Hi everyone back in July my left breast grew in size overnight. It felt like milk coming in like when you have babies. It never went back down.
I called my family doctor and without even telling me to come in and see him he told be it was hormones.
I went to the walk in clinic because I was worried. The walk-in doctor noticed a rash on my arm he called petechiae (he pronounced it wrong!) and told me to follow up with my family doctor.
So i went and made an appointment with a female doctor knowing my GP wouldn't listen. She referred me for an urgent ultrasound - clear but she didn't seem to believe me about the rash the walk-in doctor was concerned about because I pronounced petechiae wrong.
A month passed and the lymph nodes in my neck began to swell and i got whiplash feelings along my collarbone.
Due to the extreme anxiety i was having i went to the ER. I told them I think i have inflammatory breast cancer. They did a breast exam, arms above my head, hands on hips leaning forward and checked my lymph nodes and said they didn't see any size difference but I knew my body best. They said from the ultrasound they think I don't have inflammatory breast cancer but because of the lymph nodes they told me to see my family doctor the next day. It was a just in case scenario.
It had been about 3 weeks and the lymph nodes didn't go away so i scheduled a wellness check with my family doctor because I wanted him to feel for himself that they were swollen as I was about to get my first COVID shot and I didn't want him to think it was from that.
He completely missed the one on my neck but found the one on the left collarbone swollen. Once again I was sent away and told I'm good to go.
I went to the walk-in again, got a different doctor who sent me for blood tests to check for lymphoma. I went in to see my family doctor to get the results. This time he brought in a medical student who did an exam on my lymph nodes when i told him what was going on. My GP waited outside. The medical student found my lymph nodes were swollen with the exam and my GP came in and did an exam too, he was very frustrated with me and told me that they were all normal. The ultrasound was clear except for a small cyst. The medical student was like 😮
He said the blood tests were all normal. At this point any faith I had in him was shattered. I begged for a biopsy. He said there's nothing to biopsy.
From then on I started asking for only female doctors when I made my appointments. I got one and I told her everything and she checked me over and made me do a breast exam. Hands on hips, above head, it was a proper exam to check for asymmetry! Finally!!
She said yes, she could see that they were different sizes. (The left had grown a tiny bit more by then) She checked my lymph nodes and sat and tried to think of the next step. I told her an MRI would be the next step. She said that's a problem because our city doesn't have an MRI. But I should be relieved because the ultrasound is clear.
After that I made another appointment and then another and another, all with different doctors all with the same results. At this point they began treating me like a mental patient. I showed them the now obvious asymmetry and they ALL laughed it off and said "everyone has a little asymmetry"
Then my breast began to ache/burn. I pinched the nipple and white stuff came out. I made another appointment. This time I made my husband come because nobody would believe me or listen to me. My husband told them that my breast grew and ached and asked the Dr why. His explanation? He said the cyst was filling and popping over and over again. I asked for a biopsy and he told me there's nothing to biopsy.
I made another appointment with my GP and begged him for a diagnostic mammogram to check for asymmetry. The radiologist spotted swollen lymph nodes under my armpit but wasn't concerned with them because they had a fatty exterior. Results - extremely dense but otherwise fine. They guessed it was probably the COVID shot. No asymmetry.
By this time I had a painful, enlarged breast with lymph nodes swollen in my neck, collarbone and under the armpit.
I went in again, this time crying and begging my family doctor to help me. I showed him on moffit cancer centers website that IBC doesn't usually show up on mammogram or ultrasound. He got pissed off at me. Said he went to medical school and people like me shouldn't ever go on the internet. Gave me a prescription for antianxiety meds and antipsychotics and a referral to a psychiatrist. Mentally this made me feel good because I'd rather be crazy than have cancer. Unfortunately this didn't last long.
A few weeks later I noticed a burning sensation in the OTHER breast. It had gotten veiny at the nipple so i don't know.. i pinched the nipple. Sticky yellow stuff came out. I pinched it again. More sticky yellow stuff. I thought finally, they'll believe me!! I went up my family doctor and showed him the left breast with the white stuff and the sticky yellow stuff in the right breast.
He said it's milk and it's old milk. I told him my nipples never did that before. He shrugged. Raised my prescriptions lol. He told me my lymph nodes once swollen would never go down. He said the lymph nodes above the collarbone had nothing to do with the breasts. I think he was trying to ease my anxiety but it just made it worse.
I went to the walk-in again got another doctor and told her everything happening and I'm just crying my eyes out. She left the room, called my family doctor and printed my results out. she came back and told me it's just anxiety and sent me away. No exam nothing.
My right armpit hurts now and I have another appointment tomorrow. With a different doctor. Even my husband is frustrated with me and he's supposed to be on my team.
Please keep me in your thoughts.
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