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Topic: Indentation has gotten bigger

Forum: Not Diagnosed But Worried —

Meet others worried about developing breast cancer for the first time. PLEASE DO NOT POST PICTURES OF YOUR SYMPTOMS. Comparing notes, symptoms, or characteristics is not helpful here, as only medical professionals can accurately evaluate and assess your individual situation.

Posted on: Nov 13, 2019 05:56AM

Mandyhiero wrote:

I joined the forum about 2 years ago when I found an indentation in my right breast. I went for ultrasound and mammogram and both were negative. I went back to the breast surgeon who said she had seen tethering and this was not it. I worried still and went back a year later to have another mammogram and ultrasound and it showed up with scattered benign calcifications. I was told to follow up with any changes. I’ve been worried about it because to be honest I’ve felt pretty crummy the past year or so and every time I get in the shower I see the dent. All day yesterday I had itchiness in that same breast and this happens on and off a lot. It’s not red or dimpled like orange peel skin so I don’t think it’s IBC. I’ve had itchiness since I found the dent so I know IBC progresses fairly quick so after 2 years it would be no mistaking it if it were. So I went to get in the shower last night and decided to check the dent and normally I would have had to raise my arm high, but this time i barely hold my arm up and it’s there and looks tethered and bigger than normal. I called the breast oncologist that I saw before and they have me scheduled to go in Friday at 8:45. I’m so worried because it’s been 2 years and the thought that it’s been there this long and probably has spread is enough to make me crazy. Has anyone had an indentation that they were told was nothing but turned out to be breast cancer? I’ve read stories on here before of women this has happened to but can’t seem to find them now. Please don’t tell me to stop googling because I have, but I have been searching on here for something similar. I admittedly have health anxiety and posted the other night before I even found the indent to be larger and was told that I needed to stop googling because I was giving myself health anxiety. I respect that person saying that, because she’s right, but I can’t shake the feeling that I have something that’s being missed. Log in to post a reply

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Nov 16, 2019 07:59AM Fiercer wrote:

I’m a TN cancer survivor and my mom has been going through the same issues as you have. Her nipple inverted and her breast became itchy. She went to the Dr and they didn’t seem to move forward. She had implants and they said that they really couldn’t see anything. However her breast is obviously not right. She is getting some results back next week from a biopsy. My fear is she is at stage iv, for some time now, unchecked.


We live in the Detroit Michigan area. Any advice on Dr’s and next steps

Dx 2/14/2013, IDC, Left, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (DUAL) Chemotherapy 3/13/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 6/6/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 7/14/2013 Breast, Lymph nodes
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Nov 17, 2019 12:24PM Mandyhiero wrote:

I went to see the breast oncologist’s nurse practitioner the other day and she did another breast exam and told me how there is absolutely nothing to be worried about as far as cancer goes, but she will order another mammogram to put my mind at ease. I go tomorrow for that and I’m so scared that it’s going to show something. I’ve been itching on that breast for the last 4 days more than usual. She told me that they don’t associate breast cancer with itching, contrary to popular belief. She’s still convinced that the indention is caused from my weight fluctuation in recent months but I’m not. She said the itching is probably from my connective tissue disease, (like lupus) but I’m not convinced of that either. I do have anxiety but all of this happening is real and not my anxiety. I’m scared to tears and can’t stop thinking that I’m dying and nobody will find breast cancer until it’s too late for me.
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Nov 17, 2019 01:10PM MinusTwo wrote:

Mandy - Not seeing your specs, I'm guessing from your initial post on this thread that for at least two years you have been told you do NOT have breast cancer. Hopefully after this next mammo tomorrow you will be able to move on.

Itching is difficult to pin point. Did you ever go see a dermatologist? That's what they do - skin, hair & nails. If you are determined to chase this, the NP suggested connective tissue disease. Make an appointment with your PCP and see what tests or specialists you need to see next.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 17, 2019 01:47PM Mandyhiero wrote:

You’re correct. I have not been diagnosed and feel terrible for posting on here because I know so many have. I think my anxiety has a lot to do with everything because I feel like I’m more hypersensitive to my symptoms, but I do have a mixed connective tissue disease and have mild psoriasis of the scalp and face but nowhere else. I go to my rheumatologist on December 17 but when I mentioned it to her at my appointment last week she said it wouldn’t have anything to do with it unless it was lupus mastitis. I had mastitis after I had both of my girls and I know what that looks and feels like and this is definitely not it.

I think the fact that I’ve read so many places that IDC doesn’t always show up on mammogram and ultrasound is what makes me keep coming back to it every time I have a symptom in that breast. I can’t ever just chock things up to coincidence so I automatically go to it being cancer that has been missed. Like the last 4 days I’ve mainly itched around the nipple area and that’s where the dent is, on my areola,under the nipple. I do take Wellbutrin for my anxiety so it is being treated. But this breast dent has really thrown me for a loop!

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Nov 17, 2019 06:19PM MinusTwo wrote:

Mandy - like I mentioned - you need to see a dermatologist. Particularly since you have mild psoriasis already.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 17, 2019 07:41PM AliceBastable wrote:

Yes, please see a dermatologist. IBC is determined by a punch biopsy, which would be done by a dermatologist.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Nov 17, 2019 08:02PM - edited Nov 17, 2019 08:03PM by chelleb1017

Fiercer,Dr. Jacqueline Jeruss at the university of Michigan in Ann Arbor. She is the sweetest most personable Doctor! Also the leading breast surgeon there!!

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Nov 18, 2019 09:00PM Mandyhiero wrote:

Sharing in case anyone has a similar situation to mine. I went and had a mammogram today. I was worried anyways but when the tech did my right breast and did the first view, she had to come and reposition me and that made me paranoid that they had found something. So when all of that was done she told me to wait in the waiting area back in the back and not to get dressed, I was even more worried. Then 20 minutes later, in walks another lady and says she’s taking me to ultrasound. My heart was beating out of my chest. She did the first part with me laying on my back, then asked me to lean away from her and put a wedge behind my back. After I had all I could take I said, “so I guess they saw something on my mammogram?” And she said, “oh no, honey! Your mammogram was all clear, he just wants to be extra sure.” After all of that, thank God it was all clear. I’ve decided I’m staying away from these boards unless I ever need to come back for a new problem. I wish you all the best, and pray for you all. Thank you to everyone who offered advice and made me not feel stupid. And if you have any breast changes, by all means, get them checked. But don’t waste time worrying after you get the all clear like I have. Sometimes a dent is just that. A dent. I’ve wasted two years ridden with anxiety because I couldn’t get past the thought of what if this is something else. And guess what, it wasn’t. Again, thanks to everyone for all of the advice and support when I felt so alone!
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Nov 21, 2019 07:09PM - edited Nov 22, 2019 06:14AM by Moderators

This Post was deleted by Moderators.
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Nov 22, 2019 07:02PM Mandyhiero wrote:

I made another post but deleted it because someone said it would be easier to keep up if I stuck to one post. So I moved it here.

I just had a clear mammogram and ultrasound of my right breast. I'm elated! But for the past week and a half I've had a lot of itching in that breast. I've had itching on and off before but not to this extreme. I mentioned it the doctor last Friday and she said itching is not associated with breast cancer. My breast doctor called me yesterday to tell me everything was clear, which I already knew, so I mentioned it to her again. She said to take Benadryl which I have, and use some hydrocortisone cream which I've been doing three times a day since this all started, and to see a dermatologist which I already knew. I called my dermatologist yesterday to get an appointment and nobody returned my call. I called again today and they're out until Monday. The hydrocortisone isn't cutting it. I'm itching like crazy! I swear every time I turn around there's something new with this breast! Anyone else had this and have any remedies for the itching until I can get in to see my dermatologist? And any idea of what could be causing it since all of my mammograms and ultrasounds have come back normal. The only difference this time was Birads 2 instead of 1 from the previous mammograms but it didn't say what was found, just benign findings

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Nov 22, 2019 07:11PM MinusTwo wrote:

Mandy - so I'll move my answer over here. NOTHING TO TO WITH BREAST CANCER !!! HOORAY

As for the itching - there really aren't any definitive answers. My back has been itching for 10 years. I've tried lots of different prescriptions and only heavy duty steroids work - which you don't want to take for very long. Keep up with the Benedryl or try Zyrtec. It can take at least a week for an oral medication to saturate your system.

Sit in a tub with baking soda. Smear on CeraVe or Cetafil. Put gloves on your hands so you can't scratch yourself raw.

You need to google itching in general and drop the 'breast'. There are lots of interesting things out there - and not related to breast cancer at all.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 22, 2019 08:04PM Mandyhiero wrote:

Thank you, MinusTwo! I think I mentioned before having mild psoriasis so I wanted to talk to the dermatologist about that being a possible cause of the itchiness. I took zyrtec instead of Benadryl today and I feel like it has helped more than the Benadryl. I’ll try the baking soda and ceraV tomorrow and see how that does. My breast hasn’t itched at all this evening until I came home and changed clothes and then put the hydrocortisone cream on if. Wondering if that couldn’t be causing some type of yeast since I started putting it on there when I first started itching. Thank you for your suggestions. I’ll definitely try them tomorrow! I’ll keep everyone posted. :)
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Dec 5, 2019 02:11PM Mandyhiero wrote:

I vowed to stay away but I'm at my wit's end. I put in two calls last week and one the week before to my dermatologist and they never called me back. Called again today and still haven't received a call. I have itchiness in my right breast, the one I've always had a problem with. The first week I tried hydrocortisone cream twice a day and even did oatmeal baths. Then last week I tried a yeast infection medicine on it. Nothing is helping. I know my breast doctor said they don't associate itching with breast cancer but it's just worrisome to me that it's not going away and it's even going into my armpit as of last night. My collarbone is also sore but I can't feel a swollen lymph node or anything. I'm at a loss. I'm so tired of worrying about my breast. It's been two years and it keeps giving me problems. There's no warmth and no pitting like orange peel skin. I do have the indentation which my doctor assured me is from weight fluctuation. I have pain in my ribs on the right side only which my rheumatologist says is costochondritis but it’s just all a scary thing bc could it all just be coincidence that it’s happening on the right side? My anxiety may be getting the best of me again but why can’t I get peace? I’m on Wellbutrin so that helps my anxiety, so I’m not sure what to think. I’m really scared

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