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All TopicsForum: Living Without Reconstruction After a Mastectomy → Topic: comfortable prothesis suggestions

Topic: comfortable prothesis suggestions

Forum: Living Without Reconstruction After a Mastectomy — Discuss prostheses, swimsuits, bras, and other options for women not having reconstruction or waiting for reconstruction.

Posted on: Dec 31, 2017 08:08AM

mudd wrote:

I jut got my silicone breast forms and was wondering if anyone has a recommendation for a reasonably priced foam or light weight breast form for travelling and for the hot summer weather. The pair I got are sort of heavy and I want a few extra pairs to leave in my bras. This is all new to me and I have a feeling I'm going to spend most of my time in a tank under my sweater. Thanks for any recommendations.

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Feb 2, 2018 06:47PM Crazy-cat-lady wrote:

There is a charity called knitted knockers based in Washington state that makes knitted and crocheted prosthetics for cancer survivors. Volunteers make them in whatever size you need. They are stuffed with polyfill and left open at the back so you can add marbles or whatever wieght is comfortable for you.

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Feb 2, 2018 07:05PM Crazy-cat-lady wrote:

One thing I forgot to mention if you sew or know anyone that sews Ive found that I like the playtex 18 hour true suport bras better than the mastectomy bras. I use fleece and add the pockets myself. I've found fleece gives me more insulation from the silicone if I'm wearing that. Also true support bras have a widder side pannel which suport s the form better and takes presure off the lymph nodes if youve had any removed.

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Feb 2, 2018 07:41PM Snickersmom wrote:

I got a bunch of knitted knockers from our local office of the American Cancer Society. They are free to any survivor who needs/wants them.

Dx 3/22/2017, ILC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 5/3/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 6/12/2017 Arimidex (anastrozole)
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Feb 3, 2018 01:05AM Momine wrote:

I have a couple of summer dresses that fit snugly around the chest. In those I sew in a sturdy bra-shield. It is enough to create a small bump and means no bra or equipment. It may not work for larger people, but I am kind of scrawny, so it looks fine. I do the same in swimsuits.

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/19/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/12/2011 Mastectomy: Left, Right Radiation Therapy 1/8/2012 Surgery 3/7/2012 Prophylactic ovary removal Hormonal Therapy 3/31/2012 Femara (letrozole)
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Feb 3, 2018 07:18AM KayaRose wrote:

After lots of trying, I now wear Coobie bras with micro-bead prosthesis exclusively. Most comfortable, non-irritating and lightweight combination I've found. Also a plus - since I switched to the micro-bead forms, have never once been patted down by TSA at the airports. Used to happen every single time with the silicone forms.

Dx 9/4/2014, ILC, Left, 5cm, Stage IIIA, 1/14 nodes, ER+/PR+, HER2- Chemotherapy 9/24/2014 AC + T (Taxol) Surgery 3/2/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Radiation Therapy 3/31/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/2/2015 Arimidex (anastrozole) Surgery 7/17/2017 Prophylactic mastectomy: Right
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Feb 3, 2018 08:30AM mudd wrote:

Thanks for all your answers . When it comes to flying, do you have to tell them in advance that you have prothesis and a wig? Do you have to take the wigs off? Also, what happens to the the "good" silicone ones when you fly. Are you better off packing them or wearing them. I'm counting the days until treatment is over and I can travel to a warmer place.

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Feb 3, 2018 12:46PM KayaRose wrote:

The wig is never a problem. The silicone is a problem because it's a gel. I've had my carry on bag checked many times because of the silicone gel. If you put it in a checked bag it's no problem at all. I've been patted down wearing the silicone gel but never the micro-bead. You don't tell them ahead of time that you're wearing prosthesis but do mention it if you get pulled aside for a pat down. I will say I have had very kind TSA agents who always apologize for having to conduct the pat down.

Really nothing to worry about. Here's hoping you enjoy your trip very soon.


Dx 9/4/2014, ILC, Left, 5cm, Stage IIIA, 1/14 nodes, ER+/PR+, HER2- Chemotherapy 9/24/2014 AC + T (Taxol) Surgery 3/2/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Radiation Therapy 3/31/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/2/2015 Arimidex (anastrozole) Surgery 7/17/2017 Prophylactic mastectomy: Right
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Mar 17, 2018 07:48AM Hogwarts wrote:

Hi Momine,

What's a bra shield? I just need a little curve in my profile and can sew, so wonder what this is and how you make it work.

Thanks!

Hogwarts

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Mar 17, 2018 10:38AM Melrosemelrose wrote:

You might try heading to the notions department of a fabric store/ Hobby Lobby to find breast enhancers. JoAnn's sells June Tailor Breast Enhancers made of silicon which can be placed in pocket bras, pocket sports bras, swimwear, etc. Here is the link so you can check it out: https://www.joann.com/search?q=june+Tailor+breast+.... JoAnn's also has bra inserts which can also be used. Here is the link : https://www.joann.com/search?q=bra+pads.

I purchased at Hobby Lobby a fabric covered foam "bust enhancers". I made a slit in the back of the enhancer and inserted one of those silicon breast enhancers. I use this in my pocketed sports bras.

Hope you find something that works for you!!!

Chemo 4/24/2012Taxotere/Cytoxan X 6 & Herceptin B-47 clinical trial:4/24.5/15.6/5/,6/26,7/17.8/7. DX 2/17/2012 Encapsulated DCIS 4cm/IDC 2cm, ER+/PR-/HER2- (+1), Stage IIb, Grade 3,0/5 Nodes Surgery 2/14/2012 Lumpectomy: Left Surgery 3/13/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left Targeted Therapy 4/23/2012 Herceptin (trastuzumab) Chemotherapy 4/23/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/5/2012
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Mar 17, 2018 02:34PM bluepearl wrote:

Knitted Knockers...online for donation too.

Dx 1/6/2011, IDC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/12/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 2/2013, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/10/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Hormonal Therapy 3/18/2013
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Mar 17, 2018 02:36PM bluepearl wrote:

I also buy padded bras that have a hole in them so you can take out the padding. You can get really cute ones at Walmart and the knitted knockers work very well. Some of the bras do not have a separation so I sew one in, as if not, you knockers end up under your chin and all in the middle.

Dx 1/6/2011, IDC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/12/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 2/2013, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/10/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Hormonal Therapy 3/18/2013
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Mar 19, 2018 03:10AM Momine wrote:

Hogwarts, those triangular, shaped shields in many bras. The ones I have came from coobie bras. If they are sturdy enough, they can be enough by themselves, but I usually back them with a silicone bra filler, but a small knitted knocker would probably work too. I have a pair of silicone pads that are fairly rigid. The shield plus the silicone liner together make a small A-cup.

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/19/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/12/2011 Mastectomy: Left, Right Radiation Therapy 1/8/2012 Surgery 3/7/2012 Prophylactic ovary removal Hormonal Therapy 3/31/2012 Femara (letrozole)
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Mar 19, 2018 10:46AM - edited Mar 19, 2018 10:47AM by Erica

You might want to check out my non-profit website, BreastFree.org, where I have suggestions for Non-Silicone Breast Forms that women have recommended. My personal favorite is the Trulife Tri-Featherweight form, which is an unweighted foam form. Trulife also makes a lightly weighed Tri-Leisure form. I've had a bilateral mastectomy and wear the forms in a Still You Hope Tank (really a classic camisole), which has a very soft feel against my chest. They call the Hope camisole a "post-surgery" top, but I had my surgery in 2006 and I'm still wearing these camisoles! They're rather pricey, but I still have and wear the two original camisoles I bought all those years ago (and I've bought some newer ones since). They're incredibly durable. I wash them in the machine but then dry them flat.


BreastFree.org (breastfree.org); BreastFree Blog (breastfree.blogspot.com); Twitter @BreastFree
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Jun 9, 2018 01:22PM Hogwarts wrote:

Hi all,

Do those of you that wear them have any recommendations on micro bead forms? I see the ones in the TLC catalog, but think I've seen some via ABC's line. No clue on other lines.

For summer weather, I need something that breathes. Seems like anything next to my chest wall holds the heat/moisture and any fabric then irritates over time.

Thanks! Hogwarts (Judy)

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Jun 10, 2018 03:16AM Momine wrote:

Hogwarts, I wear bralettes with pockets in summer. I put 2, rather than 1, "modesty pads" in the pockets, no actual prosthetics. It is just enough to give a small bump, but is comfortable even when it is hot. I am sort of skinny and had small boobs to start with. I realize it might not work well for a bigger person.

I do have a set of microbead forms, but I ordered them too big, so never wear them anymore. They are less cumbersome than silicone, but do get hot.

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/19/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/12/2011 Mastectomy: Left, Right Radiation Therapy 1/8/2012 Surgery 3/7/2012 Prophylactic ovary removal Hormonal Therapy 3/31/2012 Femara (letrozole)
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Jun 10, 2018 07:46AM Hogwarts wrote:

Momine,

Thanks for the idea. Question: don't those modest pads/cookies flatten out with any pressure of the bra on them, let alone clothes?

I've used the foam with poof forms in the past and the edges were very irritating. I got some foam forms from TLC yesterday but even the size 2 was too large. Thinking of returning them for a size 1 while I wait to hear back from my fitter for an appointment. I like the idea of a flat surface against my chest wall as the nerves are beginning to heal, possibly a mixed blessing.

Thanks for your thoughts, Hogwarts (Judy)

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Jun 11, 2018 11:26AM Hogwarts wrote:

Hello all,

My fitter just told me about a new form that she is ordering for me as she knows how much the heat affects my chest with just about anything sitting next to it. Fingers crossed, y'all!

http://jillianna.com

Cheers, Hogwarts (Judy)

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Jun 12, 2018 10:49AM Momine wrote:

Hogwart, no, they don't, to my surprise. You need the sturdy, full-cup kind and you need minimum 2, but it works fine for me.

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/19/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/12/2011 Mastectomy: Left, Right Radiation Therapy 1/8/2012 Surgery 3/7/2012 Prophylactic ovary removal Hormonal Therapy 3/31/2012 Femara (letrozole)
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Jun 18, 2018 10:44AM - edited Jun 18, 2018 10:46AM by Laural

I have used forms from Swim Outlet for quite some time now, one set for in the water and another with my tanks from Luisa Luisa tank. The forms are lightweight fiber fill and around $64 for a pair, so much less expensive than some options. I throw mine in the wash after swimming and then air dry them. Swim Outlet also has a very comprehensive collection of mastectomy swimsuits. I wear forms just with swimsuits and dressier clothes, preferring flat for everyday as forms tend to aggravate swelling for me.

Dx 9/18/11; Stage 1 IDC on left, 1.2 cm. Grade 2, 0/2 nodes positive; Stage 1 ILC on right, 1 cm. Grade 2, 0/13 nodes positive; Acute leukemia as young adult and secondary MDS ever since. Through it all, God is faithful.

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