/PR-, HER2-
Dx
10/30/2015, IBC, Left, ER-/PR-, HER2-
M
minimoocher
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Aug 2016
Posts:
62
Latest activity:
Aug 23, 2018
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Aug 4, 2017 09:27AM
minimoocher
wrote:
As my kids would say OMG Meadow! The camper van is amazing. I was born in '68 so it's pushing fifty like me. You have done a great job on the interior. I love it. Wishing you many happy years of rambling and exploring.
TT, thanks for the link to the articles. You write so well. I think you should write a book.... Bet I am not the first person to say that to you.
On the health front had routine echo cardiogram yesterday, all fine. So next Kadcyla on Tuesday.
Best wishes to all. Enjoy your holidays and short breaks,
Mini x
Dx
2/25/2016, IBC, Right, Stage IIIC, 15/20 nodes, ER-/PR-, HER2+
Chemotherapy
3/8/2016 Taxotere (docetaxel)
Targeted Therapy
3/8/2016 Perjeta (pertuzumab)
Targeted Therapy
3/8/2016 Herceptin (trastuzumab)
Surgery
7/20/2016 Lymph node removal: Right; Mastectomy: Right
Targeted Therapy
8/2/2016 Herceptin (trastuzumab)
Targeted Therapy
8/2/2016 Perjeta (pertuzumab)
Dx
8/30/2016, IBC, Right, Stage IV, metastasized to other, 15/20 nodes, ER-/PR-, HER2+
Targeted Therapy
9/20/2016 Kadcyla (T-DM1, ado-trastuzumab)
Chemotherapy
12/11/2017 Xeloda (capecitabine)
Targeted Therapy
Herceptin (trastuzumab)