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Topic: Looking for real time support...

Forum: Not Diagnosed But Worried —

Meet others worried about developing breast cancer for the first time. PLEASE DO NOT POST PICTURES OF YOUR SYMPTOMS. Comparing notes, symptoms, or characteristics is not helpful here, as only medical professionals can accurately evaluate and assess your individual situation.

Posted on: Dec 10, 2019 05:28PM

Fissie wrote:

i have googled looking for active forums. I just want to talk to someone who gets it. I find the wait so lonely. There does not seem to be anything out there. No one not going through this understands the feelings you go through in the span of 5 minutes. I wish there was a place to talk to those who went through it already. Just unraveling. Can you tell? Tomorrow is my appointment. I don’t know if i will make it. Focal assymetry seen on 2 views in posterior upper quadrant of left breast. Compared to past screening. Breast tenderness. It was sporadic before this but after the call back boy - it seems persistent. I did have what i thought was underarm fat I noticed a few months ago but maybe swollen nodes??? Never felt a lump, pea or grape sized so i am worried about that and what is the difference? At times it felt like something extra there. Maybe my fat masked it?! All of this has me preparing for the worst. Not sure if i will sleep tonight!

Thanks for listening!

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Dec 10, 2019 05:37PM DorothyB wrote:

This board is one of the most balanced, helpful places I have found.

Waiting to see if you will have a cancer diagnosis is a really tough time! It is so easy to freak out.

Diag. 4/19/2019 ER+ PR+ HER2 neg Lumpectomy 5/29/2019 IDC w/ DICS 2.0 cm Grade 3
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Dec 10, 2019 05:48PM Fissie wrote:

It truly is Dororthy! I went back and looked at my notes that I wrote when she called me from the center. I have refrained from googling symptoms except for reading here. I am so worried, She kept saying it was deep near chest wall. Reading here doesn't make that a great scenario. I am a hot mess!

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Dec 10, 2019 05:51PM bcincolorado wrote:

While the idea of cancer is super scary one thing that I was surprised about that it is ok to take your time to research your options and and talk to different doctors and get second opinions as well. If it takes a month ok it does. You do not progress that quickly to make a difference. My tumor could not be felt at all and I had dense tissues. I just had a great radiologist who picked it up to catch it since it could not be seen easily on mamo or felt in an exam. Waiting is hardest and decisions are hardest after the diagnosis. Then you move into treatment and deal with all that comes after that. Best of luck to you.

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/7/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/15/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/30/2016 Femara (letrozole)
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Dec 10, 2019 06:11PM dysonsphere wrote:

I was in your place a few weeks ago. I was not even concerned when I had my yearly mammogram and then I received my results on my online chart and read the words "malignancy suspect". Everything has changed since then. But I think the reason I was so scared is that I spend most of my life trying to be oblivious to serious things like breast cancer. And now I couldn't. Not every call back will turn out to be cancer. I hope that everything turns out okay. I know that the waiting and not having anyone that understands that despair, well, it sucks. It is a rollercoaster ride of emotions, but just know that the likelihood is that it's not cancer, but even if it is, you can handle it.

Age 50 at Dx, 11/20 abnormal Mammo, 12/2 Ultra sound, 12/3 Biopsy,12/31/19 Started treatment at MD Anderson , 1/9/2020 Node biopsy, malignant 1/13/2020 Genetic Test negative 2/6 Started 16 cycles of chemo (completed 6/18) Dx 12/10/2019, IDC, Right, 1cm, Stage IIA, Grade 2, 5/27 nodes, ER+/PR+, HER2- Chemotherapy 2/6/2020 AC + T (Taxol) Surgery 7/17/2020 Lumpectomy: Right
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Dec 10, 2019 06:14PM Fissie wrote:

I know you know! There is nothing I can do about what will be. Tomorrow can very well be a life changer for me. I am also a realist. And I am not sure that type of person is a good one when going through something like this. Thank you for responding, everyone. It helps more than you know!


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Dec 10, 2019 06:39PM Beaverntx wrote:

Fissie, my tumor was also very deep, the top was barely identified on mammogram and it could not be felt in manual exam. I had a lumpectomy and radiation and am now on an antihormonal. Also approaching my two year mark. It is doable although not likely what any of us would choose! The waiting time at the beginning is a very difficult time. Hang in there and keep us posted, please

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 10, 2019 07:42PM kikind wrote:

Fissie, this forum is full of amazing, supportive people who have or are going through the same thing. I've been trying to be positive for the sake of my family because I don't want them to worry. But you can say whatever you are feeling here. Everyone just gets it. And truly wants to be there for you. I'll be thinking about you tomorrow and sending good thoughts. I know it's scary, believe me, but you can do it. Let us know how it goes, ok?

Dx 12/13/2019, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 1/13/2020 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Chemotherapy 3/18/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 6/15/2020 Whole-breast: Breast, Lymph nodes
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Dec 10, 2019 10:58PM godisone wrote:

You can talk to me..i vividl remember how horrific the wait was. Do not want to recall that moment ever in my life but I am here for you. You are in y thoughts. Good luck for the diagnosis.xoxo

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Dec 10, 2019 11:28PM Fissie wrote:

thank you all so very much! As you can imagine i have very disrupted sleep tonight. I haven’t been able to turn off my mind. Every time i close my eyes, my thoughts go somewhere terrible. This is the single worst thing ever. Regardless of what i find out tomorrow, i am changed. I will do my best to help others. It makes me realize how very little i was supportive of my few friends who have walked this path before me. I guess you don’t know what you don’t know.

And my poor husband! He has no idea what to say or do.

Right now i am thinking that i would never be strong enough to walk this path.

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Dec 21, 2019 12:56AM MonicaBstrong wrote:

Fissie...I found strength to walk this path in this forum. Hope all is well.

Dx 2/2/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 3/9/2018 Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 4/6/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 7/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/20/2018 Arimidex (anastrozole)
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Dec 21, 2019 05:44AM Yogatyme wrote:

Fissie, you have come to the right place and you are wise to stay off google. I had myself scared to death by googling and then I found this forum. It is full of great information and everyone here “gets it”. You are in the dreaded waiting stage and it ramps up anxiety like crazy. One you have a diagnosis and a plan, things feel a little more in control. Remember, not all call backs result in breast cancer dx.

Yogatyme Surgery 3/3/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right

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