Topic: Not sure what to think

Forum: Not Diagnosed But Worried — For those who are experiencing symptoms or received concerning test results, but haven't been diagnosed with breast cancer.

Posted on: Apr 19, 2022 03:10PM

Posted on: Apr 19, 2022 03:10PM

angel980 wrote:

Hi, new member here.

About 3 weeks ago I noticed I was extremely sensitive in my left breast. I didn't think much of it until 3 days later, I was in the shower and felt a huge hard mass in my left breast. When I looked in the mirror, my breast was huge and I had a redish, purplish coloring that was quite large. I right away went to my doctor who was also concerned because my period ended 5 days prior and I haven't breast fed in 5 years. She prescribed me antibiotics and sent a referral for a mammogram and Ultrasound. the first 5 days my redness got worse, I started getting itchy and a couple of times it looked like I had white bumps from under my skin. After the 5th day my redness started to subside and my swelling went down. Two days before my last antibiotics I had my mammogram which came back clear and my ultrasound came back as ductal dilatation. My doctor said because that can be a sign of ibc, the radiologist left it open for my doctor and me to decide on the next step. She now has referred me to a breast specialist at the hospital.

My redness is faint but still there, I'm still sensitive and I've had constant back pain under left left shoulder blade, along with a dull ache in my front beneath my left breast.

The night before lastnight, I couldn't sleep because I had a constant throbbing on my left breast that was quite painful. The next morning I woke with the throbbing but then throughout the day, the throbbing turned into stabbing pain that had me doubled over. It would only last 30 seconds at a time but it was constant. It only lasted the one night and now the past two days I'm back to feeling my back pain and dull throbbing here and there. Not sure what to think because my redness and swelling isn't coming back to what it was.

Just hoping on some input from someone who may have experienced this and may know what's causing it.

Thank you

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Jul 20, 2022 10:12PM angel980 wrote:

Hello,

So I had my appointment yesterday with specialist #2. It went much better than my first appointment and she is sending me for another ultrasound. I'm super relieved it wasn't another dead end. She gave me the same speech though, pain means no cancer, i dont have the peau d'orange so i dont have ibc, and she sloughed off my discoloration. My pain is constant now though. I used to go a couple of weeks without feeling pain but now i don't go a day without feeling it. She cant explain the pain and that is why she's sending me for another ultrasound. Im hoping after 4 months, if there's anything concerning, it would appear on an ultrasound now, would it not?

Anyways I'm feeling hopeful for answers soon and happy to have a Doctor who is taking my concerns seriously. Thank you for letting me process my journey on here. It definitely has not been easy.


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Jul 21, 2022 02:14AM lw422 wrote:

Angel--so sorry you have had such a struggle with trying to find out the problem with your breast, and I hope that they figure it out soon. IBC is rare so chances are good that you don't have it. I am bothered by your doctor saying that "pain means no cancer" because that is a lie. A lot of us had pain or other weirdness. When is your scan scheduled? My best to you for a good outcome.

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Jul 21, 2022 11:52AM angel980 wrote:

hi, thank you for that! Reading These testimonies have been helpful navigating what the doctors tell you. I previously even got the line that my bra was probably too tight. I had to laugh about it later because so many woman tell of getting that line. My family doctor also told me I could be getting pain in my back shoulder blade because I walk around, clutching my breast with my arm, without knowing I'm doing it! What?!? Haha. Anyways I have to wait for the imaging to contact me and set up an appointment, so probably not for a few weeks.

Thank you for your response.

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