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Mar 29, 2018 07:09PM
Mar 29, 2018 07:44PM
Hello everybody. Well, I'm kind of wondering how this is going to go down. Since my first IBC diagnosis in 2013, it returned in end 2016, has now spread to bones and lymph nodes and skin, and has now entirely taken over my remaining breast. The chemo I'm taking is eribulen - Halaven, it is working to reduce the ganglions (lymph nodes), but not stopping the spread and worsening of my right breast. We just had biopsies to determine the exact profile of what is in the right breast but it is clearly still IBC, the lack of clear lump, the thickened skin, the hardened tissue inside the breast - made it almost impossible for them to do the biopsies (I almost wrote autopsy) they had to push the needle thing super hard to get it through the cardboard like tissue. I'm guess I'm wondering where they can possibly go from here. I couldn't get any kind of hypothetical possibilities out of the intern I saw today. Where can we possibly go ? Is there anything left to try ? Ideas ?
Editing to add : here are all the things I have already had :
-After first diagnosis (end 2013):CEF; Taxotere (docetaxel); Carboplatin (Paraplatin), Taxol (paclitaxel), Cisplatin combined with radiation; radiation, mastectomy, tamoxifen.
-Since recurrence (end 2016) Afinitor/Aromasine; Ibrance/Faslodex; Halaven (current)
Editing agin to add: no hypothetical possibilities can be thought of or shared until the results of the biopsies come in, 2 or 3 weeks or longer. (Don't we hate waiting?)
IBC metastasic, ER+. Tx: Gezmar, Decadron. Past txx : Xeloda, Halaven, Cisplatin, Afinitor/Aromasine, Ibrance/Faslodex, Tamoxifen, mastectomy x 2, chemo-radiation with Cisplatin x 2, CEF, Taxotere, Carboplatin, + the kitchen sink