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Jun 26, 2022 06:16AM
idk
wrote:
Serendipity09 said:
(at chemo a nurse responded to her decision to have a double mastectomy with the following) "well, we don't recommend removal of a healthy breast blah, blah, blah..." I was in tears. I felt violated. It's already hard enough to go through what we've gone through and have to make a decision on loosing a part of our body, for someone then to come and make you second guess yourself.
I’m really sorry to hear that you had to go through that. People often say such callous things and to give them the benefit of doubt, I believe they just have no idea since they can’t begin to even imagine walking a mile in our shoes - although most act as if they know exactly how we feel as well as how they would handle things. This is absolutely not true, IMO because no matter what somebody says or believes, until they live what we’re going through, they truly don’t have a clue. They can’t begin to understand and that’s how I try to give people a pass.
Even those that work with cancer patients every day other than becoming anesthetized, I don’t think even they know exactly how they would react if they were in our situation. It’s so easy for people to spout what they think they would do yet having lived it, there’s just no way that anyone can possibly know how they will feel until they walk a mile in our shoes.
I’ve always felt like it’s easy to gauge if a person actually cares at all by how they respond if you end up sharing that you’re a terminal patient. If someone says: yeah I could die today too - well that person to me is an ahole. I’m sorry but it’s not a contest & it’s a little different when you’ve been given a death sentence. Sure, we all have to die one day yet it’s completely different to actually know. It doesn’t make it one bit easier to prepare and in fact, after the word cancer enters our lives or at least my life, it will never again be the same. In fact, the longer I live after that word entered my life, the crazier I get, TBH. I wouldn’t say I’m anywhere near or closer to acceptance than I was when I still had no sense of mortality. Yet if I could return to a time when I had no grasp or understanding or even care about my mortality, I would do so in a heartbeat. Those days now exist like glory days. I look back and think about how great it was although perhaps foolish and careless but great nonetheless to live without worrying basically every moment of every day about the end.
I said people that respond that way are aholes, yet I can still even give those people a pass because they just don’t know what to say. However, that is probably the most dismissive response that I’ve ever heard and commonly hear.
I don’t think people have any idea how much their words impact our lives, unfortunately. I believe that no different from any major loss, be it the loss of a relationship, a job loss or even the death of someone - there is only one acceptable response which is a sincere and very simple: I’m so sorry. Period. I had a boyfriend years ago that cheated on me and ended up marrying the person that he cheated with and she ended up cheating on him and divorcing him. He called me and of course I could’ve had anger or resentment or a host of feelings but I really didn’t. This was when I’d never really been in that situation that I was aware of and I responded by saying very simply and sincerely: I’m so sorry. He cried. He said thank you so much because everyone else, including his family said all sorts of upsetting things but especially things like: good riddance! He just said that I was the only person to say the right thing. That’s when I learned how to respond when people share about loss.
Another response is to ‘one up’ a person like well, you think that’s bad I’m going through such and such. Again, I don’t think it’s quite as ugly for me as someone saying that we can all die at any moment but it’s still very dismissive. And, despite the bombshell that you just shared, whoever you shared it with has already taken the spotlight. They have already put the focus back on themselves.
I understand that sharing ‘cancer’ with another person is extremely awkward in our society. People have no idea what to say and no one has training really it seems on what the right thing to say or do actually is. It just makes me realize that there isn’t a single person, really even another person in the exact same situation that can truly know how you feel (and vice versa) since we are all unique. The world is comprised of 7 billion microcosms where the entire universe orbits each person. It’s all about me! I don’t think people can help that because first people would have to become aware of how small their world actually is and the part that they play. In each of our worlds, we are the center or the sun of that universe and everything else revolves around us.
I’m really sorry that she said that to you.
MBC Stage 4 dx 01/05/17. Mets to lungs, liver, pancreas, ovaries at dx. One year into chemo, surgery & radiation it reached the brain. Her2nu+ estrogen+
Targeted Therapy
3/1/2017 Herceptin (trastuzumab)
Targeted Therapy
3/1/2017 Perjeta (pertuzumab)
Immunotherapy
3/24/2017
Chemotherapy
3/24/2017 Other
Surgery
7/6/2017 Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy (Left): Radical; Mastectomy (Right): Radical
Radiation Therapy
8/24/2017 Chest wall
Radiation Therapy
10/26/2018 Intraoperative: Other part
Radiation Therapy
9/26/2021 Intraoperative: Other part