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Topic: Really anxious about swimming

Forum: Living Without Reconstruction After a Mastectomy — Discuss prostheses, swimsuits, bras, and other options for women not having reconstruction or waiting for reconstruction.

Posted on: Oct 25, 2018 09:48PM

wannabeflat wrote:

I found out I was BRCA+ after my 29-y.o. daughter was diagnosed with TNBC in 2017. I'm planning a mastectomy in December and really, really don't want reconstruction. I need to be present for my daughter and just can't imagine adding any more medical appointments or surgeries to our lives (my other daughter and both sisters all tested positive so there's a lot of surgery coming). I'm very active, 54 years old, incredibly squeamish. I am afraid that I'll be disgusted by my own scars. More than anything, though, I am anxious about swimming at a local pool where I've been swimming twice a week for 10 years. The showers and changing area are completely open. I've never seen anyone shower there without breasts. Even if I shower at home, I have to take off my swimsuit in the locker room and put on something dry to drive home, especially in winter. I'm a really private person and don't want questions or stares. Has anyone encountered this and if so, how did you resolve it? Also, is swimming for an hour comfortable after mastectomy without recon?

Surgery 5/9/2018 Prophylactic ovary removal Surgery 12/28/2018 Prophylactic mastectomy: Left, Right
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Oct 25, 2018 10:40PM Moderators wrote:

Hi there, Wannabeflat. We want to welcome you to our community here at BCO, we hope you find this to be a supportive place.

It sounds like you have very good reasons for wanting to go flat! It's a very personal decision, and one that each person will consider differently. It may take some time to get used to your body following your surgery, and everyone will handle these types of scenarios differently. But it's so important to do things as you feel comfortable. It's absolutely normal to not want to deal with stares or questions. Would you feel comfortable talking to some of the other ladies at the pool about your upcoming surgery and letting them know what will be happening? It may help everyone respect your wishes following your surgery, and allow them to be supportive rather than intrusive. Regarding swimming after your mastectomy, there's no reason why it should cause you any sort of discomfort once you've fully healed. In fact, swimming is a great form of physical therapy, and can allow you to work the muscles in your chest and arms in a less strenuous way!

We hope your upcoming surgery goes well, and we're sure other members of our community who've decided to live flat will chime in with their suggestions on handling the privacy issue.

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Oct 26, 2018 09:46AM gb2115 wrote:

Is it typical for a place like that to have no private area to shower or change? I've never seen a gym like that before.

Is there somewhere else you could swim? The Y I used to go to had everything completely private. There was an open locker room, but also had changing areas behind curtains, as well as handicap accessible private shower areas. Like a big bathroom stall, but with a shower and everything inside.

I don't think I'd want to shower out in the open even without surgical scars....that would freak me out.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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Oct 26, 2018 12:50PM Aussie-Cat wrote:

Wannabeflat, I agree with gb2115 that I hope you can find somewhere more private to shower and get changed. Or would it be possible to face the wall when you get changed? I wonder if it would be possible to talk to management at the pool and ask that they provide somewhere private to get changed for people such as yourself who will feel uncomfortable without privacy. They should provide that and I would feel uncomfortable too, both before my surgery and currently. I've never seen pool changing rooms that are that open here in Australia.

Diagnosed with nerve pain (post mastectomy pain syndrome) July 2018 Surgery 6/18/2018 Prophylactic mastectomy: Left, Right
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Oct 26, 2018 04:42PM pingpong1953 wrote:

I hope to get back to swimming in the near future, and I plan on changing in one of the restroom stalls. Depending on the time of day there can be a lot of young girls in the locker room and I don't think my scar is something they should see.


Dx 4/12/2017, DCIS/IDC, Right, 1cm, Stage IIA, Grade 3, 1/2 nodes, ER+/PR+, HER2- Surgery 5/2/2017 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 7/5/2017 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 12/8/2017 Femara (letrozole) Surgery 2/27/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Right
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Oct 26, 2018 07:32PM ksusan wrote:

I sometimes swim at a heated therapy pool. My scars are minor compared to some people's surgeries, and mostly people are respectful of each other's experiences.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Oct 26, 2018 08:34PM wallan wrote:

I hear ya! I was half flat for 13 years and stopped swimming.

Even with a prosthesis in my swimming suit, it looked unnatural when wet.

I was very self-conscious.

I agree with the other ladies. You need a more private place to change. It will help.

wallan


Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 26, 2018 10:00PM wannabeflat wrote:

Thanks so much to everyone - what a warm and wonderful community you are! These ideas are helpful. Although there are 2 spigots in the shower area that have curtains you can pull around, there is no place to bring clothing in there and they are often being used anyway. I will ask the management about other options, however - I think there is a "family changing room" that I might be able to use. And I suppose I could also at least pull a top on in the restroom stall before going back to the locker/changing area after a shower. For those of you who swim, do you wear a swimsuit with pockets and put a breast form of some sort in there? I'm wondering if it's comfortable to be doing freestyle for an hour like that and how the water and chlorine would impact the forms. Really appreciate everyone's help and responses; it makes me feel more hopeful.

Surgery 5/9/2018 Prophylactic ovary removal Surgery 12/28/2018 Prophylactic mastectomy: Left, Right
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Oct 27, 2018 09:20PM romashka wrote:

I too am a swimmer and truly appreciate your message. I am flat and swim regularly. I do not wear forms and wear regular bathing suits. I wear suits that lay flat and feel comfortable. I am aware of some looks in the pool and locker room. But it's okay. If people look it's okay and if they don't, that's okay too. I look at other people too. :)

Even with my positive experiences, I very much understand your concerns.


PALB2 Dx 8/22/2017, ILC/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 10/12/2017 Mastectomy: Left, Right
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Oct 28, 2018 01:39AM - edited Oct 28, 2018 01:42AM by Jedrik

It made me so sad to read this thread. I mean: We still have <beep> pinktober, everybody is posting about breast cancer awareness and here we are, hiding in the shadows, so no other girl or woman can see cancer is real.

No surprise really when we are steered into hiding the minute we are diagnosed. Bald from chemo? Here's a wig. Pale from chemo: Here are make-up classes and the free goodie bag to go with it. Mastectomy? We can make you even better boobies than you had if you have insurance to pay up. If your body is not up to it or you don't want to bother for other reasons: come, buy these uncomfortable, expensive bras and put some uncomfortable and equally expensive dummies in the pockets. Nobody must know, nobody must be confronted with this! Why is that?

That said: I am pretty self concious myself, but it's getting better. On good days I conciously expose myself to these uncomfortable moments and I am getting more relaxed about it bit by bit. I have been to the sauna, which in germany you do use completely naked and it was okay. People were oblivious or respectful. It would help if I wasn't the only one, but hey, I can't always wait for others the pave the way.

Dx 9/17/2015, IDC/Paget's, Left, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (FISH) Surgery 10/5/2015 Lymph node removal: Sentinel Chemotherapy 10/18/2015 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 10/18/2015 Herceptin (trastuzumab) Targeted Therapy 10/18/2015 Perjeta (pertuzumab) Surgery 2/22/2016 Mastectomy: Left; Prophylactic mastectomy: Right
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Oct 28, 2018 09:12AM Wildplaces wrote:

I live in Australia and we have closed changing rooms, to be honest - I am sooooh relieved I have finished treatment and have my health back, I probably wouldnt be too worried.

If I felt self conscious I would shower with my bathers on ( I favour a high neck suit with a bit a padding and a crossed back, if you find one with horizontal stripes the better, looks flat but not flat enough for looks) and change in the toilet, that should have a door.

Dont give up swimming its a great sport!!

I understand the OP. I dont feel like having my cancer or for that matter any part fo my medical history on my sleeve. I always tried to look my best during treatment. I didnt wear a wigg - too hot, I am often seen without a bra - too uncomfortable but I prefer not to show everyone my scars, or 😉 several other parts of my body - too private and to be honest none of their business. I dont think I hide, I value my privacy.
Dx 8/5/2016, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/13 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal Chemotherapy 9/11/2016 AC + T (Taxol) Radiation Therapy 2/21/2017 External: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Oct 28, 2018 09:58PM wannabeflat wrote:

I really appreciate your responses and comments. My daughter has struggled with these questions more than me; I am "fortunate" to find out about my status before getting breast cancer and to have the opportunity to have the mastectomy as a prophylactic procedure. I didn't have to lose my hair or go through chemo/radiation. Or fear for my life. Of course I would have traded places with my daughter in a heartbeat but I couldn't control that. I admire all of you and am grateful for your compassion. I agree very much with Jedrik: hate the pink ribbons and hated watching my poor daughter spend hours drawing on eyebrows and putting expensive gel on her lashes in the hopes they wouldn't fall out, getting stared at when she was bald, trying to dress so her port wouldn't show, staying away from the beach after her mastectomy, etc.

I hope to get used to my new body over time and gradually become less and less self-conscious. Like Wildplaces, I am an extremely private person and don't want to talk about my situation; it is very raw and painful and I don't like sharing it with people I don't know. I'm relieved to know that most people don't notice and/or don't care. Hearing from you all that you have become comfortable going out and even swimming without a bra or forms or prosthesis is heartwarming. This is where I would like to get to. I'm a pretty simple person, have never worn makeup, like comfortable clothes, and don't want to fuss too much with breast paraphernalia. But I feel more hopeful now. Thank you.

Surgery 5/9/2018 Prophylactic ovary removal Surgery 12/28/2018 Prophylactic mastectomy: Left, Right
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Oct 29, 2018 11:29AM - edited Oct 30, 2018 04:06AM by Aussie-Cat

wannabeflat, I think it will take all of us a while to get used to our new body shapes and to be less self-conscious over time, but time does help. I had my surgery in June and I'm much more used to being flat now than I was then. Please let us know how you go with swimming when the time comes.

Diagnosed with nerve pain (post mastectomy pain syndrome) July 2018 Surgery 6/18/2018 Prophylactic mastectomy: Left, Right
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Oct 29, 2018 11:56AM LaughingGull wrote:

Hi wannabeflat

I am also a swimmer. And I have good news for you. You will be able to go back to swimming as soon as the scars are healed. Swimming is a great sport and you do not need to give it up. My pool also has open spaces for changing and showering, nowhere you can hide to change. And our locker rooms got closed for an 8-month-long renovation work the day before I went for surgery. All we have available now is a fraction (like a fifth) of the space we used to have. So the locker room is more crowded than ever. I went back to the pool right after my incision healed, one month after surgery. That was a mastectomy with tissue expander (nipple also removed), and I had a couple of sessions to further expand the expander to the point it is at now. The rest of reconstruction got delayed because I needed radiation and because I am getting a second mastectomy. So I have been swimming (and walking around the crowded locker room) with my remaining boob on my left side, and a big balloon on the right side (placed under the skin, no nipple, 15cm scar); I look very very asymmetric and weird. I just use my towel when I get out of the shower, as I used to do before, and then I change when I am in front of my locker, as I used to do pre-cancer. My experience is that nobody stares at me. Nobody cares. People are doing their own thing. Sometimes I forget and walk around naked. Nobody looks in disgust or says anything. People are compassionate and sympathetic if they notice and they may smile or say hi how are you doing -particularly people who have seen me there for years.

You say you are a very private person, but you have been using that changing room for years now. Why will it be different now? You are anticipating that you will be disgusted by your scars and your flatness, but you may be surprised that you aren't. That will be your new body. What makes you think you are going to hate it? I am looking very asymmetric and weird with my unfinished reconstruction and my balloon and I am not in the least disgusted, even less ashamed of it. I am proud of all I have gone through in life and love my body no matter what.

Also, if being flat makes you uncomfortable, you can still consider a simple reconstruction. Once you get the mastectomy and an implant, it only takes a couple "refills" (at least for me -but I am small breasted) of the implant and an exchange surgery that is very simple to get the new fake boobs, then nipple tattoos.

As somebody else suggested, a swimming suit with a bit of padding and crossed in the back will look great in a flat chest. Make it patterned rather than solid-colored and voila.

Best of luck and keep enjoying the water,

LaughingGull

AC, THP, then HP to complete one year. Oophorectomy + AI. Right side MX+ALND, Left side MX Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
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Oct 29, 2018 10:29PM wannabeflat wrote:

Thanks to you both; I am very encouraged by your experiences. I feel more confident that although I might be self-conscious in the beginning I will quickly adjust and begin to "forget" that I look any different than I used to or am supposed to. I've been paying attention when I'm at the pool and you are right - no one is looking or noticing. Laughing gull I'm sure you are a beautiful person inside and out and are so brave to return to the pool as soon as possible after surgery. You sound like a true warrior. I am very inspired by everyone's strength and courage. Thank you all.

Surgery 5/9/2018 Prophylactic ovary removal Surgery 12/28/2018 Prophylactic mastectomy: Left, Right
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Nov 24, 2018 11:55AM - edited Dec 24, 2018 04:32PM by BlueGirlRedState

Wannabeflat . I have yet to get the torso tattoo of monarchs I've been considering ever since deciding on a bi-lateral with no reconstruction. I do not know if it would make me less shy or not. The bi-lateral was my choice, the surgeon counseled that there was no medical reason to remove a healthy breast, but that it was completely my decision, and that many women do choose this. I did not expect to be as "shy" as I am now in the locker room, and either use a private shower stall or bathroom stall. I empathize with your feelings. Your gym might offer a family changing room which might also have a shower. If yo do not need to shower afterwards, you could use a bathroom stall to change. I never stopped going to the gym, even during chemo. I recently started swimming again, and am enjoying it as another form of exercise, and it seems to help the shoulders ( had a frozen shoulder recently). I do not feel shy at all about lap swimming, but do wear something in the saunas.

Supplements: GAIA turmeric-joint; glucosamine-chondroitin; magnesium glycinate; biotin; potassium-iodine; low dose calcium; C; B-complex ; D; Fish oil. For a year or so after bi-lateral used Juven Nutritional therapy for wound healing with 7g arginine, 7g glutamine. Often add turmeric to meals.

2009 ER+ left breast. 52 yrs. Lumpectomy, Radiation 6 weeks, tamoxifen 5 years. Dense lumpy left breast, normal right. Acupuncture offered at facility as part of integrative medicine. It really helped with anxiety/stress during radiation treatment.

2016 ER+ left breast. Probably a new cancer, but unknown. 4 rounds TC Aug-Oct 2016, Bi-lateral (my choice) Nov 2016, no reconstruction. Anastrozole 1 mg starting May 2017. Joint issues noticed immediately. Stopped Anastrozole after 3-4 months do to joint stiffness in. After several months of no AIs, fingers were feeling better. Started tamoxifen March 2018

10/2018 noticed stiffness and some trigger finger again. Was eating meat a lot more (daily) than normal. Usually 1-2 /wk. Have cut way back on the meat, seems to help, but one finger still very prone to trigger finger.

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Dec 20, 2018 08:55PM arby wrote:

I finally like going swimming and have been in a pool group the last 2 summers. I wear a sports bra with pool water safe prosthesis. The bra pockets are perfect and its a supportive and inexpensive find at Walmart. Then I wear lovely "board" shorts (think surfer or paddle boarder). And a sun protective long sleeve top. (Lands End) This combination is fool proof. Forget the shower exposure and sit on two thick beach towels on your drive home. Totally remove the anxiety causing situation. Feel young again investing time with new friends and great exercise. I think less sun exposure is always what the doctor ordered, so I use sunscreen on my face, neck and hands and wear a hat and sunglasses. This is way more secure and skin healthy, covering up with a rash guard top, than swimming with a mastectomy suit.


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Dec 20, 2018 10:42PM wannabeflat wrote:

Thanks to you both; these are good suggestions. There is a family and gender-neutral changing room at the pool that I think I can use, at least at first. I've been looking at options for swimwear and am determined to return to the pool. My surgery is next week; I feel good about my decision and am ready. I appreciate everyone's support. I wish you all a happy and healthy holiday season and new year; your strength and spirit are inspiring.

Surgery 5/9/2018 Prophylactic ovary removal Surgery 12/28/2018 Prophylactic mastectomy: Left, Right
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Dec 21, 2018 02:27AM coraleliz wrote:

I returned to lap swimming 1 month after my bilateral mastectomy. I thought I'd wear the one piece speedo style. I just didn't like how it felt on my chest. I was not interested in trying to wear forms, especially when I work out. I settled on a 2 piece style work out bikini. I still wear this style. Just more comfortable for me. It's been almost 8 years & I don't own any forms or prostheses.

Although my scars don't look bad, probably as good as possible, I am careful in the locker room. I do surfer style changes (changing clothes over or under a towel).

I do think you'll be able to get back to swimming sooner. You won't have lymph nodes removed.

Hoping you have a fast recovery.

Dx 2/28/2011, IDC, Right, 1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Dx 3/15/2011, IDC, Left, 1cm, Stage IIA, Grade 1, 2/4 nodes, ER+/PR+, HER2- Surgery 4/15/2011 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right
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Dec 21, 2018 04:44AM Aussie-Cat wrote:

wannabeflat, I hope your surgery goes well and you have a good Christmas. What day/date is your surgery?

I hope everyone has as good a Christmas as possible and makes precious holiday memories.

Diagnosed with nerve pain (post mastectomy pain syndrome) July 2018 Surgery 6/18/2018 Prophylactic mastectomy: Left, Right
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Feb 18, 2019 08:59PM wannabeflat wrote:

A brief update: I had my BMX on 12/28. After a couple days of mourning I fell in love with my new body and have never regretted the decision against recon. I find that I don't really care if people notice and have been pretty comfortable going without breast forms except at work or in social settings. I returned to the pool today, swimming flat in my same old TYR from before surgery and it felt so good. I bought a huge surfer poncho, which is basically a wearable towel, which I put on afterward so I could pull off my suit underneath it. I wore the poncho home with a pair of sweat pants and showered in the privacy of my own bathroom. Love to you all - thanks so much for all the support and encouragement!

Surgery 5/9/2018 Prophylactic ovary removal Surgery 12/28/2018 Prophylactic mastectomy: Left, Right
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Feb 19, 2019 03:05AM blah333 wrote:

wow that is awesome that your suit still fits. I had my surgery one year before you and have not swam or tried to buy a swimsuit since..... just in the 2-3 years before my diagnosis did I find the PERFECT suit and was at the best shape in my life... I avoid the beach but would like to swim laps at some point. I know their are endless threads about swimsuits for flat women and where to go but it feels like such a hassle and I haven't had the energy/motivation to try them on etc


Dx 9/29/2017, DCIS, Left, 6cm+, Stage 0, 0/2 nodes, ER+/PR+ Surgery 12/7/2017 Mastectomy: Left, Right
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Feb 19, 2019 08:39PM wannabeflat wrote:

I'm sure I would want to wear something different if I was going to the beach. The indoor pool where I swim laps is kind of poorly lit and I just get quickly in and out. My suit is black with red stripes across the mid-section and I don't think it was noticeable. I just wrapped a towel around me when I wasn't in the water. It did feel good to swim so I hope you'll think about it again.

Surgery 5/9/2018 Prophylactic ovary removal Surgery 12/28/2018 Prophylactic mastectomy: Left, Right
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Feb 25, 2019 12:03AM AKJ wrote:

I'm a uni and wear a one piece lap swimming suit. I love swimming! I've tried to only go to adults only swim times. My pool is mostly open showers and I usually shower in my suit and change facing the wall. It's all been ok. No funny looks or anything. I've been getting bolder and sometimes shower with my suit off. No problem.

Dx 12/2/2013, IDC, Left, 4cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 1/20/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 2/27/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/18/2014 Lymph nodes, Chest wall Hormonal Therapy 7/4/2014 Arimidex (anastrozole)
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Mar 12, 2019 12:48PM - edited Mar 12, 2019 12:48PM by accentmj

laughing gull,

Can you tell me how being flat effected you in the water? I am going back to swimming soon and have also gone flat. Curious how it may change my form.

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Mar 12, 2019 08:11PM wannabeflat wrote:

The only issue that I am dealing with is still not having full range of motion in my arms and feeling some soreness/fatigue in my armpits when I swim freestyle. I've been back to the pool maybe 3 or 4 times since surgery and it is already getting better; I can swim a few more laps of freestyle in a row before switching strokes each time I go. Breaststroke seems the same as always, as does backstroke.

Also, I started showering in a curtained stall and getting dressed under my surf poncho and it's been fine.

Surgery 5/9/2018 Prophylactic ovary removal Surgery 12/28/2018 Prophylactic mastectomy: Left, Right
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Mar 19, 2019 02:06PM MT1 wrote:

This is me, in this video. I say, give yourself permission to do you without care for what others think. Sometimes you may need to fake it.

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Mar 19, 2019 09:12PM MexicoHeather wrote:

Nice video!

Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/4/2016 Lymph node removal: Right; Mastectomy: Right Surgery 12/4/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Right Chemotherapy 1/18/2017 AC + T (Taxol) Radiation Therapy 5/9/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/9/2017 Prophylactic ovary removal Surgery 12/5/2018 Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 19, 2019 10:14PM wannabeflat wrote:

That is incredibly inspiring. You are gorgeous and so brave. The truth is, I feel comfortable with the way I look but still feel very self-conscious being flat around/in front of other people. In all honesty no one ever seems to notice and I hope that over time I will just forget to worry about it.

Surgery 5/9/2018 Prophylactic ovary removal Surgery 12/28/2018 Prophylactic mastectomy: Left, Right
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Mar 20, 2019 05:37PM Aussie-Cat wrote:

Thanks for the video!!

Diagnosed with nerve pain (post mastectomy pain syndrome) July 2018 Surgery 6/18/2018 Prophylactic mastectomy: Left, Right
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Mar 21, 2019 02:23PM BlueGirlRedState wrote:

Nice video MT1, inspiring and encouraging. I'm back to swimming, not that I like it that much, but I think it is good exercise, especially for my shoulders which have started to give my some trouble from time to time. Do not think it is BC or surgery related. Still shy, in part because the non-cancerous side did not heal up as well and is red/pink - maybe I started doing too much/too soon. Still thinking about a torso tattoo, but finding out it would probably take longer than thought and maybe a little more painful/irritatiing than I thought. No regrets about not doing reconstruction, even if I went the full circle from exploring plastic to DIEP to nothing.

2009 ER+ left breast. 52 yrs. Lumpectomy, Sentinal node removal, negative. – 1. Radiation 6 weeks, tamoxifen 5 years. Dense lumpy left breast, normal right. Acupuncture offered at facility as part of integrative medicine. It really helped with anxiety/stress during radiation treatment.

2016 ER+ left breast. Probably a new cancer, but unknown. 4 rounds TC Aug-Oct 2016, Bi-lateral (my choice) Nov 2016, no reconstruction. 2 sentinal nodes remove, negative. Cold Capping using Chemo Cold Caps (DIGNICAP not available). Anastrozole 1 mg starting May 2017. Joint issues noticed immediately. Stopped Anastrozole after 3-4 months do to joint stiffness in. After several months of no AIs, fingers were feeling better. Started tamoxifen March 2018

10/2018 noticed stiffness and some trigger finger again. Was eating meat a lot more (daily) than normal. Usually 1-2 /wk. Have cut way back on the meat, seems to help, but one finger still very prone to trigger finger. 2/2019, trigger finger and stiffness much better.

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