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All TopicsForum: Living Without Reconstruction After a Mastectomy → Topic: Mastectomy Weight Loss Question

Topic: Mastectomy Weight Loss Question

Forum: Living Without Reconstruction After a Mastectomy — Discuss prostheses, swimsuits, bras, and other options for women not having reconstruction or waiting for reconstruction.

Posted on: Mar 9, 2014 10:12PM

cdelv66 wrote:

  • Hi all.  I'm new here and there are so many posts to scan through, so not sure where to start.  I was diagnosed with DCIS at the end of January and have gone through 2 lumpectomies since.  Yesterday, I received the call from the surgeon that there was more DCIS and a larger amount in the 2nd lumpectomy site than the first one, so she is recommending mastectomy with reconstruction.  I told her I wasn't thinking of doing reconstruction and she started telling me all the pro's for it.  Well, when I have my appt this week to discuss it further, I am going to tell her that I'm not interested.  (Sorry for the rambling).  My strange question is related to weight loss from having a bilateral mastectomy.  I have very large breasts - 36/38 J's.  Does anyone know how much these massive mounds weigh?
"A strong woman knows she has strength enough for the journey, but a woman of strength knows it is in the journey where she will become strong." ~ Unknown Dx 1/24/2014, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 02/11/2014 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 03/04/2014 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 04/03/2014 Mastectomy of one or both breasts: Mastectomy of my left breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side ; Prophylactic (also called preventive) mastectomy of one or both breasts : Prophylactic (also called preventive) mastectomy of my right breast
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Posts 1 - 9 (9 total)

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Mar 10, 2014 01:07AM Monis wrote:

Well, I had 40DDD, and if I remember correctly, my surgeon said the removed breast tissue weighed approximately 2 1/2 lbs. (1 breast).  I would have thought it would have been more than that. 

Monica --- Age 46 @ DX. Oncotype DX : 8 Dx 10/21/2013, IDC, 3cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/08/2013 Mastectomy of one or both breasts: Mastectomy of my left breast; Lymph node removal (also called dissection): Lymph node removal (also called dissection) on my left side ; Reconstruction of my left breast: Tissue expander placement Hormonal Therapy 12/12/2013 Tamoxifen in pill form (brand names: Nolvadex, Apo-Tamox, Tamofen, Tamone, class: selective estrogen receptor modulator (SERM)) Surgery 02/11/2014 Reconstruction of my left breast: Silicone implant Surgery 07/29/2014 Reconstruction of my left breast: Nipple reconstruction
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Mar 10, 2014 01:29AM Ariom wrote:

Hi Cdelv, Sorry you have to be here and that you're facing more surgery. There seem to be a lot of stories here of Surgeons who expect, or just assume, that everyone is going to want to reconstruct.

I have been here, on this board for about 15 months since my surgery. I never considered having reconstruction, my surgeon had no issue with that, pointing out if I ever changed my mind, the door wasn't closed. I have absolutely no regrets and can't ever see me wanting to reconstruct later.

I have noticed a lot more women opting out of reconstruction, some even deconstructing after disappointment in their reconstruction result, or due to infections. 

All I can say to you, is do what feels right for you. It is a big decision, as all things related to this are, but don't be swayed by anyone else and what they think is right for you.   

I can't answer you specifically to the amount your breasts will weigh but as an indication, I had a Unilateral Mx with out recon and my final Pathology report said my breast weighed 975gm. I wear a 38D bra.

I wish you all the best, please let us know how you get on!

Dx Mondors Disease (cording) after Umx and "Dog Ear" removed 14 months post UMx .................. The Dx shuffles you like a deck of cards and then deals you a new hand! Dx 11/2012, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes Surgery 12/18/2012 Mastectomy of one or both breasts: Mastectomy of my right breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side
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Mar 10, 2014 01:41AM cdelv66 wrote:

Thank you Monis & Ariom.  Yes, I would have expected them to weigh a little more than that, but I guess it doesn't really matter.  I'm still at the overwhelming stage, but know that once I finish my research & trust my instincts, then I will be able to move forward with confidence and no regrets.

"A strong woman knows she has strength enough for the journey, but a woman of strength knows it is in the journey where she will become strong." ~ Unknown Dx 1/24/2014, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 02/11/2014 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 03/04/2014 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 04/03/2014 Mastectomy of one or both breasts: Mastectomy of my left breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side ; Prophylactic (also called preventive) mastectomy of one or both breasts : Prophylactic (also called preventive) mastectomy of my right breast
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Mar 10, 2014 03:53AM Momine wrote:

Cdelv, lol, my path report listed the weight, and I know exactly what you mean. It was the first thing I asked my doc, when we decided on BMX. 

Mine were just a modest B and weighed about a pound each.

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 06/20/2011 Ellence (chemical name: epirubicin), Cytoxan (chemical name: cyclophosphamide), Fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil) , Taxotere (chemical name: docetaxel) Surgery 09/13/2011 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast Radiation Therapy 01/09/2012 Surgery 03/08/2012 Prophylactic (also called preventive) removal of the ovaries Hormonal Therapy 04/01/2012 Femara (chemical name: letrozole, class: aromatase inhibitor)
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Mar 10, 2014 07:52PM cdelv66 wrote:

Thank you all for your input.  I have an appt with my BS on Thursday afternoon and the office called me today to schedule my consult with the PS earlier in the same day.  I mentioned I wasn't interested in reconstruction, but they suggest getting all the information first before making a decision.  I spent the day typing all of my questions for both and talking with my loving and supportive DH.  I'll be happy when all the appointments & surgeries are done so I can get back into a routine!!!

So, that's a no for a 15-20 lb weight loss? … Lol :)

"A strong woman knows she has strength enough for the journey, but a woman of strength knows it is in the journey where she will become strong." ~ Unknown Dx 1/24/2014, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 02/11/2014 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 03/04/2014 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 04/03/2014 Mastectomy of one or both breasts: Mastectomy of my left breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side ; Prophylactic (also called preventive) mastectomy of one or both breasts : Prophylactic (also called preventive) mastectomy of my right breast
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Mar 10, 2014 09:21PM mary625 wrote:

Ha, ha.  To get that kind of weight loss, you'd have to give birth!  The most I've ever heard of a breast weighing was 4 pounds each...this info from a bunch of women at a survivors group.

Dx 8/29/2011, ILC, 1cm, Stage IIIC, Grade 2, 10/16 nodes, ER+/PR+, HER2- Chemotherapy 09/26/2011 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol Surgery 02/06/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side Hormonal Therapy 03/12/2012 Femara (chemical name: letrozole, class: aromatase inhibitor) Radiation Therapy 03/13/2012 Surgery 09/24/2014 Reconstruction of my left breast: DIEP flap; Reconstruction of my right breast: DIEP flap
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Mar 10, 2014 09:34PM GeorgiaRai wrote:

So, that's a no for a 15-20 lb weight loss?

Which is SO not fair!  I got silicone implants (for cosmetic reasons) over 20 years ago, and attribute ALL subsequent weight gain to them.  In a perfect world, my BMX should have at least got me back to my pre-implant weight at age 29!

Seriously, best of luck to you, cdelv, and YAY for standing up for your non-recon decision.  It's a shame so many of us feel like we have to justify it to our doctors.  My PS and BS both came around by the time I had my surgery, and hopefully, next time they hear those words from a patient, their jaws won't hit the floor. 

"You're braver than you believe, stronger than you seem, and smarter than you think" ~ Christopher Robin Dx 11/21/2011, ILC, 6cm+, Stage IIIA, Grade 1, 8/8 nodes, ER+/PR+, HER2- Chemotherapy 01/17/2012 Adriamycin (chemical name: doxorubicin), Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel) Surgery 06/28/2012 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast Radiation Therapy 08/10/2012 Hormonal Therapy 11/15/2012
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Mar 29, 2014 04:25AM scribblinhanna wrote:

Mine were just a tad smaller than you and mine weighed a little over 5lbs each..nothing better than taking a nap and when you wake up you are almost 11lbs lighter.  My shoulders and back can not thank me enough.  Actually had to relearn my posture.  Good luck


Chemotherapy 07/01/2013 Daunorubicin (brand names: Cerubidine, DaunoXome), Cytoxan (chemical name: cyclophosphamide) Targeted Therapy 09/03/2013 Herceptin (chemical name: trastuzumab) Surgery 11/19/2013 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Dx IDC, Stage IIA, Grade 3, 1/7 nodes, mets, ER-/PR-, HER2+ Dx ER-, HER2+ Dx 6cm+ Chemotherapy Taxol (chemical name: paclitaxel)
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Mar 29, 2014 02:08PM cdelv66 wrote:

Thanks, Scribb...I was wondering if I would have to change my posture :)  10 lbs would be good!  Surgery is on Thursday :)

"A strong woman knows she has strength enough for the journey, but a woman of strength knows it is in the journey where she will become strong." ~ Unknown Dx 1/24/2014, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 02/11/2014 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 03/04/2014 Lumpectomy in one or both breasts: Lumpectomy in my left breast Surgery 04/03/2014 Mastectomy of one or both breasts: Mastectomy of my left breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side ; Prophylactic (also called preventive) mastectomy of one or both breasts : Prophylactic (also called preventive) mastectomy of my right breast