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Topic: Weird sensation when drinking hot or cold beverages

Forum: Living Without Reconstruction After a Mastectomy — Discuss prostheses, swimsuits, bras, and other options for women not having reconstruction or waiting for reconstruction.

Posted on: Jan 13, 2012 11:03AM

Cats134 wrote:

Okay, so for the past few days, whenever I drink either a hot beverage or a cold glass of water, I feel it going down the middle of my chest.  (Had my PBMX 12/19).  It feels so weird.  I guess its because the fatty breast tissue isn't there to absorb the heat/chill?  Anyone else? 

Cats

LCIS, ALH: PBM 12/19/11: No recon. 19 R nodes, 9 L nodes, Stage 0
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Jan 13, 2012 11:10AM alex56 wrote:

Yes!  How funny, I was just noticing this recently too.  I had my mastectomy 2 years ago and felt the temperature sensation shortly after the surgery.  It went away for awhile, but I've noticed it again this winter.  Boy, you can feel it go all the way!  I agree that it is probably the lack of "insulation" there.

Dx 12/2009, Stage IV, Grade 2, 20/25 nodes, mets, ER+/PR+, HER2-
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Jan 13, 2012 11:10AM Janeybw wrote:

Yes!!  It lasts for a few weeks and then will go away as you get used to the new you.

Jane. BMX with TEs on 5/24/11. Tamoxifen started 6/27/11. No chemo. Exchange 12/16/11. Dx 4/23/2011, IDC, 2cm, Stage I, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Jan 13, 2012 11:15AM MTnester wrote:

I felt that for about a month after my BMX. It gets better - I rarely notice it now. It was really strange at first though!

Dx 7/27/2011, IDC, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2011
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Jan 13, 2012 11:18AM Momine wrote:

Yes, lol, such a weird feeling. It passes though. Not sure when I adjusted, but I am 4 months out and it has been a while already.

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/20/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/13/2011 Mastectomy: Left, Right Radiation Therapy 1/9/2012 Surgery 3/8/2012 Prophylactic ovary removal Hormonal Therapy 4/1/2012 Femara (letrozole)
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Jan 13, 2012 11:40AM barbe1958 wrote:

I only realize it when someone mentions it. Too funny!

Dx 12/10/2008, IDC: Papillary, Left, 1cm, Stage IB, 2/5 nodes, ER+/PR+, HER2- Surgery 12/15/2008 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Dx 2/4/2016, IDC: Papillary, Left, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/10/2016 Arimidex (anastrozole) Radiation Therapy 2/16/2016 Whole-breast: Lymph nodes, Chest wall
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Jan 13, 2012 03:26PM Sonata wrote:

I've noticed it too! I just figured it was from lack of "insulation". :)

~Cate."For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all." ~(2 Corinthians 4:17) Hormonal Therapy 4/1/2012 Arimidex (anastrozole) Dx 5/2012, IDC, Stage IV, mets, ER+/PR-, HER2- Hormonal Therapy 5/23/2013 Aromasin (exemestane)
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Jan 13, 2012 05:14PM mdg wrote:

I felt like that too, but it eventually went away.  Now I have implants that get cold like icepacks at time....oh well.  At least they are cancer free....

Maria Visit my BC Blog at breastcancerwontdefineme.blogs... Dx 12/13/2010, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/22/2010 Lumpectomy: Right Surgery 1/26/2011 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 3/2/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 5/18/2011 Surgery 6/21/2011 Reconstruction (left); Reconstruction (right) Surgery 12/9/2011 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction
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Jan 13, 2012 05:18PM SharonMH wrote:

Hi, I also feel the cold but it is  down my side. I am almost two years past MX. You do get used to it after awhile.  SharonH

Dx 8/10/2009, ILC, 5cm, Stage IV, metastasized to bone/lungs, 14/15 nodes, ER+/PR+, HER2-
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Jan 13, 2012 05:20PM rubalou wrote:

Me Too! Thought maybe it had to do with my TE's. Guess not.

Dx 7/27/2011, DCIS, <1cm, Stage 0, Grade 2, 0/2 nodes, ER+/PR+
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Jan 13, 2012 05:26PM catbill wrote:

mdg-

I'm with you.  They are so cold, but you're right. Tthey are cancer-free.   I wear more layers now than I used to, and my DH just laughs when an ARIMIDEX hot flash hits.  I peel like an onion.

Oncotype 8, no chemo, no rads, bilat mastectomy, on Arimidex Dx 9/29/2010, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Jan 13, 2012 06:02PM crystalphm wrote:

Oh wow, amazing, me too! When I took those first few sips of water after surgery, I was pretty sure I had a "leak" somewhere, that the water was spilling out on my chest. I had my hsuband and mom looking for leaks while I swallowed...

I still get it, if  I am warm and the drink is very cold...what a funny sensation no one else could understand!

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Jan 16, 2012 08:50PM kmpod wrote:

I'm about 5 months out on my right side and 3 on my left. I'm not having the sensation very much now with hot liquids (or at least I'm not noticing it) but just this week found that ice water still really triggers that "waterfall" feeling. It's not particularly unpleasant, just a bit disconcerting.

Crystalphm - thinking that you'd sprung a leak is just too funny. 

kathy Dx 7/15/2011, IDC, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2-
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Jan 17, 2012 07:18AM Cats134 wrote:

It was bitterly cold here yesterday (NY) and hubby and I stopped at a diner on our way home from errands.  I took a gulp of hot coffee and let out a yelp, grabbed a napkin and frantically wiped my chest...but there was nothing there! LOL  I thought I spilled the coffee right down my blouse!

kmpod: 'waterfall'... great description of the sensation drinking a cold beverage!

Cats

LCIS, ALH: PBM 12/19/11: No recon. 19 R nodes, 9 L nodes, Stage 0
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Jan 17, 2012 07:21AM KrystalRose wrote:

I have the same sensation.  Although it is more when I drink cold beverages.  The sensation has lessened a bit.  I thought it was because of possible swelling still. My bilateral mastectomy was Dec 8.

9/2011, IDC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-. BMX Dec 2011 cancer on right side, prophylactically removed left breast, TE on cancer side removed because of infection 1/25/2012. Final implants 12/2012.
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Jan 17, 2012 08:05AM crystalphm wrote:

Cats, yes, I have felt that too, it is so unique! So you thought you sprung a leak too :-) Or dribbled, it feels like that too.

The word waterfall describes it so well...

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Jan 17, 2012 02:44PM keno41 wrote:

I am 2 years out from bilateral with no reconstruction and still get that feeling every so often, but only with cold beverages. It is indeed very strange!

Dx 7/2/2009, ILC, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 17, 2012 02:49PM Halah wrote:

When I drink something cold, even still (had bmx 8/30/10), I can feel the chill! I just thought it was me.

Dx 7/21/2010, IDC, Right, ER+/PR+, HER2- Surgery 8/29/2010 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right Hormonal Therapy 10/15/2010 Arimidex (anastrozole) Surgery 3/2/2011 Reconstruction (left); Reconstruction (right)
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Jan 20, 2012 02:35AM jan-m wrote:

I still feel the cold "waterfal"l since May 2010.. never noticed hot but will be checking it out tomorrow morning with my cup of coffee

IDC, ILC, DCIS 1.9cm & 3.8cm (larger one didn't show on mammo) Lumpectomy March 17th. Apr, 21st Unilateral Mastectomy + Axillery node dissection Dx 2/23/2010, IDC, Left, 5cm, Stage IIIA, Grade 2, 1/22 nodes, ER+/PR+, HER2-
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Jan 25, 2012 10:53PM OBXK wrote:

Sometimes I yelp!

Karen - DX 2003 IDC - LX, TAC X6 - rads 50.4 grays. DX. 12/10 TN - dbl mx , 5 rounds T/C. 10/12 Stage IV - PET/CT mets to chest and liver. 6 of Carbo/Gemar 12/12 CT lesion at L6 and lung nodule. 4/8 - Progression of liver tumors. Starting Xeloda
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Jul 18, 2021 11:26AM Anita46 wrote:

so I have noticed that when I drink coffee I can feel the heat of it going into my right brest. Any feedback?

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Jul 18, 2021 12:19PM gb2115 wrote:

For awhile after my mastectomy, I could feel hot and cold beverages in my armpit. It went away though.

Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.3 cm ER/PR+, Her2 -. Gr 2. Age 42
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Jul 18, 2021 03:21PM LW422 wrote:

Does this happen with a single mastectomy or just with a double?

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC
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Jul 18, 2021 06:03PM exbrnxgrl wrote:

LW422,

I think it can happen with either and with recon or no recon. I had implant recon and I remember feeling it in my chest when I drank cold beverages. It is considered completely normal so no worries. That sensation did go away at some point but I don’t remember when.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Jul 18, 2021 06:40PM LW422 wrote:

Thanks, exbrnxgrl!

Dx 1/12/2021, IDC, Right, 1cm, Grade 3, ER-/PR+, HER2- Dx 1/20/2021, IBC, Right, Stage IIIC Chemotherapy 2/9/2021 Taxol (paclitaxel) Chemotherapy 5/18/2021 AC

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