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All TopicsForum: Living Without Reconstruction After a Mastectomy → Topic: New BCO Page: Going Flat: Choosing No Reconstruction

Topic: New BCO Page: Going Flat: Choosing No Reconstruction

Forum: Living Without Reconstruction After a Mastectomy — Discuss prostheses, swimsuits, bras, and other options for women not having reconstruction or waiting for reconstruction.

Posted on: Feb 28, 2014 03:23PM

Moderators wrote:

You asked for it, and we responded! Check out the new content on the main Breastcancer.org site on Going Flat: Choosing No Reconstruction.

We hope you enjoy!

--The Breastcancer.org Team

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Oct 6, 2017 03:41PM - edited Oct 8, 2017 12:26PM by magiclight

This Post was deleted by magiclight.
Life is available only in the present...the here and the now. Thich Nhat Hanh Surgery 4/26/2015 Mastectomy: Left, Right Dx 4/27/2015, IDC, Both breasts, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+, HER2+ (FISH)
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Oct 6, 2017 05:07PM JuliaJazz wrote:

MagicLight.  That is a bummer. Hope that eventually improves for you. 

Dx 4/11/2017, ILC, Right, 2cm, Stage IIB, Grade 2, 1/11 nodes, ER+/PR+, HER2- Surgery 5/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left Surgery 5/16/2017 Lymph node removal: Right Chemotherapy 6/22/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/22/2017 Arimidex (anastrozole)
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Oct 6, 2017 08:24PM - edited Oct 8, 2017 12:27PM by magiclight

This Post was deleted by magiclight.
Life is available only in the present...the here and the now. Thich Nhat Hanh Surgery 4/26/2015 Mastectomy: Left, Right Dx 4/27/2015, IDC, Both breasts, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+, HER2+ (FISH)
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Oct 6, 2017 08:43PM MamaFelice wrote:

Wren-- which foam prosthetics do you buy and where? I have seen them all over Amazon, but worried to just order. Any recommendations would be greatly appreciated.

Magiclight-- sorry to hear about your syndrome. Did you ever try any nerve meds like Neurotin? That is what I was given to help manage and heal my chest nerve pain.

I'm going to have an arsenal of foobies before I know it!

Dx 5/10/2017, IDC, Right, 2cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR+, HER2- Surgery 5/25/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 9/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left Dx 9/13/2017, IDC, Right, 5cm, Stage IIIB, Grade 3, 10/11 nodes, ER+/PR+, HER2- Hormonal Therapy Radiation Therapy Lymph nodes Chemotherapy 10/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Oct 6, 2017 08:54PM - edited Oct 8, 2017 12:26PM by magiclight

This Post was deleted by magiclight.
Life is available only in the present...the here and the now. Thich Nhat Hanh Surgery 4/26/2015 Mastectomy: Left, Right Dx 4/27/2015, IDC, Both breasts, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+, HER2+ (FISH)
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Oct 7, 2017 03:58PM Erica wrote:

Hi MamaFelice,

I'm sure Wren will weigh in, but I just wanted to mention a couple of foam forms that I like -- The Trulife Tri-Featherweight (unweighted foam form) and the Trulife Tri-Leisure (a slightly-weighted core in a foam form). I also like Amoena's weighted foam form (very lightweight, just enough to keep it from riding up), it's style 132. Other major manufacturers also make foam forms -- Nearly Me, American Breast Care, and others -- but for me, the Trulife and Amoena foam forms work best.

You can check out all my recommendations on my non-profit website, BreastFree.org.


BreastFree.org (breastfree.org); BreastFree Blog (breastfree.blogspot.com); Twitter @BreastFree
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Oct 7, 2017 04:00PM Erica wrote:

Hi MamaFelice,

I'm sure Wren will weigh in, but I just wanted to mention a couple of foam forms that I like -- The Trulife Tri-Featherweight (unweighted foam form) and the Trulife Tri-Leisure (a slightly-weighted core in a foam form). I also like Amoena's weighted foam form (very lightweight, just enough to keep it from riding up), it's style 132. Other major manufacturers also make foam forms -- Nearly Me, American Breast Care, and others -- but for me, the Trulife and Amoena foam forms work best.

You can check out all my recommendations on my non-profit website, BreastFree.org.


BreastFree.org (breastfree.org); BreastFree Blog (breastfree.blogspot.com); Twitter @BreastFree
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Oct 7, 2017 04:38PM Wren44 wrote:

I have the Trulife lightly weighted form. It rode too high for the real one on the other side so I added 2 quarters to the weight. I did not wear it thru airport security. I have a microbead form I made a long time ago. I wore it thru security and use it in my swim suit. They float, but it's in a pocket.

Lumpectomy and re-excision followed by mastectomy of right breast. Five years of anastrasole completed.
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Oct 10, 2017 11:14AM Hogwarts wrote:

Chloesmom,

You look amazing!!! I haven't gotten brave enough to wear any of my solid color tops while going flat, so horrah for you!

Have been finding busily patterned, high-necked tops with short sleeves for summer wear and can't wait for the cooler weather to either be able to wear forms, or wear layers and not be self-conscious. Ah, vanity....

Seems like no matter how soft the fabric, anything touching my skin becomes an irritation, and my surgery was over 2 yrs. ago. But I remind myself that I am now healthy, so this is such a small price to pay. ❤️

Hogwarts


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Oct 10, 2017 09:23PM MamaFelice wrote:

Thank you ladies for the recommendations regarding the different forms. I will order a pair and give them a try.

I definitely find that the heat and humidity that has invaded our area the past several days had me not wanting to wear any of my knitted knockers against my skin -- or I felt all hot and itchy-- so I just wore my cami and a flowy shirt and went about my business. Starting chemo next week and wondering how hot flashes will influence it all. I'm glad cooler temps are on their way.

Dx 5/10/2017, IDC, Right, 2cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR+, HER2- Surgery 5/25/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 9/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left Dx 9/13/2017, IDC, Right, 5cm, Stage IIIB, Grade 3, 10/11 nodes, ER+/PR+, HER2- Hormonal Therapy Radiation Therapy Lymph nodes Chemotherapy 10/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Oct 11, 2017 12:13PM JuliaJazz wrote:

Thank you for those recommendations Erica.  They helped me when I visited our local retailer In the Pink. I will write more whe I get the forms I ordered.

Dx 4/11/2017, ILC, Right, 2cm, Stage IIB, Grade 2, 1/11 nodes, ER+/PR+, HER2- Surgery 5/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left Surgery 5/16/2017 Lymph node removal: Right Chemotherapy 6/22/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/22/2017 Arimidex (anastrozole)
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Oct 11, 2017 04:31PM MamaFelice wrote:

Okay ladies..... I have another line of questioning.... lymphadema sleeves?? Imagine there may be an entire thread dedicated to this, but thought I would get your feedback first. Also looking to see how you all brought exercise back in to your lives after surgery. I thought I would have recovered faster from all this and been back on the exercise bandwagon sooner than I have, and now chemo starts next week.

Thanks ladies! 💗💗💗

Dx 5/10/2017, IDC, Right, 2cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR+, HER2- Surgery 5/25/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 9/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left Dx 9/13/2017, IDC, Right, 5cm, Stage IIIB, Grade 3, 10/11 nodes, ER+/PR+, HER2- Hormonal Therapy Radiation Therapy Lymph nodes Chemotherapy 10/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Oct 11, 2017 06:15PM JuliaJazz wrote:

I just talked to my retail shop In the Pink about this.  They said they may have them in stock to fit me but if not it woud only take a week or so to order.  So I am waiting til early February for my planned March plane flight in case I lose weight between now and then.  I guess I am supposed to get two since I has a bilateral, although lymph nodes were only taken on one side.

Dx 4/11/2017, ILC, Right, 2cm, Stage IIB, Grade 2, 1/11 nodes, ER+/PR+, HER2- Surgery 5/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left Surgery 5/16/2017 Lymph node removal: Right Chemotherapy 6/22/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/22/2017 Arimidex (anastrozole)
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Oct 11, 2017 08:40PM MamaFelice wrote:


JuliaJazz-- It is my understanding that you only need a sleeve for the side that lymph nodes were removed. I too had a BMX, but they only prescribed me a sleeve for side that had ALND. That's the side where the lymphatic system has been broken and the nodes are trying to find new paths....absence of pathways leads to lymphadema. Are you seeing a PT?

Dx 5/10/2017, IDC, Right, 2cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR+, HER2- Surgery 5/25/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 9/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left Dx 9/13/2017, IDC, Right, 5cm, Stage IIIB, Grade 3, 10/11 nodes, ER+/PR+, HER2- Hormonal Therapy Radiation Therapy Lymph nodes Chemotherapy 10/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Oct 11, 2017 10:37PM Wren44 wrote:

I had a UMX with 3 nodes taken. I've never had any symptoms of lymphadema. I haven't had any long flights, but no problem with 3-4 hour ones. I know it can happen at any time, but I'm not doing anything until then.

Lumpectomy and re-excision followed by mastectomy of right breast. Five years of anastrasole completed.
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Oct 11, 2017 10:40PM JuliaJazz wrote:

Thanks, Mama Felice.  I will talk to someone about that.  Makes sense to me.

Julia


Dx 4/11/2017, ILC, Right, 2cm, Stage IIB, Grade 2, 1/11 nodes, ER+/PR+, HER2- Surgery 5/4/2017 Mastectomy: Right; Prophylactic mastectomy: Left Surgery 5/16/2017 Lymph node removal: Right Chemotherapy 6/22/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/22/2017 Arimidex (anastrozole)
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Oct 12, 2017 02:27PM Heidibird wrote:

I went to Germany in March from Oklahoma and luckily had no problems. I feel blessed about that. I also had a UMX with 2 nodes taken out.


~Heidi

Dx 4/19/2016, IDC, Left, Stage IA, Grade 3, 0/2 nodes Surgery 11/9/2016 Mastectomy: Left Surgery Lumpectomy: Left Surgery
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Oct 16, 2017 06:46PM georgia67 wrote:

I had bilateral mastectomy Sept. 1 and wore compression for at least two weeks then off and on when I felt like I needed it.  What feels good under clothes now is close fitting cami's under my shirts.  What looks best to me is button up shirts to somewhat hid the belly and flat chest. 

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Oct 16, 2017 09:49PM Wren44 wrote:

I've been having problems with the elastic on bras irritating my skin. I have a nerve under my shoulder blade that is set off by wearing something tight. It occurred to me that a cami or soft jockey T shirt under the bra might work. If I have the second one off, I'll wear a cami with pockets instead of a bra. Oh heaven!

Lumpectomy and re-excision followed by mastectomy of right breast. Five years of anastrasole completed.

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