Topic: Breast Cancer Risk Assessment Tool

Forum: Not Diagnosed But Worried — For those who are experiencing symptoms or received concerning test results, but haven't been diagnosed with breast cancer.

Posted on: Aug 11, 2017 08:24AM

Posted on: Aug 11, 2017 08:24AM

djmammo wrote:

from Cancer.Gov Risk Assessment Tool

Board Certified Diagnostic Radiologist specializing in Breast Imaging. Contact me at
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Apr 22, 2020 08:46PM Nikki001 wrote:

thank you!!

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Apr 22, 2020 10:52PM - edited Apr 23, 2020 09:19AM by mountainmia

I don't know how useful this is in general. I ran it using my pre-diagnosis answers, and it said I would be calculated as having below-average risk. If you were to look at a variety of other risk factors, including my weight, exercise, eating habits, and on and on, all of those factors would put me below average. I would take it with a huge grain of salt.

EDITED to add: there is no reason this would be a good calculator. As it says specifically, "Factors included: patient's personal medical and reproductive history and the history of breast cancer among her first-degree relatives (mother, sisters, daughters)."

So factors include age, race, age of first menstruation, age of first childbirth, and some evidence of genetic mutation, either shown by BRCA1 or BRCA2, or by having a first degree relative with breast cancer. From, "About 5% to 10% of breast cancers are thought to be hereditary, caused by abnormal genes passed from parent to child."

So the main defining variable this calculator uses is one that affects a small number of women.

Unfortunately, while there are many variables that seem to lend more or less risk, it seems that the main factor for why most of us get breast cancer is random shitty luck.

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Apr 23, 2020 03:28AM - edited Apr 23, 2020 03:28AM by alicebastable

Mine was just a slightly elevated risk, and based on the age I entered for 2018 when I was diagnosed, it was just a shade higher than average for the first five years. Ha! It seems pretty useless to me.

Ignore treatment info (below) which is a BCO glitch. Do not enter personal information on this site since they grossly mishandled a data breach.
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Apr 23, 2020 05:45AM rah2464 wrote:

Thank you Dr Mammo for posting this. Out of curiosity I put in my information and my risk while still small was almost double the average risk. I think it highlights once again that we are missing some key parts of the breast cancer puzzle.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 6/27/2018 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 23, 2020 09:08AM summerangel wrote:

All simple calculators like this put me at a low risk if I enter the data as it was when I was diagnosed (1% chance in the next 5 years for this one). I did find a calculator once that took into account 2nd and 3rd degree relatives, and it gave me a slightly elevated risk because of that, which was interesting. My mother and sisters have never had BC, but my dad's side does have it. My only aunt on that side, a cousin on that side (also in her 40's), and my great-grandmother on that side (again, in her 40's).

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 3/27/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 6/1/2015 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right) Surgery 6/1/2015 Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Surgery 8/28/2015 Reconstruction (Left): Fat grafting, Silicone implant; Reconstruction (Right): Fat grafting, Silicone implant Surgery 12/4/2015 Reconstruction (Left): Fat grafting, Nipple reconstruction; Reconstruction (Right): Fat grafting, Nipple reconstruction
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Apr 23, 2020 01:01PM jinx27 wrote:

Thank you for this,

Id have to say that these tools sometimes dont take alot into consideration especially as a young patient.

I was told by two Dr's that my aunt having BC wouldn't put me at risk but in fact it did, there is definitely a heredity link to my cancer.

Just yesterday the guidelines for risk assessment were updated by three professional organizations have put out guidelines on how to treat and manage breast cancer in people with a genetic mutation linked to a higher risk of the disease. Guess what it now included in the genetic mutation guidelines? Aunts of course.

This just proves that there is alot that physicians, patients and researchers are still figuring out about cancer.

Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible mutation. 5-10 yrs hormonal therapy 08/31/2016 Tamoxifen, 02/01/2017- 06/10/2021 AI + OS,Tamoxifen 08/10/2021 -current Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (Left): Free TRAM flap; Reconstruction (Right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/28/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Apr 23, 2020 01:36PM OTMom wrote:

Ha! Using my stats at diagnosis I had a .7% risk of cancer in the next 5 years according to this, and was below average lifetime risk. Defying the odds as always...

diagnosed at 41 Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/5/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/14/2019 Whole breast: Breast Hormonal Therapy 3/4/2019 Arimidex (anastrozole)

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