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Nov 16, 2017 02:28AM
Hi sbelizabeth,in your question to scans, i have ultra/CT in chest area and bloods,they simple said its my choice if i wish to have them yearly,because of my clear margins after mastectomy,they really felt it is unlikely to return, the head oncologist in IBC said after 4 years of NED the odds are slim to return, it normally progresses after the first 2 years IF it does progress,..
I recall the the morning when i woke to this orange peel, warm hard breast, inverted nipple. i had no idea what to think, i called my family doctor and explained it, thank god he knew of IBC, as many doctors suspect mastitis and bites,and time is vital with this, many IBC people get misdiagnosed and then its stage 4...He booked me to see the oncologist that very evening,i was in a chemo chair that night..he told me are you ready to fight this fight. They told me what would happen, i was given taxotere, herceptin, and the next week Doxorubicin he had the mixture of chemo for best results. and after all the chemo 6 months,i had the mastectomy,
My Onco is my hero,i was so fortunate that he knew IBC as many Doctors dont..
As Kicks said she has been NED for many years, my oncologist would tell her to party,I know all the world has good IBC doctors, i like to claim here in my Town we have one the worlds best Drs in IBC.. We all know nothing is certain, but giving us hope is all we have to go with. Oh Kicks and all you lovely people, how i wish we all could be together in person, i think we could paint the town very red. .ha ha
8/10/2013, IBC, Right, 5cm, Stage IIIB, Grade 3, 0/19 nodes, ER-/PR-, HER2+
8/11/2013 Doxil (liposomal doxorubicin), Taxotere (docetaxel)
2/9/2014 Lymph node removal; Lymph node removal (Right): Underarm/Axillary; Mastectomy; Mastectomy (Right)
3/15/2014 Breast, Lymph nodes