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Aug 12, 2019 11:03PM
IBC is a type of IDC, but instead of starting in a duct and growing in a mass, IBC starts in the dermal lymphatic system and grows in a sheet/layer, which is why it typically can't be seen on imaging. IDC is the pathological diagnosis and IBC is the clinical diagnosis. But again, you can't have a clinical diagnosis of cancer without a corresponding pathological diagnosis.
If no mass is detected on imaging, a skin punch biopsy can confirm that there are cancer cells present. They typically take several samples to make sure they get cancerous cells if they strongly suspect IBC - I had 3 biopsies done. If there aren't any cancerous cells in the biopsy, they would monitor your symptoms closely because IBC progresses very rapidly, weeks or days. They might put you on antibiotics to see if it's mastitis. If your symptoms continue to rapidly get worse, they would do another biopsy. No doctor will treat you for cancer and your insurance company won't pay for cancer treatment without a pathological diagnosis of cancer.
"i wish there was someone to talk to here about having the imaging say one thing without a biopsy yet and he wrong about it."
Missmom there are numerous threads in the "Not Diagnosed But Worried" thread of women who had BI-RADS 4 and 5 and the suspicious mass was benign. 80% of all biopsies turn out to be benign. There are even more threads of people who suspected that they had IBC, but didn't. You're not understanding that a mammogram can NOT confirm a diagnosis of cancer of any kind, and somehow your radiologist miscommunicated with you by giving you the impression that it could.
But don't take my word for it, ask Djmammo if a mammogram can confirm a diagnosis of cancer. He reads imaging for a living and won't lie to you. Post a copy of your report in his thread and he'll help you understand what it says.
I don't mean to sound harsh if I come across that way, but I hate to see you letting yourself get all worked up when you really don't know one way or the other yet. Please take a deep breath and get a good night's sleep, maybe call them back tomorrow and ask them to review your report with you.
IBC Stage IV de novo - mets throughout skeleton, liver, distant nodes, chest wall, skin, tumor in brachial nerves.Still trying to get it to slow down.
9/8/2017, IBC, Right, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2+ (IHC)
9/26/2017 Taxol (paclitaxel)
2/6/2018 Perjeta (pertuzumab)
2/6/2018 Herceptin (trastuzumab)
11/26/2018 Taxol (paclitaxel)
1/30/2019 Whole-breast: Breast, Lymph nodes, Chest wall
Kadcyla (T-DM1, ado-trastuzumab)