Posted on:
Mar 31, 2016 03:23PM
P
Joined:
Mar 2016
Posts:
162
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Jul 2, 2016
Posted on:
Mar 31, 2016 03:23PM
PurpleMinion
wrote:
Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are:
I'll go first: dx June 2015 TN IBC, not NED but hoping to get there.
IBC is such a different diagnosis than so many of the other types of BC I think it is really important for us to talk and share and learn from each other.
I am taking a "board break" mid June 2016, I will be back but mentally exhausted right now. Peace be with all of you. Diagnosed at 46 triple negative IBC. Mets to skin, lungs, bones.
Dx
6/29/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2-
Chemotherapy
7/21/2015 Carboplatin (Paraplatin), Taxol (paclitaxel)
Chemotherapy
10/22/2015 CEF
Dx
1/7/2016, IBC, Right, Stage IV, metastasized to other, Grade 3, ER-/PR-, HER2-
Targeted Therapy
2/4/2016
Dx
5/6/2016, Stage IV, metastasized to bone
Chemotherapy
5/9/2016 Carboplatin (Paraplatin), Gemzar (gemcitabine)
Dx
Stage IV, metastasized to lungs
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T
traveltext
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Jul 2014
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2,009
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Jun 28, 2022
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Aug 20, 2017 10:09PM
traveltext
wrote:
OK, you're in the club IG. All questions welcome.
NED breast and prostate cancer.
Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
Hormonal Therapy
Surgery
Surgery
Surgery
Surgery
V
Valstim52
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Dec 2015
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Jan 16, 2022
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Aug 21, 2017 11:15AM
Valstim52
wrote:
Integragirl. Hate you are here, but welcome, this is the best place. Most TN's don't get what is called a pcr. Don't despair (easier said than done) because treatment is a total process, chemo, surgery if possible and radiation is the mop up of cells that still may be lurking. Most of us have had sucess with this treatment. Yes we are counting months and years, but the important thing is we are still around to count. I'm still a newbie but coming up in November on 2 years. When first dx'd, I didnt think I'd make it to surgery.
The glass is half full. Do not live life looking in the rear view mirror. Can't go forward that way
Dx
11/24/2015, IDC/IBC, Left, 6cm+, Stage IIIB, Grade 1, 2/19 nodes, ER-/PR-, HER2-
Chemotherapy
1/10/2016 AC + T (Taxol)
Surgery
5/23/2016 Mastectomy: Left, Right
Radiation Therapy
6/21/2016 Whole breast: Breast, Lymph nodes, Chest wall
Surgery
Mastectomy: Left, Right
M
meadow
Joined:
Mar 2014
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Latest activity:
Jan 25, 2022
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Aug 23, 2017 05:50PM
meadow
wrote:
Welcome Integragirl! TN IBC can be scary, if you read the stats particularly. So don't to that! The stats quoted are based on older data, and IBC is changing as treatments are better, chemo is more specific, treatments in general are working at giving people their good health back. Like Val said above, treatment is a total process. are you scheduled for surgery and radiation? This one, two, three punch is really necessary for TN IBCers. Do not get discouraged, stay in a fighting, positive frame of mind. Love Heals. You can do this.
TT, you are so funny! You tickle me to no end!
Come on Val, let's go see Kicks!
Scwilly, Noor ,Moreshoes, Mini, Mara, Amarantha, and all who post here, lurk here, Thinking of you all. (((hugs))) to all.
Did everyone see the Eclipse? We had about 96% totality here in Missouri. I know we are a very international group...was the Eclipse visible where you all are? What about you TT?
Dx
8/15/2013, IBC, ER-/PR-, HER2-
Chemotherapy
8/25/2013 AC + T (Taxol)
Radiation Therapy
2/10/2014 Breast, Lymph nodes
Surgery
1/14/2017 Reconstruction (Left)
T
traveltext
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Aug 23, 2017 06:40PM
traveltext
wrote:
Meadow, I see from your stats that you are now four years post diagnosis. Congrats.
I hope you can get persuade Val to go with you to see Kicks.
No eclipse in Australia this year. Think I'll catch the one coming my way in 2030. It's in the diary!

NED breast and prostate cancer.
Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
Hormonal Therapy
Surgery
Surgery
Surgery
Surgery
K
Kicks
Joined:
Aug 2009
Posts:
4,046
Latest activity:
Sep 9, 2020
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Aug 23, 2017 07:11PM
Kicks
wrote:
Hey Traveltext! You need to plan on coming up to the States for April 8, 2024. That's when we will have our next Solar Eclipse. It will go from Texas up to the New England area (NY, Conn., Mass. RI, VT, NH, Maine).
We were 95% here.
Dx
8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2-
Chemotherapy
8/24/2009 AC
Surgery
10/20/2009 Lymph node removal: Right; Mastectomy: Right
Chemotherapy
11/10/2009 Taxol (paclitaxel)
Radiation Therapy
2/3/2010 Breast, Lymph nodes
T
traveltext
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Jun 28, 2022
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Aug 23, 2017 07:19PM
traveltext
wrote:
Thanks Kicks, that's in the diary as well. My partner is from Maine and she's planning to go visit relatives in the coming years.
NED breast and prostate cancer.
Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
Hormonal Therapy
Surgery
Surgery
Surgery
Surgery
B
Beatmon
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Oct 2012
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Dec 20, 2021
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Aug 23, 2017 08:45PM
Beatmon
wrote:
The lady who checks you in for CT at my hospital told me today that her mom had lumpectomy and chemo at 85 years of age with pathology of IBC. The pathologists and surgeons didn't believe it....restested. She is now 92 and still up and about, only complaint is she needs more energy. Her daughter says she reminds her she is 92. It started with a rash and then a big lump appeared before she showed her daughter.
I thought some of you IBC ladies would be interested in her diagnosis with this at such a late stage in her life and how well she has done. No recurrence so far.
Dx
7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+
Surgery
8/8/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right
Surgery
11/30/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Surgery
6/30/2014 Reconstruction (left); Reconstruction (right)
Dx
8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+
Targeted Therapy
8/26/2014 Herceptin (trastuzumab)
Targeted Therapy
8/26/2014 Perjeta (pertuzumab)
Chemotherapy
8/26/2014 Taxotere (docetaxel)
I
IntegraGirl
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Jul 2017
Posts:
144
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Dec 2, 2018
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Aug 23, 2017 09:34PM
IntegraGirl
wrote:
Thanks for the encouragement Meadow. I had a US on my other breast yesterday and apparently it's trying to kill me too :). Anyway, surgery is scheduled for the 31st. I don't know that my frame of mind can be described as positive but I'm not playing in traffic yet so that's a win :).
Eclipse was 80% in Calgary. I had friends in the path of totality post pictures yesterday. That would have been something to see live
Dx
1/20/2017, IBC, Left, 2cm, Stage IIIC, Grade 3, ER-/PR-, HER2-
Chemotherapy
2/27/2017 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
Surgery
8/30/2017 Mastectomy: Left, Right
Chemotherapy
10/1/2017 Xeloda (capecitabine)
Radiation Therapy
11/5/2017 Breast, Lymph nodes, Chest wall
T
traveltext
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Jun 28, 2022
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Aug 23, 2017 09:59PM
traveltext
wrote:
IG, BCO has a good lot of info on IBC HERE. Follow the links to treatment pages as well.
NED breast and prostate cancer.
Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
Chemotherapy
3/6/2014 Other
Chemotherapy
3/6/2014 AC + T (Taxotere)
Chemotherapy
3/10/2014 FAC
Hormonal Therapy
4/16/2014
Surgery
7/1/2014 Lymph node removal (Left); Mastectomy (Left)
Surgery
7/23/2014 Lymph node removal (Left); Mastectomy (Left)
Radiation Therapy
8/8/2014 Whole breast: Left breast, Lymph nodes
Radiation Therapy
8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes
Hormonal Therapy
10/24/2014 Liquid tamoxifen (Soltamox)
Hormonal Therapy
10/30/2014
Hormonal Therapy
11/1/2014
Surgery
5/8/2022
Radiation Therapy
Surgery
Surgery
Surgery
Hormonal Therapy
Surgery
Hormonal Therapy
Surgery
Surgery
Surgery
Surgery
M
meadow
Joined:
Mar 2014
Posts:
1,925
Latest activity:
Jan 25, 2022
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Aug 24, 2017 06:31AM
meadow
wrote:
beatmom, thank you so much for sharing this story! I appreciate hearing of this little lady and her success so much!
Dx
8/15/2013, IBC, ER-/PR-, HER2-
Chemotherapy
8/25/2013 AC + T (Taxol)
Radiation Therapy
2/10/2014 Breast, Lymph nodes
Surgery
1/14/2017 Reconstruction (Left)