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Jun 28, 2012 08:49PM
Sian, you may be having a problem with cording. I had pain the first few days after surgery that was not what I considered "normal post-op" pain, persuaded the BS to refer me to PT despite the NP thinking it was "nothing" and it turned out to be cording. Mine wasn't too bad, responded to a couple months of PT. It is NOT LE, but the way it was explained to me is that it is some scarring of the lymph vessels. It still doesn't make sense to me, and I have a background in physiolgy and pathophysiology, but I will just accept the explanation for now, and am quite glad that problem is resolved. Now if I could get the rest of it to settle down.....
FernMF, I am 9 months post BMX, and still have very sensitive skin and also don't like the feel of any bras, etc. It took about 3 months before anything felt OK, and I used some very soft cotton sleeveless undershirts (like men's, from Jockey") and some very soft man-made fiber t-shirts - I think made of some type of polyester, from EMS - these gave a soft layer beneath regular shirts or sweaters - but that was in the winter, LOL. I still use the t-shirts, they are loose, soft, comfortable. Get multiple opinions if you need to in order to feel comfortable with your MO. I had such bad SEs that my MO ignored, now have permanent (probably) neuropathy, she tried mutliple meds, all of which gave me more SEs, and I no longer trust her. Sad to say that because I believe she is a genuinely nice person and truly cares about her patients, but she screwed up big time with me, and I am probably going to have to find a new MO.... woulda coulda shoulda gotten second opinion before I let her give me chemo that I was opposed to deep in my heart.... will listen to MY heart next time, NOT the MO or my beloved family members and friends. Bottom line: find someone you can trust, and trust your instincts. Do what is right for YOU, not for others!
DH said he would take me to NYC for FlatFest if it would make me feel good.... so I am seriously considering it! Personal shopper??? Hooray!
Linda - "Loving to learn; learning to love." "Gratitude leads to joy. Joy leads to prayer. Prayer leads to gratitude." "Oh, what fresh new hell is this???" - Sheldon Cooper, The Big Bang Theory
7/14/2010, IDC, 3cm, Stage IIIC, Grade 2, 19/23 nodes, ER+/PR-, HER2-
8/2011, IDC, Stage IIIC
9/2012, IDC, Stage IIIC
12/2012, IDC, Stage IV