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Topic: 7 years since diagnosis

Forum: IBC (Inflammatory Breast Cancer) —

Just diagnosed, in treatment, or finished treatment for IBC. Posting pictures of symptoms is prohibited per our Community Rules -- you are encouraged to seek medical advice from your doctor in the event of any concerns.

Posted on: Feb 7, 2020 04:06PM

StacieRae wrote:

Hi all,

I haven't been on the site in many years, but today is exactly 7 years since I was given a diagnosis of locally advanced breast cancer that presented with a 5cm tumour deep in my right armpit. Within weeks it had spread to the other side of my body and set up shop under my left armpit too. By the time I started 6 months of neo-adjuvant chemotherapy I had a 3rd tumour in my right breast that grew so fast it broke through the skin and my nipple. I knew I had IDC, hormone-negative and HER-2 positive, but it wasn't until much later in my treatment that I learned the differential diagnosis was inflammatory breast cancer. When I did, I broke down completely. I was certain it was a death sentence. I was 41 years old and my son was 9. He's 16 now and I couldn't be more grateful to be here to see him thrive and become a young man. They threw everything at me (AC chemo, Taxotere, Herceptin, double mastectomy and double axillary dissections, and 6 weeks of daily high-dose tomotherapy radiation.) It was a marathon, but I took it one step at a time and with lots of help from family and friends. On good days, I embraced small joys. When I grew stronger, I made plans and focussed on doing the best with each day. I have other chronic illnesses and had many setbacks, drug reactions and bad days. I have sought all kinds of support, including psychotherapy to process the changes to my body and to my life. Much of what happened was difficult and traumatic and I gave myself permission to feel sad and scared and sometimes angry about the path my life took. I came to this bulletin board for information and to see that other women had been through it and survived. And it helped.

If you're newly diagnosed, or struggling through or after treatment, know that you are not alone. No matter how hard it is, or how dire things seem, hope is always warranted. Be kind to yourself, and know that statistics apply to groups but not to individual cases. Also remember that there is progress made in treatments and therapies all of the time.

I celebrate today, with my family... but also for all of the brave women I am rooting for. My heart is with you.

Stacie (Ottawa)



"LIfe is not about waiting for the storm to pass. It's about learning to dance in the rain." Dx 2/7/2013, IDC, 5cm, ER-/PR-, HER2+ Chemotherapy 3/20/2013 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 7/4/2013 Herceptin (trastuzumab) Surgery 9/17/2013 Lymph node removal: Left, Right, Underarm/Axillary; Mastectomy: Left, Right Radiation Therapy 10/30/2013 Breast, Lymph nodes
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Feb 7, 2020 04:12PM ctmbsikia wrote:

Standing O Stacie!!!! Great news! Raises a glass! Wishing you many more years!!

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Feb 7, 2020 04:26PM AliceBastable wrote:

What a fabulous post! May you have many more multiple lucky sevens ahead of you!

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Feb 8, 2020 12:01AM MinusTwo wrote:

And I'm raising a toast in celeberation too. Great post.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 8, 2020 03:35PM Flo80 wrote:

Fabulous post and giving us a lot of hope.

Dx 6/13/2019, DCIS/IDC, Left, 5cm, Grade 2, ER+/PR+
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Feb 8, 2020 05:09PM LeesaD wrote:

Thank You for sharing!! I wish you continued health for many many more years!!

Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/27/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/17/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/9/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/2/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/17/2017 Prophylactic ovary removal Surgery 1/30/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Feb 9, 2020 03:17PM 2019whatayear wrote:

congrats!! thanks for sharing!!!

IDC 2 cm micromets 1 node 8 more removed. BMX 6/24, A/C then Taxol 7/25, 25 rads 1/6/2020 No reconstruction BRCA2 - BSO 2/19 all clear/ starting AI on 3/1/2020
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Feb 9, 2020 03:24PM fifthyear wrote:

Stacie, your post brings hope to many young and old. Thank you for sharing.

Dx 2007, IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy Breast
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Feb 9, 2020 06:53PM blue22 wrote:

Thank you for posting. Stories like yours give hope to those of us with IBC!

Dx 1/2019, IBC, Left, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2- (FISH) Chemotherapy 2/14/2019 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 7/29/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left Dx 7/30/2019, IDC/IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/14 nodes, ER+/PR+, HER2+ (IHC) Dx 8/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+ Radiation Therapy 10/8/2019 Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine)
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Feb 9, 2020 07:51PM Yogatyme wrote:

Such a great post!! Congrats and thank you so much.

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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May 23, 2020 10:20AM Bravenurse13 wrote:

Just saw this post. SR you are an inspiration!!!

It's Never Easy! Dx 9/25/2016, IBC, Right, 3cm, Stage IV, metastasized to lungs, Grade 3, ER+, HER2+ Chemotherapy 9/30/2016 AC + T (Taxol) Radiation Therapy 4/12/2017 3DCRT: Lymph nodes, Chest wall Hormonal Therapy 1/17/2020 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Aug 6, 2020 02:11AM Missmom79 wrote:

thank you for sharing that is awesome.

Dx 8/15/2019, DCIS/IDC, Right, Stage 0, Grade 3

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