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Topic: waiting...worrying...waiting...worrying

Forum: Not Diagnosed But Worried —

Meet others worried about developing breast cancer for the first time. PLEASE DO NOT POST PICTURES OF YOUR SYMPTOMS. Comparing notes, symptoms, or characteristics is not helpful here, as only medical professionals can accurately evaluate and assess your individual situation.

Posted on: Jun 5, 2018 02:38PM - edited Jun 5, 2018 02:42PM by kangcongrl

kangcongrl wrote:

I like to think I'm the kind of person that doesn't worry to much about things beyond my control... my mother has always had a lot of health issues and I always repeat" don't worry, don't put the added stress on yourself"  and here I am waiting and worrying.

on 5/29/18 I went for a  3D mammogram screening and received the call back, they scheduled me for the next day to come in, but my doctors office was closed and they could not get the referral letter and rescheduled me for 6/7, so I impatiently waited the weekend and now I only have one more day to go, but it is driving me nuts.

44 year female   my report reads that I have heterogeneously dense breast 

under findings: the left cc view there is a rounded asymmetry with associated architectural distortion in the posterior left breast. it is suspected that this corresponds to an area of asymmetry at approximately the 3 o'clock position. recommend spot compression tomographic images and ultrasound is necessary. no other suspicious mass or microcalcification are identified in either breast.

I'm a little nervous because I have a pretty good sized indentation (about the size of a half dollar now) that appears when I raise or move my arm in a forward motion. I didn't mention the indent to my new doc or mammo tech because I was told by family doc once it looked like it could be cellulite, so I figured since I'm older and have a couple pounds on me since then that that is the reason why it looks bigger because I am... but now I'm starting to think the indent has something to do with this architectural distortion... am I just reading to much google... should I be a little nervous...am I crazy.... arrrr. I guess I need reassurance, I know the chances of BC are slim so why these emotions? Anyway, I guess I just needed to tell someone

thanks for letting me share.


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Jun 15, 2018 01:51PM nonomimi5 wrote:

Kwillie - Glad the biopsy is done. Hang in there. Everything is going to be fine. We are here for you.

Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/29/2018 Breast Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 19, 2018 07:59AM kangcongrl wrote:

KWilli, how are you? have you received your results?

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Jun 20, 2018 10:06PM KWilli wrote:

hey! I will receive my results with my GP on Monday. I meet with the breast surgeon on July 3.

How about you? Did you get your insurance figured out? Have you had the biopsy??

Dx 7/2018, IDC, Right, 6cm+, Grade 3, ER-/PR-, HER2- Chemotherapy 8/13/2018 AC + T (Taxol) Surgery 1/8/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Jun 21, 2018 03:38PM kangcongrl wrote:

Insurance is what it is, lucky I'm 44 and this is the first time I have had any kind of issue... Had my biopsy today, I turned to doc and said give it to me straight with similar cases what are my odds... he was honest and said he felt like it was 50/50 chance, I said that's not so bad I'm a pretty lucky girl!! hopefully the results don't take to long, still hate the wait.

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Jun 21, 2018 05:22PM KWilli wrote:

oooh! 50/50 is something to hold onto girl! Did they give you a date for results?

You can always wait with wine....

Dx 7/2018, IDC, Right, 6cm+, Grade 3, ER-/PR-, HER2- Chemotherapy 8/13/2018 AC + T (Taxol) Surgery 1/8/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Jun 26, 2018 10:46AM KWilli wrote:

I saw my family doc yesterday to get the results of my biopsy. I wish it were different; however, it's named and less scary now (if that makes sense). I have "Invasive Ductal Carcinoma". I see the breast surgeon on the 3rd to go through treatment options and get the remaining info (stage, grade, hormone receptors, etc).

Hopedreams; ShellShell69: not sure where all of this went for you; I hope all of the best and that means that you were B9.

Kangcongrl: I hope you don't have to wait too much longer to hear the outcome. I want to hear what's happening with you, please keep me posted. xo

Dx 7/2018, IDC, Right, 6cm+, Grade 3, ER-/PR-, HER2- Chemotherapy 8/13/2018 AC + T (Taxol) Surgery 1/8/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Jun 26, 2018 10:50AM nonomimi5 wrote:

KWillie

I am so sorry for the bad news. We were all there once and we got through it. Keep us posted. Youwill be fine. You got this!

Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/29/2018 Breast Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 26, 2018 12:19PM KWilli wrote:

Thank you nonmimi5! You have all been there. BOO! It's true; though. I got this.

Dx 7/2018, IDC, Right, 6cm+, Grade 3, ER-/PR-, HER2- Chemotherapy 8/13/2018 AC + T (Taxol) Surgery 1/8/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Jun 26, 2018 01:13PM kangcongrl wrote:

KWilli,

I'm very sorry to hear your news, I hope that you stay on and learn from all these amazing women and gain the strength that you need for the road ahead. My heart goes out to you and my thoughts and prayers are with you.

I recieved my results today and feel so very fortunate that they are B9. A MRI and another Mammo in a few months just to make sure but I'm not going to let that worry me, I know it is set up just as a precaution.

Just going through this experience has changed me, and I have so much respect for the women who were not as fortunate as I am to get the B9 result. Good luck and best wishes to you KWilli.

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Jun 26, 2018 05:33PM KWilli wrote:

YAHOOOO!! B9 is the best news! Congratulations! I’m truly happy for you and wish you all the best!

Dx 7/2018, IDC, Right, 6cm+, Grade 3, ER-/PR-, HER2- Chemotherapy 8/13/2018 AC + T (Taxol) Surgery 1/8/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left
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Jun 26, 2018 07:29PM nonomimi5 wrote:

kangcongril. That's awesome! Congrats

Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/29/2018 Breast Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 4, 2018 12:06PM Cathy1975 wrote:

I had Two core biopsies done yesterday on my right breast. A mass and a lesion. Very sore yesterday and today. Ice packs are helping some. They said I can take the bandages off after 24hrs. Couldn't sleep last night from the soreness and worry. I will find out my results next Tuesday. Feels like forever!!! Surgeon said she doesn't think it's malignant but have to wait on biopsies because there's still a 20% chance. Worried but trying to stay positive

Cathy Dx Right
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Jul 4, 2018 12:29PM Cindymb wrote:

Cathy,

Sounds like theres a good chance the results will be benign. 😊 However, I know how aweful the waiting is. Try your best to keep your mind occupied and come back to vent if you need to. We are here for each other!

Cindy🤗

Dx IDC
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Jul 4, 2018 02:02PM - edited Jul 4, 2018 02:09PM by Cathy1975

Cindy,

Thank you. I Know the chances are low, but I have a family history so it makes me worry. I posted my mammogram on here somewhere.

My best friends son just finished 6 months of chemo for non hodgins lymphoma. It was rough watching him go through that. He just had his 3 months workup and everything is looking great for him! ☺

The things that worry me on my mammo is Bi-Rads 4 suspicious abnormalities, irregular hypoechoic solid mass no internal vascularity 5×9.5 mm, I also have a Stellate solid lesion with mild internal vascularity 5×7.5 mm

The surgeon was very arrogant

I see in your bio that you were just diagnosed last month 😔 I'm sorry. Hopefully everything will go easy on you ❤

Cathy Dx Right
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Jul 4, 2018 02:08PM nonomimi5 wrote:

Cathy - There's nothing you can do at this point but wait. It's very hard but just try to keep your mind off it and enjoy your July 4! I am sure it's nothing, and even if it is, you're going to be fine.

Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/29/2018 Breast Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 4, 2018 02:17PM Cathy1975 wrote:

Nonomimi5,

Thank you. I see on your bio about E/R + P/R. If you don't mind me asking what does that mean? I had a hysterectomy 9 years ago and been on a lot of different patches and pills, some were estrogen and some estrogen and progesterone. I've read that my HRT could be the reason I'm going through this. Do you know if that's true?

Cathy Dx Right
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Jul 4, 2018 04:18PM nonomimi5 wrote:

Cathy- ER and PR positive are the most common type of BC. To say it simply, the cancer grows with Estrogen, so after removing the tumor and doing radiation, you can take hormone blocking drugs to prevent cancer from growing. You also can try to suppress estrogen in your body by losing weight, exercising and eating healthy, mostly plant based diet. We don't know how we got BC but taking hormone therapy, having children late in life, taking birth control pills, family history, not healthy lifestyle, not exercising, and environmental factors can all be part of it. ER/PR positive have short term treatment, but risk of recurrence grows long term. You just need to stop thinking about all this until your biopsy comes back. Stress is bad for your health.

Hormone receptor-positive (or hormone-positive) breast cancer cells have either estrogen (ER) or progesterone (PR) receptors. These breast cancers can be treated with hormone therapy drugs that lower estrogen levels or block estrogen receptors. Hormone receptor-positive cancers tend to grow more slowly than those that are hormone receptor-negative. Women with hormone receptor-positive cancers tend to have a better outlook in the short-term, but these cancers can sometimes come back many years after treatment.

Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/29/2018 Breast Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 4, 2018 04:42PM Cathy1975 wrote:

Thank you nonomimi


Cathy Dx Right
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Jul 4, 2018 04:56PM Cindymb wrote:

Cathy,

Yes i was diagnosed pretty recently, so I remember the early waiting and how difficult it is.

Dx IDC
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Jul 4, 2018 06:51PM Cathy1975 wrote:

Cindy, nonmimi,

Thank you for your kind words. I'm overwhelmed with anxiety and stress. I guess the possibility of me having cancer is too much for my husband. He just started an argument with me and packed his stuff and left. Who does that to someone they're supposed to love? I just had my core biopsies done yesterday and still hurting from those and he does this. Guess it's better to know before it's too late. I would rather go through this by myself then with someone who acts like a child and runs away... Sry for vent... Noone else to talk too about it. Happy 4th everyone!!! 😘

Cathy Dx Right
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Jul 4, 2018 11:54PM nonomimi5 wrote:

Cindy,

I am so sorry for what happened. Right now, you need to think only about yourself and take care of yourself. You don't need your husband to give you more stress. My husband is around but he doesn't understand anything I am going through and I don't expect him too. Don't expect anything and you won't be disappointed. Be strong. You're going to get through this. Praying you are B9.

Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/29/2018 Breast Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 5, 2018 09:34AM Cathy1975 wrote:

Thank you

Cathy Dx Right
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Jul 6, 2018 01:53AM Jessicalauren01 wrote:

Sorry to jump on someone else’s post! A little lost on this forum as I’ve posted my own post but can’t seem to find it anywhere.. But here I am worrying and waiting too and wondered if anyone could give me some hope...

I have found myself here based on hours of trawling through posts hoping to find a reason/answer other than BC as to why I have these symptoms.

I'm 29 years old with a little boy (nearly 3) and I noticed a change in my right areola. A change in texture and appearance- almost like a patch of lighter skin. The patch got substantially more noticeable in a short space of time and I noticed an indent- made worse when I lift my arm over my head. I didn't think anything seriously of it until I saw a fb post about dimpling and then my partner made a comment about it when he looked at my reflection in the bathroom mirror.

I went to the doctors and she did a full examination and said she could feel a lump. I was shocked to say the least as I hadn't felt it myself but I guess she knows what she's looking for.

She made an urgent referral and I have my breast clinic appt on Tuesday. I am trying to be logical and trying to think positive but the nightmares I'm having are awful.

I'm just looking for a bit of support really on here please and to gage and idea of what else it could be. Do benign tumours/cysts present themselves like this too? Could it be hormonal?

Thanks in advance

Jessica

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Jul 6, 2018 02:20AM princessfluffybritches wrote:

Cathy, sorry your husband's being an a$$.  Maybe he'll get his act together. 

Jessica I think your breast changes should be followed up on.  It could be anything.  I know how hard it is, I'm still waiting for answers .  I have to wait until Monday to hear something.  So to pass the time I got on Ebay and bought an Espresso machine.  Anything to keep my mind on something else.  I read about espresso machines for the whole day.  Tomorrow I'll have to think about where to put it and what kind of beans I want.  I know that sounds strange, but it works for me!

Surgery 7/13/2018 Targeted Therapy 7/14/2018 Ibrance (palbociclib) Hormonal Therapy 7/14/2018 Femara (letrozole) Dx 7/21/2018, ILC, Left, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2-
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Jul 6, 2018 03:53AM Jessicalauren01 wrote:

Thank you! I have my appt on Tuesday. This past week and a half seem to have dragged and I just feel like my anxieties are getting worse. I’m even feeling collarbone pain and a full a ache- which I’m im sure is psychological. I hope you don’t have to wait long! Do you have your appt soon? I’m planning my best friend’s hen at the moment so that keeps me busy, as well as my boisterous toddler...


Cathy I’m so sorry to read about your husband! Hopefully you have other family members and friends to support you! And I can see that many find this forum reassuring. Sending lots of cyber hugs to you :


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Jul 6, 2018 12:10PM princessfluffybritches wrote:

Jessica, my appt is Monday for onc. to read all the films.  

It is very hard to take your mind off potential scenarios.  Funny how I and others "feel pains" that are new, LOL.  Can't help it.  Toddlers need a lot of attention.  

Surgery 7/13/2018 Targeted Therapy 7/14/2018 Ibrance (palbociclib) Hormonal Therapy 7/14/2018 Femara (letrozole) Dx 7/21/2018, ILC, Left, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2-
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Jul 6, 2018 09:02PM Cathy1975 wrote:

Ok ladies.. I had my biopsies done Tues. Still a little tender but I'm ok. I don't see any signs of infection in the incision sites but I feel a little off today. My blood pressure is 77/55 and I have a temp of 100°. Should I be worried? See the surgeon Tuesday for my results

Cathy Dx Right
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Jul 6, 2018 09:09PM nonomimi5 wrote:

Cathy - I think you should monitor your fever very closely and if it gets worse, definitely call your doctor. Do you feel warmth on your incision

Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/29/2018 Breast Hormonal Therapy 7/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 6, 2018 09:10PM Cathy1975 wrote:

A little and I'm very fatigued today

Cathy Dx Right
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Jul 6, 2018 09:13PM - edited Jul 6, 2018 09:44PM by Cathy1975

Its been steady at 100° for 2 hours. I took my blood pressure cause I felt a lil dizzy 77/55

Just did blood pressure again and it's went up a lil99/74

Think I'm just going to try to get some sleep and check it in the morning. Goodnight Ladies

Cathy Dx Right

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