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Topic: Is anyone going flat or living flat?

Forum: Living Without Reconstruction After a Mastectomy — Discuss prostheses, swimsuits, bras, and other options for women not having reconstruction or waiting for reconstruction.

Posted on: Feb 3, 2017 05:12AM - edited Feb 16, 2017 12:59PM by pabbie

pabbie wrote:

I had a right breast mastectomy in 2014. I've been living with one breast for three years, wearing a mastectomy bra & prosthetic. My left breast is a size D and hangs low and I get sweaty and rashes during the hot summer months.

I met with a PS but am not a good candidate for breast reconstruction because I've had surgeries on my stomach area, with radiation and chemo on my behind and part of my thighs because of color-rectal surgery 17 years ago.

I don't feel comfortable taking muscle from my back. I'm 59 years old.

I'm deciding on another mastectomy or breast reduction/lift from a D to a B. This might be a weird question but did anyone feel weird with the surgery being close to their heart?

May 2017 Recurrent 1.1 centimeter IDC with multiple foci, treated with surgery & Aromasin. Dx 2/6/2008, IDC, 2cm, Stage II, Grade 2, 2/19 nodes, ER+/PR+, HER2- Dx 1/23/2014, IDC, Stage I, Grade 1, 0/0 nodes, ER+/PR+, HER2- Surgery 1/23/2014 Mastectomy: Right Dx 5/4/2017, IDC, Right, 1cm, 0/0 nodes, ER+/PR-, HER2-
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Sep 17, 2019 12:47PM rljes wrote:

Brightside - You look Great! Thx for posting the photo - gives me motivation to get my tats done

Finished Chemo March 2018, No reconstruction "Going Flat" Dx 6/26/2017, IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+ Dx 8/22/2017, 1/7 nodes, HER2+ Surgery 8/22/2017 Mastectomy: Left, Right Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy
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Sep 27, 2019 06:10PM alto wrote:

Beautiful! I love the tat idea.

Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER. Dx 11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC) Surgery 11/10/2018 Lumpectomy: Right Dx 11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR- Surgery 12/18/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR- Surgery 1/15/2019 Mastectomy: Right
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Sep 30, 2019 07:48AM B-A-P wrote:

I started my own thread but figured here would be a good place to ask. Anyone have general lumpiness after mastectomy and rads ? I have some ropy lumps , some soft ones and some flat ones

Finished rads at end of May and on an AI. First time giving myself and exam and felt lots of things lol

Wasn’t sure what to expect ! :)

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/18/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal
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Oct 1, 2019 02:01PM MamaOz wrote:

did you have lymph nodes removed. I had cording which feels like a tight rope down my arm but I goto a lymphedema phys therapist and she worked them out after my surgery. Now 2 yrs later I have scar tisdie causing blockages but the PT is very helpful

Also have the dog ear thing going with extra skin. And my ribs take turns with zingers.

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Surgery 5/19/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Oct 1, 2019 05:44PM Yogatyme wrote:

I had bmx on 8/13/19 and have just gone flat for the past few days. I’m pretty sure I’m going to love this.....started hating bras w the very first wearing at puberty.

Yogatyme Surgery 3/3/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
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Oct 2, 2019 05:50AM B-A-P wrote:

Hi MamaOZ

I did have cording after my surgery. It was actually pretty bad, but PT worked it out in a couple of sessions. My arm is perfect. My chest has tightness which I am stretching . The lumpiness is near the beginning of my scar closest to my sternum. Super movable, just super lumpy. I just had a clear CT so I figure if there was something sinister , it would have been seen, but ya know the thought it always there . Hard to accept the good news. lol . Not sure what scar tissue or fibrosis feels like

Dx 8/17/2018, IDC, Left, Stage IV, metastasized to liver, ER+/PR+, HER2- (FISH) Chemotherapy 9/18/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Surgery 2/26/2019 Mastectomy: Left, Right Radiation Therapy 4/29/2019 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal
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Oct 2, 2019 05:43PM Pommom1809 wrote:

my radiation ended August 1 of this year. My left side & neck were radiated, no problems with the skin. Now I’m starting to have pain in my upper left back & in the back of my neck. It was severe last night, I even popped a couple souped up Tylenol. That seemed to work, but it’s mid evening & the pain is coming back. Can this be from my radiation treatments

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Oct 13, 2019 04:07AM MamaOz wrote:

pommmomm

Not sure. 2 years after my rads. I still get twinges of pain in ribs in various spots. And very tender almost burning feeling between my shoulder blades in my back

Like yesterday at work I was sitting on floor for half an hour sorting thru paper work. Just mild stretching to different spots while sorting piles. Then had to carry some things. My back by end of day was on fire

Im assuming its partially from severed muscle, nerves from bmx plus rads. But who knows

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Surgery 5/19/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Oct 13, 2019 04:08AM MamaOz wrote:

Bap

Glad your CT went well

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Surgery 5/19/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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May 17, 2020 02:44PM Sunocean wrote:

question for you ladies. For those of you who had radiation is the radiated side more swollen?

I am flat opted for no reconstruction. had radiation a year ago. Been noticing my radiated side is swollen. Always has been but feels more sensitive. Assuming this is normal. Just wanted to know if this is common.

Dx 9/5/2018, DCIS/IDC, Right, 4cm, Grade 3, ER-/PR-, HER2+ (IHC) Chemotherapy 9/17/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 9/17/2018 Perjeta (pertuzumab) Targeted Therapy 9/17/2018 Herceptin (trastuzumab) Surgery 2/14/2019 Lymph node removal: Right, Underarm/Axillary Surgery 2/15/2019 Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 4/3/2019 Whole-breast: Lymph nodes, Chest wall
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May 17, 2020 07:46PM coraleliz wrote:

Sunocean-I had both sides radiated d/t bilateral CA. I had some problems with swelling on the left side. I had pretty much identical surgery on both sides. It took a long time for the swelling to go away completely.


Dx 2/28/2011, IDC, Right, 1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Dx 3/15/2011, IDC, Left, 1cm, Stage IIA, Grade 1, 2/4 nodes, ER+/PR+, HER2- Surgery 4/15/2011 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right
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May 19, 2020 08:56AM Sunocean wrote:

thanks for responding. It is appreciated!

Dx 9/5/2018, DCIS/IDC, Right, 4cm, Grade 3, ER-/PR-, HER2+ (IHC) Chemotherapy 9/17/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 9/17/2018 Perjeta (pertuzumab) Targeted Therapy 9/17/2018 Herceptin (trastuzumab) Surgery 2/14/2019 Lymph node removal: Right, Underarm/Axillary Surgery 2/15/2019 Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 4/3/2019 Whole-breast: Lymph nodes, Chest wall
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May 25, 2020 03:56PM MamaOz wrote:

It mat be lymphatic fluid. Did you have any nodes removed

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Surgery 5/19/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Jun 15, 2020 08:58PM - edited Jun 15, 2020 09:00PM by KARW41

I'm going flat with a bilateral mastectomy. I don't have money or time for reconstruction, such as to maintain implants, or take extra time to recover from reconstruction. I know it will likely be a traumatic adjustment, but I have honestly felt like not having breasts for a while after watching my mother suffer through breast cancer three times, (her quality of life was in the toilet for 25 years, absolute misery) and getting called back over and over myself for repeat/diagnostic mammograms, missing work, anxiety, and for a total of four biopsies in the 10 years I've gotten mammograms, finally getting extensive 9 cm DCIS in my small right breast. In any case, I am now mostly concerned from seeing all the women who went flat who have large "dog ears" and lumps, so I'm trying to steel myself for that. I will have to get therapy to help me feel better if I don't like what it looks like I guess. I got some Athleta "Empower" bras and easy to put on post-mastectomy camisoles, and a bunch of zip up sweat shirts to just wear while recovering. My main concern is being able to still be active and one surgeon told me I would not want to get just the right breast off because if I run and/or hike, it would cause balance issues. Also, it takes longer to recovery from reconstruction and the implants require maintenance and later surgeries it seems, and I'm not interested in that just for aesthetics. In any case, I don't look forward to having what I'm guessing will be like two concavities, or ice cream scoops out of my chest (did not have much there anyway) but I feel a whole lot better if I don't have to go through what my mother did, so that's also partly why I'm doing it. I never liked wearing low cut clothing and had nothing much to show off anyhow, and rarely have time to just sit by a pool or at the beach (have lived two places, directly next to the pool) due to working two jobs or long hours and also attending grad school and being outside hiking around. Divorced, no husband, no boyfriend, not planning to date (no time), just turned 50, (diagnosed at age 49), and just a few close friends, and I don't have to please or displease anyone but myself.

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Jun 16, 2020 07:08AM helenlouise wrote:

kawri41, if you can get a plastic surgeon to clean up Directly after the surgeon removes the breast tissue you should get a much better outcome and avoid dog ears and lumps. I live in a rural area and would have had to travel to get breast surgeon plus plastic surgeon and chose not to do that. Just thought. You will get used to your new look regardless. good luck to you

Dx 1/2013, DCIS, Left, <1cm, Stage 0, Grade 3, ER+/PR+ Surgery 2/3/2013 Lumpectomy: Left Surgery 2/10/2013 Lumpectomy: Left Radiation Therapy 3/1/2013 Whole-breast: Breast Dx 2/2018, IDC, Left, 2cm, Stage IIIB, Grade 3, 1/8 nodes, ER-/PR-, HER2- Chemotherapy 2/25/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/23/2018 Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 8/27/2018 Chemotherapy 8/28/2018 Xeloda (capecitabine) Dx 4/2/2019, IDC, Left, 2cm, Stage IIIC, Grade 3, 1/8 nodes, ER-/PR-, HER2- Dx 4/16/2019, IDC, Left, 2cm, Stage IV, metastasized to other, Grade 3, 1/8 nodes, ER-/PR-, HER2- (DUAL) Dx 3/2020, IDC, Left, Stage IV, metastasized to other, ER-/PR-, HER2+ (DUAL) Chemotherapy 3/18/2020 Taxol (paclitaxel) Targeted Therapy 3/19/2020 Perjeta (pertuzumab) Targeted Therapy 3/19/2020 Herceptin (trastuzumab)
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Jun 16, 2020 11:03AM - edited Jun 16, 2020 11:05AM by romashka

kawri41, you've got good reasons for the choices you're making. I'm flat and pleased with being so. It was a comfortable choice for me to make. I think when the concern about dog ears and such comes up, body type/shape, weight, and breast surgeon must be factored in. I'm smaller on top so it worked okay. Very importantly though, my breast surgeon took care to make it as clean a closing as possible.

Wishing you peace & wellness.

PALB2 Dx 8/22/2017, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 10/10/2017 Mastectomy: Left, Right
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Jun 24, 2020 12:53PM bennybear wrote:

My breast surgeon did a great job, no extra bumps. I did a single, without reconstruction and even though I am large busted have no problems with balance with a well chosen prosthesis. So do what is best for you, best of luck.

Dx 3/25/2010, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 6/6/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Jun 24, 2020 02:17PM - edited Jun 24, 2020 02:20PM by LillyIsHere

I do regret for having breast reconstruction. It took longer to recover from BMX and I had another surgery to remove TS and put silicone. Two times in strong antibiotics for infections. I only had antibiotics 4-5 times in my life but now with breast reconstruction it has become part of maintenance. I can't exercise like before and I always have this fear that something is lurking underneath the silicones.

Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/30/2019 Femara (letrozole)

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