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All TopicsForum: Living Without Reconstruction After a Mastectomy → Topic: How long after surgery did you get PT

Topic: How long after surgery did you get PT

Forum: Living Without Reconstruction After a Mastectomy — Discuss prostheses, swimsuits, bras, and other options for women not having reconstruction or waiting for reconstruction.

Posted on: Sep 12, 2017 01:56PM

georgia67 wrote:

I had bilateral mastectomy on Sept 1st.  I have done OK with incisions but under my arms and in the middle of my chest are crazy feeling.  Tightness across chest at times.  Feels like a roll under my right arm (non cancer side) that I can really feel when I lay my arm flat on my side or feel under my arm with my hand.  The left side that had the cancer has some nerve damage that makes the underside of my arm feel crazy and it also feels like a roll under it but I think that is the nerves.  I am still wearing the compression tube that they put on after surgery and I still have 2 drains.  They are supposed to come out Thursday.  Is it too soon to worry about scare tissue and will the swelling under my arm go away? It feels like the swelling is about 4" long from the middle of my arm pit to the front of my arm.  

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Sep 12, 2017 09:02PM Falconer wrote:

It is a good idea to ask your PS for a recommendation for PT especially if they know someone who works with BC patients. It's too soon since you still have drains in, but a four weeks (I think) after drains came out I started PT. Good luck and know that it really takes time for the body to heal. It's good you're thinking of physical therapy. It will help with restoring range of motion.
Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots Nov. 2016-December 2017 Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2017 Reconstruction (left): DIEP flap Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 13, 2017 09:27AM jinmo wrote:

I started PT at about 5 weeks I think, and went for about 24 sessions, don't remember exactly. Hugely helpful...it was range of motion and strength PT, with some massage. You are very early yet. Did your doctor give you home stretching exercises? Mine had me start those the day after surgery.

Nerve weirdness and swelling will generally decrease after a while, I have hardly any left at 8 months and haven't for a while. Chest tightness/iron bra also will get better (but don't be too surprised if it gets more noticeable first when your chest completely "wakes up" again).

Best of luck to you!

Dx 11/28/2016, DCIS, Left, 1cm, Stage 0, Grade 2, 0/5 nodes Surgery 1/16/2017 Mastectomy: Left; Prophylactic mastectomy: Right
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Sep 14, 2017 08:59AM Castigame wrote:

I am only speaking from my experience. I started slooow stretching at home as soon as possible. Real PT w LE therapist started right after chemo started.

I would like to add that change reasons for PT referral requests. My first referral was for LE and second was for arthritis. This way I was able to twice max allowed by my health insurance company.


Mimi Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Surgery 2/15/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy Chemotherapy 3/21/2017 Radiation Therapy 7/31/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/30/2017
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Sep 14, 2017 11:24AM exercise_guru wrote:

I have to say this is where my PT and my PS both dropped the ball. I went to Chemo 6 weeks later and while I attended the cancer center yoga. I didn't even get a sheet with exercises. When I had my reconstruction I was post Chemo and still no exercise sheets or PT referral. Finally after I had pretty significant ROM problems I went to PT ut what helped the most was walking in water and laying on my back and doing water exercises for ROM. I wish I would have gotten in the pool the minute I was cleared from surgery. Ofcourse I am not sure I would have had good access to a pool during Chemo.

Age 42 05/15/2015 PALB2 mutation, DBL Breast Cancer Type 1A Grade 3 ER+PR+(right 1.3cm,.5cm) HERr+(left1.6 cm), 06/26/2015 BMX with TE 8/27/15 Chemotherapy TCH 12/30/2015 TAH/BSO/Reconstruction 1/29/16 Arimidex 3/1/16 Femara 5/6/16 Tamoxifen

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