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Nov 12, 2021 04:52PM
Let me just say that I'm glad to see an uptick in activity on this thread. Sometimes IBC is a lonely DX and it really helps to connect with others who understand, so I hope everyone will continue to check in!
Today I was in the radiation waiting area (where we sit in hospital gowns waiting to be called in to the Room of Dread.) There was a loud-mouth woman sharing her cellphone conversation with all of us, though we were unwilling participants. She finally ended the call and began quizzing the rest of us about our cancer and what treatment we've had, obviously ready to play the "my cancer is worse than yours" game. I trumped her with Inflammatory and she audibly gasped... saying "ohmigawd, the BAD kind." Guess I missed the memo on exactly which cancers are the "good kind," but thankfully I was called back to treatment and escaped further interrogation.
My MO told me from the start that IBC is an aggressive cancer, but in his opinion it is treatable and survival stats are improving every day. He also said that with effective treatment our survival stats aren't that much different from other types of BC. So take heart, IBCers!
Mara is indeed an inspiration and she is always so kind and supportive. Thanks again, Mara.
Denise--I hate to hear of your cardiac issues and I hope that can be resolved. My MO has released me and I will see him on the 3-month schedule starting in February. He told me I wouldn't have any additional scans unless I developed a problem, which is kind of scary. Of course I'll still have mammograms on my uniboob but after things settle down I might have that one taken off, too.
Mamacure--I spend hours pouring over all the "notes" from visits, tests, scans, etc. on MyChart from the past 11 months. Weird that during the first months of treatment I was in such a tizzy and had no clue about the things I was going through or the "language of cancer". I was basically on auto-pilot and just showing up at the appointed time. Now I read the entries and realize I'd have been even more terrified if I'd known what they were looking for!! (And thankfully did not find.)
Have a great weekend, everyone!! I just have ONE MORE RADIATION BOOST TO GO!!! WOO HOO!
1/20/2021, IDC/IBC, Right, Stage IIIB, Grade 3, 0/32 nodes, ER-/PR+, HER2-
2/7/2021 AC + T (Taxol)
8/23/2021 Lymph node removal: Right; Mastectomy: Right