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May 6, 2018 10:55AM
I'm also concave in my mastectomy area, up to my collarbone and under my arm. I had a mastectomy for DCIS in 2000. It wasn't too bad, just a flat area where my breast used to be and the line of my scar.I didn't have chemo or rads, because it was only DCIS.
Then my BF found a lump under my scar in 2009. On biopsy, it turned out to be some of my original tumor cells, now turned invasive and growing into my chest wall. They did scans on me to detect distant mets, which they did not find. That made me stage III and not stage IV.
They had to take my pectoral muscles, as the tumor had started to invade them. I'm down to the bone where my breast used to be. I call it my upgrade surgery, upgrading me to a full radical mastectomy. The muscle doesn't grow back. It's sometimes hard for me to find a prosthesis that fits well, as not many ladies today need or get surgery this extensive. But we do what we must to get cancer-free.
The surgeon also took out 10 of my axillary nodes, of which three were positive. I had CMF chemo, followed by taxol. It wasn't fun, but it wasn't horrible either. They wanted to give me AC, but I'd already had my lifetime max of adriamycin when I had my bone cancer in my leg as a teen. I also had radiation to my chest wall.
My treatment took about a year. It pushed me into menopause at age 42. The node removal and radiation made my lymphedema worse. But I'm still here, NED. As my BF says to me when he kisses my concave mastectomy scars, or hands me my crutches as I hop out of the shower: "you may not be all there, but you're still here." Usually followed by, "and now, how about ..."
Osteosarcoma in left leg at age 13. DCIS in left breast at 33. IDC recurrence in left chest wall at 42.
12/2000, DCIS, Left, 1cm, Stage 0, 0/3 nodes, ER-/PR-
12/10/2000 Lymph node removal: Sentinel; Mastectomy: Left
12/2009, IDC, Left, 1cm, Stage IIIB, 3/10 nodes
12/17/2009 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary
5/31/2010 Taxol (paclitaxel)
10/31/2010 External: Lymph nodes, Chest wall