Topic: HELP Mastitis diagnosis-antibiotics not working-28w pregnant

Forum: IBC (Inflammatory Breast Cancer) — Just diagnosed, in treatment, or finished treatment for IBC. Posting pictures of symptoms is prohibited per our Community Rules -- you are encouraged to seek medical advice from your doctor in the event of any concerns.

Posted on: Jan 22, 2017 06:48PM

Posted on: Jan 22, 2017 06:48PM

041517 wrote:

Good evening!

I need a little advice here. About a month ago, I started seeing changes in my left breast. Symptoms include swelling, itchiness, peau d'orange on the lower inner quadrant, partially inverted nipple, thickening of my skin, slight redness and tenderness. I went to my OB right away thinking it could possibly be IBC. He referred me right away to the breast specialist which I have been working with ever since. Well, when I got there, I think she suspected IBC as well. I had a punch biopsy done and an ultrasound. The results of the ultrasound said that the milk ducts were dilated (which I figure is normal since I'm pregnant) so I kind of ruled that inconclusive. The biopsy took 9 days to get back and they sent it for multiple tests. The breast specialist said that the pathologists reviewed it and said they saw some inflammatory cells but nothing that resembled cancer but they were still pretty baffled (I ruled the biopsy inconclusive at this point as well). My doctor concluded that it MUST be mastitis so she prescribed me some clindomyocin as I am allergic to anything that ends in -cillin. After 4 days, there were no improvements. She saw me again, noted that it got a little worse and prescribed me another antibiotic (cepholexin) to try. This is an antibiotic that usually works for me. Well, I'm going on day 4 again and nothing is improving.

Symptoms as of today all remain the same except now I see that it is spreading a little to the right breast.

Can someone suggest something that this could be? Should I push for a 2nd biopsy? I don't want to keep trying antibiotics due to my being pregnant so I am just freaking out a little.

I'm so very confused on what this could be....is there any other causes for peau d'orange out there?

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Jan 22, 2017 08:05PM Kicks wrote:

You might want to see a Dermatologist for the skin issues going on. Especially with the skin issue spreading to other breast also. IBC seldom/if ever presents in both breasts.

'Something' is obviously going on so it does need to be found out what is. No one here can give you a DX - only a Dr who actually see you can do that.

Dx 8/7/2009, IBC, Stage IIIC, 19/19 nodes, ER+/PR-, HER2- Chemotherapy 8/24/2009 AC Surgery 10/20/2009 Lymph node removal: Right; Mastectomy: Right Chemotherapy 11/10/2009 Taxol (paclitaxel) Radiation Therapy 2/3/2010 Breast, Lymph nodes
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Jan 23, 2017 02:29AM amarantha wrote:

Well.... I happen to have IBC in both breasts although when it first presented it was only on the left side. The right side was always a little suspect though. Anyhow it has come back in both. When I first went for biopsies the first time round, the technician told me that if the biopsy were to be negative, that would be inconclusive, and it such were the case, we would go on to an MRI. She believed from just looking at me that it was IBC, and was ready to continue believing that even if the biopsies were negative. Well it turned out that they were not negative, so we did not have to go any further to get a diagnosis on that score. However I would say that at this point if you have all those symptoms and antibiotics do nothing, I would want to have an MRI or something further. Don't let them put you off if the symptoms don't go away.

IBC metastasic, ER+. Tx: Gezmar, Decadron. Past txx : Xeloda, Halaven, Cisplatin, Afinitor/Aromasine, Ibrance/Faslodex, Tamoxifen, mastectomy x 2, chemo-radiation with Cisplatin x 2, CEF, Taxotere, Carboplatin, + the kitchen sink
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Jan 24, 2017 04:58PM 041517 wrote:

update: I talked to my doc and she's suggesting I meet with a surgeon who is familiar with my case. The surgeons going to check it out. She's also giving me a diagnostic mammogram to see if they missed anything which I'm comfortable with since I'm in my 3rd trimester. I'm hoping they keep testing and testing until they find something because something funny is going on. Maybe I'll suggest another biopsy. Fingers crossed!!

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Jan 25, 2017 04:56AM amarantha wrote:

Good. I sure hope you get some answers soon ! Keep us posted !!

IBC metastasic, ER+. Tx: Gezmar, Decadron. Past txx : Xeloda, Halaven, Cisplatin, Afinitor/Aromasine, Ibrance/Faslodex, Tamoxifen, mastectomy x 2, chemo-radiation with Cisplatin x 2, CEF, Taxotere, Carboplatin, + the kitchen sink

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