Feb 7, 2019 11:59AM amygil81 wrote:
Buttons, it is nice to finally meet you, though I'm sorry for the circumstances. Our situations are quite similar. I had a UMX for DCIS in 2000. It wasn't too bad, just a flat area where my breast used to be and the line of my scar. I didn't have chemo or rads, because it was only DCIS.
Then my BF found a lump under my scar in 2009. On biopsy, it turned out to be some of my original tumor cells, now turned invasive and growing into my chest wall. They did scans on me to detect distant mets, which they did not find. That made me stage III and not stage IV.
They had to take my pectoral muscles, as the tumor had started to invade them. I call it my upgrade surgery, upgrading me to a full radical mastectomy. I'm concave up to my collarbone and under my arm. I'm down to the bone where my breast used to be. Not many ladies today need or get surgery this extensive. But we do what we must to get cancer-free.
It's sometimes hard for me to find a prosthesis that fits well. The silicone ones are heavy, as you've already found. I mostly wear a knitted knocker these days. I push extra stuffing into the places where I need it. I put a small smooth river stone in it to get the amount of weight I want. That's my everyday foob. It's not perfect, but if anyone has a problem with the way my chest looks, it's theirs, not mine.
I've been thinking about trying a custom prosthesis. American Breast Care makes one, so does Radiant Impressions. I don't know how heavy they are. Bressante has an interesting one, but they seem to be only in Canada. After 9 years with this chest of mine, I've pretty much gotten used to it. My LE, in my arm and hand, bothers me more. Maybe the next time I go to my regular prosthesis fitter, I'll see what she recommends. Sorry I couldn't be more helpful. I wish you the best in your search.