Join Us

We are 219,486 members in 84 forums discussing 161,542 topics.

Help with Abbreviations

Topic: Why no body suits or body shapers?!!!

Forum: Living Without Reconstruction After a Mastectomy — Discuss prostheses, swimsuits, bras, and other options for women not having reconstruction or waiting for reconstruction.

Posted on: Jul 9, 2020 02:08AM

JACK5IE wrote:

Does anyone else have problems with their bras riding up since their mastectomy? It's so annoying. I had a left side mastectomy and I have never been able to find a bra that is completely comfortable and doesn't ride up. So I thought...there must be a bodysuit or body shaper with a built in bra with pockets that would eliminate that problem. Guess what...nothing out there that caters to the mastectomy patient!!! At least nothing I can find. I purchased bra suspenders (well they're actually boot suspenders) from Amazon so I'm going to try that. Has anyone ever seen a full one piece body suit with pockets?

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 7/31/2009 TAC Hormonal Therapy 12/31/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/31/2010 Lumpectomy: Left Radiation Therapy 4/30/2010 Whole-breast: Breast, Lymph nodes Surgery 6/30/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 7/31/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Page 1 of 1 (10 results)

Posts 1 - 10 (10 total)

Log in to post a reply

Jul 9, 2020 02:27AM buttonsmachine wrote:

Jack5ie, you read my mind! I was thinking the same thing about two weeks ago.

I found the Rhonda Shear Reversible Body Bra as a possible solution - there is a space for removable pads, but I doubt a whole prosthetic would fit in it. I also thought I could work some sewing magic on it though.

A seamless, light compression body suit with a place for prosthetics would be perfect. Something like this but better, with more coverage and security!

https://www.herroom.com/rhonda-shear-9599-reversible-body-bra.shtml


Diagnosed at 32. Local recurrences one year later. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/31/2017 Whole-breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib)
Log in to post a reply

Jul 9, 2020 02:41AM JACK5IE wrote:

buttonsmachine...exactly! Something just like that but in a bodysuit. There would be no riding up of the bra! I am constantly pulling down my lopsided bra and it can be a little embarrassing out in public. I'm sure this happens for people with a double mastectomy as well that haven't had reconstruction. If you do end up sewing something like that please let me know how it comes out.

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 7/31/2009 TAC Hormonal Therapy 12/31/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/31/2010 Lumpectomy: Left Radiation Therapy 4/30/2010 Whole-breast: Breast, Lymph nodes Surgery 6/30/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 7/31/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 9, 2020 02:50AM buttonsmachine wrote:

Will do! Someone really needs to make something like this for us. I might actually send out some emails to companies and see if anyone is interested in developing something like this. It's the kind of thing that people would probably only think of if they are in our shoes.

I ordered the one I posted above, but I'm not sure how well it will work. If nothing else I can wear it around the house or give it away.

I also found this, which I thought *might* work for a mastectomy if a custom pocket were sewn in. It has no underwires and is built for less cleavage than many other body suits.

https://www.herroom.com/memoi-msm-119-slimme-seamless-brief-bodysuit.shtml


Diagnosed at 32. Local recurrences one year later. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/31/2017 Whole-breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib)
Log in to post a reply

Jul 9, 2020 02:53AM JACK5IE wrote:

Now you're reading my mind! I was just going to post this one and sew pockets into it. A little pricey though.

https://www.healthproductsforyou.com/p-anita-comfort-microenergen-strain-relief-support-corselet.html

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 7/31/2009 TAC Hormonal Therapy 12/31/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/31/2010 Lumpectomy: Left Radiation Therapy 4/30/2010 Whole-breast: Breast, Lymph nodes Surgery 6/30/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 7/31/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 9, 2020 05:44AM JACK5IE wrote:

Look what I found! No sewing!

Bra Pockets

So I went ahead and bought them. I also bought the bodysuit you suggested. I found it on Amazon for cheaper. It's worth a try for only $35 for both.

Bodysuit

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 7/31/2009 TAC Hormonal Therapy 12/31/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/31/2010 Lumpectomy: Left Radiation Therapy 4/30/2010 Whole-breast: Breast, Lymph nodes Surgery 6/30/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 7/31/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 9, 2020 02:18PM buttonsmachine wrote:

Wow the pre-made pockets are a fantastic idea, I think I'm going to give that a try too. I have been looking for more ways to make non-mastectomy bras work for me, just to have more options, and that might actually do the trick!

Diagnosed at 32. Local recurrences one year later. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/31/2017 Whole-breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib)
Log in to post a reply

Jul 10, 2020 01:14AM JACK5IE wrote:

I'll let you know how the body suit and pockets work out. Hopefully my fake boob doesn't end up around my chin again. Loopy It still would be so much better if we had this option without having to go through all this searching for something that could work for us.

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 7/31/2009 TAC Hormonal Therapy 12/31/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/31/2010 Lumpectomy: Left Radiation Therapy 4/30/2010 Whole-breast: Breast, Lymph nodes Surgery 6/30/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 7/31/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

Jul 10, 2020 01:42AM buttonsmachine wrote:

I agree with that! It's been really hard to find solutions that work for me. I feel like the breast cancer MacGyver sometimes. :-P

Diagnosed at 32. Local recurrences one year later. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/31/2017 Whole-breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib)
Log in to post a reply

Jul 14, 2020 10:34PM - edited Jul 14, 2020 10:35PM by alto

I used the Amoena Valetta camisole tucked into my pants at first - it worked okay when I wasn't able to put weight in my bra. But since I got my prosthetic, I've found the Amoena Mara comfortable and doesn't ride up on me (I've worn a size 6/7 prosthetic in one pocket). Amazon sells it as cheap as $21-25. Worth a shot if you haven't tried it already.

Good luck in your quest! It's quite a pain not to have a solution that works.

Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER. Dx 11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC) Surgery 11/11/2018 Lumpectomy: Right Dx 11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR- Surgery 12/19/2018 Lumpectomy: Right; Lymph node removal: Sentinel Dx 12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR- Surgery 1/16/2019 Mastectomy: Right
Log in to post a reply

Jul 15, 2020 05:26AM JACK5IE wrote:

Thank you! The 'garters' are actually working out pretty well. You can't even see them under my clothes. I received the body suit yesterday but haven't tried it on yet. I'll post here after I do.

Dx 7/2009, IDC, Left, Stage IIB, Grade 2, 4/11 nodes, ER+/PR+, HER2- Chemotherapy 7/31/2009 TAC Hormonal Therapy 12/31/2009 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/31/2010 Lumpectomy: Left Radiation Therapy 4/30/2010 Whole-breast: Breast, Lymph nodes Surgery 6/30/2010 Lymph node removal; Mastectomy: Left Hormonal Therapy 7/31/2015 Femara (letrozole) Dx 12/2017, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)

Page 1 of 1 (10 results)