Posted on: Aug 12, 2017 12:24AM
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Apr 23, 2020 02:52PM - edited Apr 24, 2020 01:19AM by mountainmia
I don't know how useful this is in general. I ran it using my pre-diagnosis answers, and it said I would be calculated as having below-average risk. If you were to look at a variety of other risk factors, including my weight, exercise, eating habits, and on and on, all of those factors would put me below average. I would take it with a huge grain of salt.
EDITED to add: there is no reason this would be a good calculator. As it says specifically, "Factors included: patient's personal medical and reproductive history and the history of breast cancer among her first-degree relatives (mother, sisters, daughters)."
So factors include age, race, age of first menstruation, age of first childbirth, and some evidence of genetic mutation, either shown by BRCA1 or BRCA2, or by having a first degree relative with breast cancer. From breastcancer.org, "About 5% to 10% of breast cancers are thought to be hereditary, caused by abnormal genes passed from parent to child."
So the main defining variable this calculator uses is one that affects a small number of women.
Unfortunately, while there are many variables that seem to lend more or less risk, it seems that the main factor for why most of us get breast cancer is random shitty luck.
Apr 23, 2020 07:28PM - edited Apr 23, 2020 07:28PM by alicebastable
Mine was just a slightly elevated risk, and based on the age I entered for 2018 when I was diagnosed, it was just a shade higher than average for the first five years. Ha! It seems pretty useless to me.
Apr 23, 2020 09:45PM rah2464 wrote:
Thank you Dr Mammo for posting this. Out of curiosity I put in my information and my risk while still small was almost double the average risk. I think it highlights once again that we are missing some key parts of the breast cancer puzzle.
Apr 24, 2020 01:08AM summerangel wrote:
All simple calculators like this put me at a low risk if I enter the data as it was when I was diagnosed (1% chance in the next 5 years for this one). I did find a calculator once that took into account 2nd and 3rd degree relatives, and it gave me a slightly elevated risk because of that, which was interesting. My mother and sisters have never had BC, but my dad's side does have it. My only aunt on that side, a cousin on that side (also in her 40's), and my great-grandmother on that side (again, in her 40's).
Apr 24, 2020 05:01AM jinx27 wrote:
Thank you for this,
Id have to say that these tools sometimes dont take alot into consideration especially as a young patient.
I was told by two Dr's that my aunt having BC wouldn't put me at risk but in fact it did, there is definitely a heredity link to my cancer.
Just yesterday the guidelines for risk assessment were updated by three professional organizations have put out guidelines on how to treat and manage breast cancer in people with a genetic mutation linked to a higher risk of the disease. Guess what it now included in the genetic mutation guidelines? Aunts of course.
This just proves that there is alot that physicians, patients and researchers are still figuring out about cancer.
Apr 24, 2020 05:36AM OTMom wrote:
Ha! Using my stats at diagnosis I had a .7% risk of cancer in the next 5 years according to this, and was below average lifetime risk. Defying the odds as always...
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