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Topic: New and awaiting diagnostic mammo/us

Forum: Not Diagnosed but Worried —

Meet others worried about developing breast cancer for the first time. PLEASE DO NOT POST PICTURES OF YOUR SYMPTOMS. Comparing notes, symptoms, or characteristics is not helpful here, as only medical professionals can accurately evaluate and assess your individual situation.

Posted on: Jul 16, 2017 10:48AM

queenofwands wrote:

Hi everyone,

First of all, thank you of the warmth and wisdom I've already seen here...I've been reading for a few days and without even knowing it you guys have talked me off a ledge. (Sort of. At least I've stepped back a few paces.)

About a week ago, I raised my arms over my head to put my hair up before a shower and saw a dimple on my inner right breast. I realized I had seen it before when it was smaller and I just chalked it up to an indentation from my bra. I did a self-exam and sure enough, there's a lump there. Then I remembered with dread that last September after my annual mammo, they called me back in for another look at a suspicious area on this same breast. At the time the radiologist determined that it was just dense tissue and sent me on my way. I'll tell you what, I'll be really pissed off if it turns out I've been growing a tumor all this time.

I did have a lump in a different spot on that same breast several years ago, which turned out to be a complex cyst that I had to have drained and biopsied -- all clear. But that was pre-menopause and now I'm post. And that one didn't cause any dimpling.

I went to my doctor immediately and she's extremely concerned, looked up last year's mammo report and is thinking the same thing I'm thinking. She actually said she wished she could take a pic of it so she could show her patients what to look for. She wanted to get me to the breast center the very next day for a diagnostic mammo and ultrasound, but they can't take me until the 27th! She told me to call them every day in the morning and see if there are any cancellations, which is obviously a tortuous way to live the next two weeks.

I'm praying it's just another cyst but this one feels different. I have a 15-year-old son who lost his daddy 7 years ago. He CAN'T lose me too. He just can't. If this is cancer, my inner warrior goddess is going to rise up and fight.

Thanks for listening and being here. I'll keep you all posted

Dx 8/4/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/15/2017 Lumpectomy: Right; Lymph node removal: Sentinel
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Jul 16, 2017 09:31PM Moderators wrote:

Dear queenofwands, We are so sorry that you are dealing with this change in your breast and the worry that it brings. It sounds like you have more than enough to manage but we are glad that you are being proactive. The advice that your doctor gave you about calling for possible cancellations is most likely what our members might say as well. We are here for you. Please keep us posted. We are sending positive thoughts for a benign result for you but do keep us in the loop. The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jul 16, 2017 11:02PM JudyGG wrote:

Sorry you are here.  Your profile does not indicate where you live but might consider getting a consult in a larger city, or a specific cancer center.  Also, INSIST on an MRI.  If you read much here, you will see how many were missed by ALL types of mammograms and found with an MRI.

No matter the result, better to know.

JudyGG
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Jul 17, 2017 08:13AM queenofwands wrote:

Thank you so much! I'm in Myrtle Beach JudyGG...haven't even begun to research where is the best place to go. For now they're sending me to the breast center attached to the largest hospital in the area. I'm guessing Charleston will have better resources if and when I need it. The good news is, they can get me in tomorrow!

Dx 8/4/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/15/2017 Lumpectomy: Right; Lymph node removal: Sentinel
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Jul 17, 2017 08:54AM muska wrote:

Hi Queen, I am sorry you got this scare. It's great you got an appointment tomorrow and don't have to wait much longer. The diagnostic process is mostly standard and you are familiar with it because you went through it in the past. Based on what you described it's too soon to get worried. It might be you have another cyst, it is not necessarily cancer. Get it checked by biopsy if needed.

To the previous poster: I don't think patient should insist on anything at the very beginning of the diagnostic process. The only thing I would ask about if I had dense breasts would be 3D mammogram - instead or in addition to traditional mammo if the latter is inconclusive.

@Queen: good luck to you and remember the odds are in your favor

Dx at 54 Dx 5/9/2013, DCIS/IDC, Right, <1cm, Stage IIIA, Grade 3, 7/11 nodes, ER+/PR+, HER2- (FISH) Dx 6/13/2013, LCIS, Both breasts Surgery 6/13/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/25/2013 AC + T (Taxol) Surgery 2/20/2014 Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/12/2014 Arimidex (anastrozole) Radiation Therapy 3/23/2014 Breast, Lymph nodes, Bone
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Jul 17, 2017 11:00AM MTwoman wrote:

JudyGG, I agree with muska, it is way too soon to be demanding mri. She has just been referred for a diagnostic. They may find a very reasonable (and b9) explanation for her dimple. There are women who come here with similar symptoms who get b9 results all the time. And Judy, "if you read here" this is a breast cancer forum, what you're reading here are stories of women who ultimately got diagnosed with breast cancer. If all you read is "here" that is what you'll find. It doesn't mean that it "happens all the time", as you AREN'T reading all of the stories from the women who don't post here, i.e. had their mammos and didn't have bc.

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jul 17, 2017 04:04PM djmammo wrote:

QoW

The ultrasound should tell the story. If there is a worrisome finding there they will biopsy it, some places will schedule that, others will offer same day bx. If that comes back abnormal the next step is an MRI which is pretty much pre-op standard of care with breast surgeons everywhere I have practiced. If they don't want to do a pre-op MRI thats when you should become insistent. If there is more than one problem you want to know ahead of time. It will also show the other breast and the axillary and internal mammary lymph nodes on both sides.

Board Certified Diagnostic Radiologist specializing in Breast Imaging helping members understand their health care provider's reports and recommendations.
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Jul 17, 2017 09:02PM capricorn0106 wrote:

Dear queen, I'm a mother of two boys, understand how you feel. Love your altitude to fight for it. But most of the time, when you prepare for the worst it turns out to be the best result. Wish all the best to you

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Jul 18, 2017 08:56AM queenofwands wrote:

Okay, thank you all, breathing a little easier now. My mind is doing crazy things, getting waaaaay ahead of myself. (Note to self: for the love of god, stop googling.) My appt is not until later today, and I have plenty of errands to keep me occupied until then.

I'll report back tonight.

Dx 8/4/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/15/2017 Lumpectomy: Right; Lymph node removal: Sentinel
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Jul 18, 2017 10:26AM thebbmurphy wrote:

I have a partner who had a mammogram that shows calcifications, and they want to do more imagining. I looked up what calcification could mean, and understand that usually it's benign, but I am worried because she had to have a biopsy done last year due to a small lump, which turned out to be benign. I have to say I am more concerned because she finished 6 months of chemotherapy for stage 1 ovarian cancer this past May, and she has had a CT scan and it came back clean. I just want to be positive for her.

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Jul 18, 2017 01:40PM mommakat wrote:

sending positive vibes to you QoW! Glad you were able to get earlier. That was a smart move calling every day. Good luck!

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Jul 18, 2017 05:09PM queenofwands wrote:

Ok, they did the mammo and then sent me immediately for an ultrasound. The radiologist was right there in the room and said there was definitely something there and it wasn't a simple cyst but it could be a complex cyst. I'd told him I had one before. He said in cases like this, where they see solid stuff in there too, they see if they can drain it and do a needle biopsy. This is all exactly what I experienced last time so far, very deja vu, so I feel a little better. He said it was close to the surface of the skin and there wasn't much blood flow to it, which I guess is a good thing?

The only difference is that the cyst I had several years ago didn't create an indentation in the skin like this one is doing, but I'm trying not to focus on that. It was in a different spot, and disappeared immediately after they drained it.

They're calling me tomorrow to schedule the biopsy asap, so I'll be headed over to the Waiting for Results board.

Thank you for all your support!

Dx 8/4/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/15/2017 Lumpectomy: Right; Lymph node removal: Sentinel
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Jul 18, 2017 05:57PM MTwoman wrote:

So glad you won't have a long wait to get answers!

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jul 20, 2017 10:25AM queenofwands wrote:

Well now there's a wrench in the works. The Breast Care Navigator called me yesterday, I assumed to schedule the biopsy, but instead she told me that my doctor's office prefers to refer patients to a consult with a breast specialist before scheduling any biopsies. This, even though the radiologist definitely recommended one.

I called my doctor right away, but it was late in the day and I got voice mail. Now here it is after 10 am and nobody has called me back yet. (They even said in the voicemail to please only leave one message, so I guess they're not famous for timely callbacks.)

This is so frustrating! Are these kinds of office-shuffling shenanigans typical? Is a consult with a breast specialist first a good thing? Although I fear more waiting...God only knows how long it will take me to get an appt.

Dx 8/4/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/15/2017 Lumpectomy: Right; Lymph node removal: Sentinel
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Jul 20, 2017 01:11PM MTwoman wrote:

Oh gggrrr QOW, that would be frustrating. I didn't encounter such "shenanigans", so cannot comment on whether they are typical. I don't necessarily think that having a breast specialist involved is a bad thing, in that they are very experienced in being able to collect all of the info to date (images, reports etc) and add that to their own exam and make an expert recommendation (which may be the same as the radiologist :/ ) I do hope that it doesn't increase your wait time significantly. I would pursue having your doctor speak directly with the radiologist, as it might save some time. Good luck and please do keep us informed.

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Jul 21, 2017 08:24AM NotVeryBrave wrote:

My OB/GYN office also prefers to have their patients see a BS before a biopsy is done. Not exactly sure why, but it was helpful. The BS went over all of the images and explained what was concerning.

In my case - there was no delay. The imaging was done on a Wednesday and both the BS visit and the biopsy were done two days later.


TCHP x 6 rounds - Complete Pathological Response! Still have to finish the year of Herceptin ... Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 12/19/2016 Perjeta (pertuzumab) Surgery 5/9/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/9/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 21, 2017 01:02PM Bellapam wrote:

Hang in there Queenofwands! I just got my appointment for the mammogram and US this morning, too. It is on the 26th, so we are both having a tough week! You already have the right attitude, though. Hopefully, you won't need your ass-kicker boots, but it is always wise to have them polished and ready.

Best wishes, sending you healing thoughts!

My results were benign! The members of BCO have been a great comfort during my testing and dx, so I want to stay around to "pay it forward" however I can.

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