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Topic: It looks like breast cancer

Forum: Not Diagnosed But Worried —

Breast cancer symptoms vary widely. According to the American Cancer Society, in addition to a lump, breast cancer symptoms can include swelling, skin irritation, dimpling, breast pain, changes to the nipple, thickening of the breast skin, or unusual nipple discharge. Still, some breast cancers cause no symptoms at all. Note: Please do not post pictures of your symptoms. It's important to have anything unusual checked by your doctor

Posted on: Aug 15, 2016 12:42PM

0pacer wrote:

My Mother just got back from the hospital this morning and they told her it looks like she has breast cancer. She went in because she was told she had an abnormality in her results from her mammogram.

She has no lumps or symptoms of any kind. The doctor said it appears to have not spread to the glands or lymph nodes. Thank God! She has to go back next Tuesday for her treatment options.

If it's not in the glands, what is the outlook

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Aug 15, 2016 01:12PM Moderators wrote:

Hi, and welcome to Breastcancer.org. Did you mom get a biopsy or additional diagnostic tests in addition to a mammogram? Did they do a lymph node dissection?

We are thinking of you and your mom!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Aug 15, 2016 01:15PM mkkjd60 wrote:

Take a breath! I was right where you were. My mom also had bc. If it is not in the lymph nodes but contained in the breast, the outlook is favorable and it would appear to be early stage. Good luck and let us know. Mary

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Aug 15, 2016 03:37PM 0pacer wrote:

Hi guys. Thanks for the kind words. She did have a biopsy today. The doctor said it does not appear to be in the glands. They'll know more when she gets the results of the biopsy next Tuesday.

I know it's only her right breast. The nurse also told her it's very very small.

I'll let you all know.

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Aug 22, 2016 05:28PM 0pacer wrote:

Hi guys,

My Moms appointment with the surgeon is tomorrow morning at 10:50am. I just got in contact with a nurse who specializes in caring for breast cancer patients. She is in close contact with the cancer care centre.

She looked at my Moms report and she said it appears to be two tiny masses that are 8mm. Which is less than half an inch. She said it's the type of cancer that grows slowly. She said that it appears to be early. That's reassuring.

She's and us kids will be meeting with the surgeon tomorrow to discuss her treatment options. This surgeon is excellent according to many.

Also, does it matter if the cancer is deep? Or is it more the size of the tumour that's important?

Thanks guys

Claude

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Aug 22, 2016 05:37PM - edited Aug 22, 2016 05:38PM by marie5890

Hi Claude,

Glad someone has been in touch with you.

Depth doesn't matter. Size does when it comes to staging ( I, 2,3 ,4) and also something known as "grade" (1,2,3). Grade has to do with whether it's fast, slow or intermidiate in growth. Also "type"...

The fact that your mother's is indeed very small and slow growing is a good thing. Means it was caught early. What did her biopsy results say? Get a copy of the pathology report.



Jan '11 Biopsy Dx-ed a PASH tumor (rare, but benign tumor)....All I ask is for peace and serenity to the depths of my soul. Makes the rest of life more live-able.
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Aug 23, 2016 05:54PM 0pacer wrote:

Hi guys,

We just got back with a visit to the surgeon to discuss my Mom's treatment options. She has grade 1 invasive lobular cancer. The fact that it's grade 1 is reassuring.

We decided that she will get a mastectomy with reconstructive surgery. Her right breast will be removed. We can expect a call next week and we can anticipate that the surgery will take place at the end of September or early October.

There they will examine her sentinel lymph node. The surgeon did a physical exam to check her lymph nodes. They aren't swollen or anything, which is a good thing.

My Mom is emotional right now. I'm praying for the best.

Anyone else have gone through this type of cancer. I'd like any advice. Thanks.

I'll keep you all posted.

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Aug 23, 2016 06:22PM marie5890 wrote:

Here is the ILC forum link that will connect you with others who have and are dealing with ILC. They will be very helpful .....Good to hear that it's grade 1

Good luck to her and your family.

Jan '11 Biopsy Dx-ed a PASH tumor (rare, but benign tumor)....All I ask is for peace and serenity to the depths of my soul. Makes the rest of life more live-able.
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Aug 23, 2016 06:32PM 0pacer wrote:

Thanks so much. I appreciate it.


Claude

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Aug 23, 2016 06:39PM Smurfette26 wrote:

Hi 0pacer. I'm almost 12 months out from my ILC diagnosis. My cancer was multi-focal (4 tumours) in my right breast so mastectomy was my only surgical option. I chose not to have reconstruction and I'm still happy with that decision. What type of reconstruction has your Mum decided on? My cancer was all Grade 1 and although low grade cancers don't respond as well to chemo I did have 4 rounds of Taxotere/Cytoxan. I didn't have an Oncotype DX test as it's not covered by Medicare here in Australia but make sure your Mum requests one. A low score will usually mean being able to skip chemo which was, for me, far worse than surgery. I had 1 positive node which also influenced my decision. I didn't have radiation. ILC is a sneaky cancer and tumours often turn out to be larger than they appear on imaging. Prior to surgery my largest tumour was thought to be 2cm but after surgery was measured at 4.2cm. Request copies of all pathology and test reports. You will gather information and learn more as you go. Once you have more info such as ER/PR and HER2 status and you have a plan in place it does get easier. Sending big hugs to your Mum. May I ask how old she is?

Please feel free to private message me if you have any questions. Donna.

Dx 9/12/2015, ILC, Right, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 10/9/2015 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy 11/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/13/2016 Arimidex (anastrozole)
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Aug 23, 2016 07:34PM 0pacer wrote:

Hi Donna,

Good to know you're doing well

My Mom is 65 years old. They found two tumours that are are 8mm in length. But what is in between those tumours is uncertain.

That's exactly what the surgeon told us today. ILC is sneaky and is often larger than expected.

My Mom had initially decided to go with the mastectomy with reconstructive plastic surgery where they take tissue from her abdomen and put it on where the mastectomy took place; however she's reconsidering because of the potentially longer recovering period. The nurse also said she can have the mastectomy and choose to do the reconstructive surgery later.

For me, the most important thing is having the surgery and getting the cancer out.

Were you able to feel your any of your 4 tumours? My Mom didn't feel a thing. That's why this is so shocking.

Claude

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Aug 23, 2016 10:07PM Smurfette26 wrote:

I had no clue I had breast cancer. Absolutely no symptoms. Went for a routine screening mammo and got a call back. Even after a diagnostic mammogram and ultrasound the specialists at the breast clinic couldn't feel a palpable lump. Though they could see it on the imaging. Lobular cells form in "sheets" or spider web formations. They don't form a "typical" breast cancer lump meaning it is often remains undetected for a long time. Given that my cancer wasn't aggressive (Low Grade and HER2 Neg) and my Ki67 (cell proliferation rate) was low it's probably safe to say that my cancer had been growing for years.

Of course my surgeon discussed my reconstruction options but for me, I wanted to come through the surgery as "easily" as possible. I wanted to be strong going into chemo and I didn't want multiple surgeries. My surgeon said, "Remember it is not a breast. It will never be a breast with feeling and sensation". He wasn't trying to dissuade me, just inform. As the nurse said it can be done later. It's a very personal decision and your Mum has to decide what is right for her. She has a tough time ahead but obviously she is blessed with an amazingly supportive family. She can do this.

Thinking of you all.


Dx 9/12/2015, ILC, Right, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 10/9/2015 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy 11/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/13/2016 Arimidex (anastrozole)
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Aug 27, 2016 05:11PM 0pacer wrote:

The results for my Mom's ER and PR hormones are in. They are both positive; which is a good thing.

Not sure what HER2 means? When does your HER2 results come in and what does it mean if its positive or negative?

When do they determine your Ki67 (cell proliferation rate)?

Claude

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Aug 27, 2016 10:02PM Smurfette26 wrote:

Hi Claude,

Thanks for the private message I will reply when I have a little more time. ER/PR+ is good yes. Your Mum will take an AI after her other treatment. I got my HER2 status at my surgical follow up appointment, approx 2 weeks after mastectomy. HER2 + cancers are more aggressive and require additional targeted therapy. My surgical pathology report contained my Ki67 rate but not all do.

http://www.breastcancer.org/symptoms/diagnosis/her...

Hope this helps. Donna.


Dx 9/12/2015, ILC, Right, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 10/9/2015 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy 11/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/13/2016 Arimidex (anastrozole)
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Aug 28, 2016 11:28AM - edited Aug 28, 2016 04:41PM by nihahi

It might be helpful for your Mom to visit the Diep threads, and get some feedback from those women regarding immediate vs delayed reconstruction. I'm sure those women would have some information regarding that, from their experiences. Both choices will mean drains, incisions, restricted movement, and recovery....and some consideration should be given to how many times she wants to go through that "experience". I was your Mom's age when I finally had my flap recon, and it honestly wasn't a difficult recovery. Tiring, yes, but not horrific. I wouldn't have found it any easier though, if I had been months or years older....something to consider, especially at your Mom's age.

Is your Mom still working, or needing a rapid recovery for other reasons??? For some women, that is a valid reason to delay recon. I'm not sure where she lives, but for some regions and in some countries, delaying recon relegates you to a rather long wait list, it's not always as simple as saying "ok, I'm ready now". Immediate recon tends to move you to the front of the line, because the tumour is still "present". That might be something to ask her surgeon.

I understand your feelings of "just want it out", but I do hope your Mom is being encouraged to make her decisions (with your support of course) as to what feels best for her personally. I can "hear" the concern and caring in your messages, but these are not "group decisions". Delaying recon is most certainly doable, and can be delayed for any length of time, (some women never recon and are happy with that choice) but it also means adding more surgery at later dates, and often (not always) immediate recon is a better cosmetic result with less emotional distress....ie, you wake up with "something" there, instead of months/years of nothing.

Just some things to consider........It's a personal choice for everyone, and I wish your Mom successful surgeries and gentle healing, whatever her choices may be. It sounds like she has a wonderful daughter, and you can go a long way into making all this "doable" for her.

Editing to apologize.... I assumed you are her daughter... After rereading your "signature" I realized I could be wrong. Whatever... It's obvious that you care for your mom.


"Comparison is the thief of joy" Dx 10/1991, IDC, 2cm, Stage II, 0/7 nodes, ER+/PR- Surgery 11/7/1991 Mastectomy: Right Chemotherapy 11/29/1991 Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex) Hormonal Therapy 5/31/1992 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/7/1992 Reconstruction (right) Surgery 5/7/1997 Reconstruction (right) Surgery 4/12/2013 Reconstruction (right): Free TRAM flap Surgery 1/8/2014 Reconstruction (right) Surgery 4/14/2014 Reconstruction (right): Nipple reconstruction
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Aug 28, 2016 06:33PM 0pacer wrote:

Thanks for all the advice guys! Thanks Donna for educating me about all diagnostics. I had no clue and I'm learning a lot. Thanks nihahi for giving me advice regarding breast reconstruction. It is my Mom's decision and I think she's pretty much decided to go for the breast reconstruction right away. I always said whatever she decides is good with me. My Mom is 65 and she is pretty strong. She walks at least 6km on most days. She is retired.

It's funny, I have an aunt who was diagnosed with ILC in 2012 at the age of 65. She did the reconstruction and went through chemo and radiation. It's been 4 years and no cancer. Thank God for her. She's a good support. They are married to brothers; there's no relation between them.

I'll keep you all posted.

Claude

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Aug 29, 2016 09:42AM nihahi wrote:

Sending good wishes to you and your Mom......again, I highly recommend that she connect (even if by just reading) the appropriate thread to gain support and insight into what to expect, how to prepare, and adjusting to life after recon surgery. No one has better, more honest information and understanding than someone who has gone through it themselves.

"Comparison is the thief of joy" Dx 10/1991, IDC, 2cm, Stage II, 0/7 nodes, ER+/PR- Surgery 11/7/1991 Mastectomy: Right Chemotherapy 11/29/1991 Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Methotrexate (Amethopterin, Mexate, Folex) Hormonal Therapy 5/31/1992 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/7/1992 Reconstruction (right) Surgery 5/7/1997 Reconstruction (right) Surgery 4/12/2013 Reconstruction (right): Free TRAM flap Surgery 1/8/2014 Reconstruction (right) Surgery 4/14/2014 Reconstruction (right): Nipple reconstruction
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Sep 2, 2016 12:22AM 0pacer wrote:

Hi Guys!

My Mom got a call today and she's scheduled to meet with the plastic surgeon on Wednesday Sept. 07. There she will have a good idea when the surgery date will be. I think she's pretty much decided to go through with this. After about a week of not sleeping well, she had a good 7 hours last night. Her doctor prescribed her sleeping pills; something she has never taken up until now. She also did clothes shopping with my sister for post surgery. They also got a small table with two drawers to put surgical gloves, gauze, bandages etc.

My Aunt went though the same procedure in 2012 and she said after meeting with the plastic surgeon and doing tests, you will arrive at the surgery date in no time.

The ball has started rolling and we're getting prepared day by day.

Claude

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