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Dec 25, 2020 06:52PM
My tumor was slow to respond to Taxol. I had 12 weeks of Taxol plus some clinical trial meds during that time, followed by 4 weeks of AC. My MO was concerned about the lack of response and I did have an extra MRI (I had multiple due to the slow response, being in a clinical trial, and the other breast also had irregularities that led to an MRI guided biopsy for that breast)
In the end, the pathology of the tumor showed that although I did not have PCR, the tumor had responded to the chemo. At the time of surgery the tumor was smaller (I had a lump although that is not common for IBC), the skin was still red, but a punch biopsy was clean.
I'm not sure what you mean by "6 of my breasts became red and swollen". Sounds like a typo but I don't know what you were trying to say...
I think my biggest worry prior to surgery was that the skin was clear. They should not operate if there is still cancer in your skin.
Regarding surgery of both breasts - my SO was against a double mastectomy - despite the fact that I had abnormal cells in my right breast for which she wanted to do a lumpectomy. Turned out I actually had DCIS in my other breast. I would have preferred a double mastectomy, but they were more worried about a good outcome from the IBC surgery so that I would be able to continue treatment (radiation) etc.
I'm sure others will post here too, but it is slow because of the holiday.
Feel free to ask more questions. I know this is very stressful.
1/2019, IBC, Left, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2- (FISH)
2/15/2019 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel)
7/30/2019, IDC/IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/14 nodes, ER+/PR+, HER2+ (IHC)
7/30/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left
8/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+