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Topic: Breast pain

Forum: Not Diagnosed but Worried —

Meet others worried about developing breast cancer for the first time. PLEASE DO NOT POST PICTURES OF YOUR SYMPTOMS. Comparing notes, symptoms, or characteristics is not helpful here, as only medical professionals can accurately evaluate and assess your individual situation.

Posted on: Feb 29, 2012 04:55PM

seemz wrote:

I have been hear before and I was off the boards for a month or so but am back again. To recap my history, about 6 months felt a lumpy area on the left breast in the upper outer quadrant so went to get it checked out. After a mammo and ultrasound, was told that they didnt see anything but some calcifications which they wanted to follow up in 6 months. After this, i wanted to have a 2nd opinion so went to a breast specialist who did an exam and concurred that everything was normal. Well since then, i started getting breast pain with all over body pain. Got some blood work done and i was found to be severely deficient in Vitamin d so was started on prescription vit d supplements.

About 4.5 months after the initial mammo, since i still had the pain, decided to move my 6 month mammo up and went for the follow up mammo and a repeat ultrasound for the pain. The radiologist said that they couldnt find anything to cause the pain but calcifications had changed very slightly but since she couldnt say for sure and since i also had pain, she recommended a stereotactic biopsy for the calcifications. The biopsy came back benign with fibrocystic changes.

 It has now been 2 months since the biopsy but i still have the pain in my breasts. I also seem to have pain in the back directly behind my breasts and in the armpit area also. I was told that vitamin d deficiency can cause musculoskeletal pain and it can take a long time to resolve. Could the breast pain and back pain all be muscular? Sometimes the pain seems to come from teh breast and sometimes outside the breast, sometimes its in the back directly behind the breast and also feels like its coming from the rib cage. I have had 2 mammos, 2 ultrasounds and a biopsy of the calcifications in the left breast. Other than the calcifications, they could not find anything else - not even cysts...jsut was told that i have fibrocystic dense breasts. I have tracked my pain and it is not related to the menstrual cycle. Could it all just be realated to the musculoskeletal pain caused by vitamin d deficiency? I want to beleive that after a BIOPSY but the pain is distracting and scary.

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Mar 1, 2012 03:15PM leaf wrote:

I'm sorry you are going through this.  

To me, it sounds like this Mayo blurb about breast pain says that often they can't find a real cause for breast pain.  http://www.mayoclinic.com/health/breast-pain/DS00760/DSECTION=causes

I'm so glad you got your breast pain checked out, and are taking vitamin D.  I think there's a lot we don't understand about vitamin D.

I wish I knew the cause of all the things that happen to me; then I'm more assured the 'world makes sense'.   But sometimes we have things happen that don't make sense or we don't know the cause.  For me, that makes it tougher.  

I've never had breast pain (except during/after breast procedures), but, sadly, it looks like its pretty common.

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 7, 2012 08:34AM merrysee wrote:

Saw your post and wanted to reply, i too found a lumpy area in my breast, ultrasound reading's were normal, but i too have had pain like your describing, pain in my right breast, shoulder, shoulder blade, arm, armpit, and my lympg glands in my armpits seem to be swollen too, i have breast implants and i've developed a condition called capsular contracture, basically my body's immune system is rejecting the implants, my surgeon thinks that's what's causing the pain but i'm not sure, the pain really gets me down and interfere's with my normal day, i can totally relate to you and doctor's don't seem to be concerned either which is soul destroying at time's, initally before my discovery of capsular contracture my doctor told me that anxiety can create these problem's? I hope you get some confort soon.

Kind regards Melanie.

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Mar 8, 2012 12:21AM seemz wrote:

Thank you so much for your replies.

Melanie, I totally understand what you mean. After 2 diagnostic mammos, 2 ultrasounds and a biopsy in a span of 6 months, i want to believe the doctors but the pain is a constant reminder of it and not a day goes by where i think what if they have missed something. I am only 35 years old and have a 2.5 year old son who needs me. I hate feeling like this evryday. My family is sick of my constant complaints about my breast and i don't blame them either since i have gone through soo many tests and have had breast exams done by atleast 7 doctors!

I did not have any breast issues until 6 months ago when i weaned my son after breastfeeding him for almost 2 years. The month after i stopped nursing him is when all of this started. I never knew i had lumpy breasts and now i cant stop myself from checking my breasts everyday and it seems like everyday i find something new on my breast to worry about. I have always been a bit of a hypochondriac but this incident has put me over the edge....it doesn't feel like i will ever get over the fear of always worrying about BC and i really cannot live my life like this everyday.

Leaf, what do you think i should do? Should i pursue this further or just let it go and learn to live with the pain. A friend of mine who also had vitamin d deficiency also had some breast pain and se said it took a long time for it to go away so i am hoping it is the deficiency causing this and i just have to be patient...but sometimes when i get the pains, i get scared again.

Thank you for taking the time to respond!

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Mar 9, 2012 09:58PM - edited Mar 9, 2012 09:59PM by lisa71971

Hi I am experiencing almost the exact same pain .I also feel like my armpit area right near my breast is swollen and my breast feels swollen too, but not all the time..no lumps though. I did have a cluster microcalcifications on my mammogram and am going in for another mammogram so they can take a closer look. I too am a bit of a hypochondriac  and I keep thinking if this is not cancer that maybe it could be some day based on what I have been reading about microcalcifications clusters. I have a 20 year old daughter and a 4 year old daughter and I m just wishing I could get this off my mind!! I am 40 years old by the way... 

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Mar 12, 2012 10:16AM Sommer43 wrote:

I too have a lot of breast pain, underarm pain, upper arm pain...  This I had before my surgery, so I am waiting till my surgery settles down.  The pain did increase after my biopsy, which went in twice... 

 Does make you think doesn't it!  My pain has gotten worse since all these procedures began! 

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Mar 27, 2012 06:02PM seemz wrote:

With all this talk about breast pain in the other thread (did your BC hurt?), I have gotten even more scared now. Although, i have had a biopsy done in a different area of the same breast and it has come back benign with fibrocystic changes, I am still scared. My pain is  not localized to one region but all over the breast and the armpit and directly in the back area behind the breast. I feel like i don't know what to do anymore.

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Mar 28, 2012 06:57AM - edited Mar 28, 2012 07:04AM by girlguru

You are not alone, my friend. How bad is your breast pain? Can you tolerate it? Does there seem to be a hormonal connection with your pain? It's an interesting topic. Many websites would have us believe that hormonal breast pain is common. In my case, I don't know that it should be as severe as it is. It doesn;t seem "normal" that any woman have severe pain in that a region for more than a few days premenstrually. Yet many women are saying that it most definitely can happen. It just doesn't happen to every woman.

I would definitely try to take comfort in your biopsy results. When I had my testing done, I mentally shut down. I started experiencing unbelievable pains in my body. All of it has resolved. If you are worked up about your condition, you might be stressing your body out and that could be causing you additional pain. I even heard that stress can worsen breast pain. I'm an anxious person so I personally believe that pain can come from that alone. Go with your gut instinct above anything we say here though. I'm with you. We seem to be in that category of people that doctors don't really know what to do with. Unless we constantly get biopsied and scanned, waiting is all we can really do. Make sure to do short term followups with a breast expert from now on. That's what I'm doing until I can muster up the courage for more elaborate testing,

Good luck to you!

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Mar 28, 2012 07:08AM girlguru wrote:

OMG Sommer! Same here!!!!

I have had two biopsies in my lifetime. My breast pain didn't really start until around age 24 but it was mild to moderate. Ever since discovering masses and having procedures done, it has been much worse! That's kinda freaky deeky. I've always been aware of some hormonal pain in the past but it was never limiting my life. Now it's very severe and impossible to ignore. I can live with it but it's very hard. I also touch my boobs now all the time. I wonder if that's making them more sensitive? Cause I swear my pain wasn't this bad... even this time last year it wasn't this bad.

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Mar 29, 2012 11:06AM seemz wrote:


If your pain is only for 2 weeks before your period, i wouldn't be too concerned. I have heard that with fibrocystic changes, the pain can start upto 2 weeks before your periods i.e around ovulation.

My pain is around all the time somedays it is better than others, but it is always there hence not related to my cycle. I do notice that it is worse around my cycle. I have been to multiple doctors who have just said it is normal but it does not feel normal to me. Also, my left breast hurts more than my right one. At this point, any doctor that i have been to after my biopsy (3 months ago) just tells me that i have had a thorough workup and nothing showed up in the biopsy so there must be nothing wrong....they look at me like i am crazy. Even my husband is now sick of my constant complaints about the pain and thinks that i need to be on anti-depressants. I think i am just going to wait 3 more months for my follow up mammo and see what happens. I try to forget about it everyday but the pain is a constant reminder that something is not right.

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Mar 31, 2012 10:58AM girlguru wrote:

On a 1-10 scale, how bad is your pain? Can you be physically active with the pain or does it limit your abilities?? I know how you feel. My loved ones were all worried with me at first and are now starting to get annoyed with me for remaining in this worried state. It's hard for them to understand how real these problems are to us. Don't give up your quest for answers if you feel strongly about it. I eventually had to just accept where I was. There's only so much you can get your doctor to do for you but keep trying if it's scaring you this much! Someone will take you seriously.

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Apr 3, 2012 07:36PM seemz wrote:

The pain itself is not very bad because it is not a constant pain but comes and goes everyday. It is more annoying than anything else and also very scary because i thought by now, i would have an explanation for the pain. My biopsy pathology reports came back as fibrocystic changes in that breast so i keep telling myself that the pain is because of that....but i was under the impression that fibrocystic breasts are only painful about 2 weeks before the period but mine is not related to my cycle so that confuses me more....and also my right breast is not nearly as painful as my left.

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Apr 4, 2012 10:41AM Sommer43 wrote:

Hi girlguru

I know my pain is from the procedures and not my usual cycle pain.  That seems to be either receding or the pain from the procedures has taken over, haven't quite made a decision on which is which to date! 

I believe my previous breast pain, down to my cycle, was down to my hormonal changes, as I am menopausal, which has been confirmed via a blood test.  Hot fulshes (the swines creep up on me and knock me for 7 on a regular basis, not to mention my husband who's a clean freak, was scrubbing the mattress the other day, claiming "sweat stains, charming!)  Since my surgery, I have had nerve pain travelling down my arm to my little finger, I thought that was carpal tunnel syndrome, but I was told that CTS does not affect one's little finger, another nerve was causing the pain, travelling down my inner arm, called the "ur something nerve" This has now rectified itself with anti inflammatory pills!  I still have pain in my boob where surgery is settling down, like a knitting together pain...  Still shoulder pain and the creeping feeling in my armpit.  On and on it goes... 

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Feb 25, 2013 10:19AM ticotacas wrote:

I just found this discussion.  I too have the same issue.  I had a biopsy 2 years ago and the lump was benign.  I dont even know what they called it.  Now I went for a mammo and sono becuz I found a lump with pain.  Both tests came back normal.  However, I went to a breast specialist and she felt the lump. She said she wasnt too worried but is sending me for an MRI tomorrow. I am in panic.  I have two children ages 13 and 10.  My head keeps going to worst case scenario. The pain is in my right breast, radiates to my back and even down my arm.  If this is fibrocystic issues wouldnt they have seen something?  I feel so scared.  I guess I will have results by Thursday if not sooner.  I swear...if they dont find anything, I am inclined to have them rip these lumps out.  I have read too many stories about it being nothing, but then it turns.  It may be overkill, but I dont want the pain or the lumps in my body.  Freaking out.  Is anyone out there going through same thing?  Please write.  I know what you are feeling.

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Mar 11, 2013 12:45PM HockeyMom92 wrote:

I have all these same symptoms--breast pain in left breast, and to the side, and to the back and center! It comes and goes but I have it daily along with others aches n pains. It's awful. I had a chest xray and bloodwork and all was fine. Going for mammo tomorrow. I'm so worried! It feels like congestion and heaviness to me. I so hope it's diagnosed and not cancer. They found a vitamin D diffenciency in my bloodwork too. Good luck to all!

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Mar 15, 2013 03:33PM famv5 wrote:

I'm so glad I found this board. 

I have been having pain issues for over a year now and I am finally making an appt to have this investigated.  I've thought for a while that it was just hormonal but now I'm worried.  I am a hypocondriac and this has me worried 24/7.  I have three small children and just scare myself so much that this is something very serious. 

The problem I'm having is pain in my left breast.  I have some discharge from that breast, as well.  I have a little from the other breast but more from the left one.  I also have pain in both breasts a week or so before my period but the week before I ovulate, I get crazy pain under my left arm and into my arm.  I also have a pain in my back behind that breast, too, that really has me scared because I read online that advance breast cancer would have a symptom of back pain. :(  See how I worry and have myself already diagnosed.  Sigh.  Anyway, those pains along with a sharp pain off and on for a few days along my collarbone on that same side.  I just don't understand what it could be. 

I had a breast exam over the summer last year and they found nothing palable and referred me for a mammogram.  I have been terrified but have come to the realization that I need to have it done.  I, too, had bloodwork done and everything came back perfect except for my Vitamin D.  It was 21, I think. So, I'm taking a daily supplement of 2,000 mg of Vitamin D3. 

Anyway, I'm so glad to read that there are others out there having similar issues.  I'll continue to follow this thread and update after I have my appt.  I'm calling Monday to schedule. 

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Mar 28, 2013 10:49PM 1Passion wrote:

Hi Everyone! I'm glad to have found this site and posts of the symptoms that you ladies have been dealing with because I to suffer with the same symptoms. I have a doctor's appt this Monday. I went Aug of 2012 with the complaint and I asked for a mammo but he said not to worry because I was only 33 and he informed me to lay off caffeine, wear a sports bra to bed and take vitamin E. I see many of you are taking vitamin D, I will be sure to mention that at my visit. What puzzles me is that sooo many women have the complaint of the pain or discomfort being on the left side, I wonder what is it about the left side that causes the pain to be so broad on our left side. Mine is in my left breast, underarm, shoulder, upper middle back, under left rib cage and sometimes subsides down left arm. This is very puzzling. I wish you ladies the best in happinest and health! I will be sure to say a prayer for all of you..... Stay focused and encourage your selves.

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Jan 17, 2014 08:19PM Bomby05 wrote:

hi! Could anyone give me some help?

I am 24 yrs old.thin, no family history of breast cancer.. I am a mother of 4 yrs old son and i breastfed for 1 and 4 months..

But lately, i experience some breast pain but comes and goes..

But now, i experience it more often..

I am now having anxiety and makes me more sick..rib and back pain.

But when i got checked, the dr.was not sure because it has tiny lump so that he suggest me to go for mammogram.. For my peace of mind, but I am now freaking and scared that it mights be breast cancer!

I think about it everyday!

Pls help!

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Jan 18, 2014 03:37AM Moderators wrote:

Hello Bomby, and welcome to Breastcancer.org. We're sorry that you're dealing with this worry, but it's good to know you're seeing a doctor about it. Pain is always a concern, but it doesn't have to indicate breast cancer, especially in young women. The main Breastcancer.org site includes the section What Mammograms Show: Calcifications, Cysts, Fibroadenomas that explains some of the many masses that can happen. 

Please keep everyone posted on how your testing goes!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jan 20, 2014 01:35AM monicamontes000 wrote:

That's right! This forum will really help you to know more about Breast Cancer, diagnosis of breast cancer can be a devastating bit of news to anyone. But don't be afraid to see your Doctor, early detection can really help eliminate Cancer. You should not worry because there are a lot of  medical advances that combat breast cancer today.

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Jan 22, 2014 01:47AM Bomby05 wrote:

hi.its me again, LAST few days I experienced breast pain and swelling, its almost 10 days before my peiod but im so worried because the pain is just like theres PUS on it..I dont even make a good sleep because of it. And now, i decided to check it out and had "breast ultrasound".. They found nothing! As in nothing? But whay theres pain? And when i find my lumps on my own i can feel it?

Does the ultrasound only detect what is "not normal"..what should i do?

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Feb 28, 2014 02:54AM - edited Feb 28, 2014 02:54AM by NeedingHelp

Do any of you have a lump/thickening? I have a lump and all the same pain you describing and i am freaking out! Im 25 years old, pain in my arm, armpit, shoulder the whole area! Nothing seen on ultrasound...

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Feb 28, 2014 11:33AM mps34 wrote:

hi I didn't read all the comments so sorry if this is repeated. I went to my dr for breast pain which is similar to some described. Other than small cysts nothing showed in that breast on mammo and US.  The pain started almost a year ago when I miscarried so I initially thought it was the hormones. I'm also hypothyroid which has not been easy to regulate this year. My BS believes it is related to the hormone flucuations. She recommended as aspercream which I bought but can't seem to bring myself to rub on my boob every day. She also recommended 3000 mg of evening primrose per day. After researching this vitamin it seems to have many benefits including helping with breast pain. I've only been on it a week so I have not determined for myself how useful it is but thought maybe others would like to try too.  

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Apr 20, 2014 06:27PM Sillypeanutgal wrote:

Hi, everyone.  I know this is an old thread, but I was wondering if any of you had heard anything about what caused this pain. I'm 21 years old and I'm having the same pain from my left breast, under my arm, and in my shoulder blade. I have been taking vitamin D supplements for months due to SAD, but this pain started a few days ago. I have been on the Nuvaring for a few years and have no family history of breast cancer. I was just wondering if you think I should get it checked out or just wait it out?

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Apr 20, 2014 07:01PM MelissaDallas wrote:

Pain like you are describing is pretty typical hormonal breast pain. Also:

"The most common side effects of NuvaRing (etonogestrel/ethinyl estradiol vaginal ring) are:

  • Tissue irritation inside your vagina or on your cervix
  • Headache (including migraine)
  • Mood changes (including depression, especially if you had depression in the past). Call your health care provider immediately if you have any thoughts of harming yourself.
  • NuvaRing problems, including the ring slipping out or causing discomfort
  • Nausea and vomiting
  • Vaginal discharge
  • Weight gain
  • Vaginal discomfort
  • Breast pain, discomfort, or tenderness
  • Painful menstrual periods
  • Abdominal pain
  • Acne
  • Less sexual desire"
LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Apr 26, 2014 06:43PM BandJ5 wrote:

Did you ever find out what was causing your symptoms?

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Jan 10, 2015 07:42AM Flick1971 wrote:

I'm going through the same thing....I have calcification and fibrocyctic breast disease! Constant mammo's and biopsy....always comes back good, but the pain just seems to get worse every year!!!!! Now it runs around my back, shoulder blade....use to worry constantly, but now just want the pain to stop!!!! Anyone know anything about the use of iodine to help or anything???? Hel

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Jan 11, 2015 02:13PM Flick1971 wrote:

going through the samething...my breast pain has gotten much worse! It now goes under my arm to my shoulder pain!!! Anyone tried using iodine therapy???

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Jan 26, 2015 10:45PM positive1978 wrote:

I passion I have the exact same symptoms in all the same spots. Left breast pain, armpit pain, collarbone, and left bottom rib cage so weird we are all experiencing this! Let's keep each other posted of info and any insightswe come across

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Aug 14, 2017 01:06PM Bookie wrote:

Hello... what was your diagnosis? Am having the same pain now but no solution yet after scan returned normal

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Aug 14, 2017 02:50PM MTwoman wrote:

bookie, this is a pretty old thread, so no one may respond to your question, but there is a very good post here about pain (after diagnostic work up shows "normal"): https://community.breastcancer.org/forum/83/topics/857903?page=1#idx_2

Good luck!

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right

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