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Topic: CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

Forum: Bonded by Breast Cancer —

For those who have met on Breastcancer.org and want to continue growing their cybersibling friendships beyond cancer.

Posted on: Jul 18, 2015 08:14PM - edited Feb 21, 2016 12:31AM by SlowDeepBreaths

SlowDeepBreaths wrote:

I'm hoping there isn't another thread like this. I did a search and saw one for stage 4, but nothing for everyone else. My very special friend on BCO (Tomboy), and I have talked about a Crazy Town thread for awhile now. I know she will be happy I finally took the bull by the horns!!

I wrote a little story about visiting Crazy Town last year on my blog, and I received some lovely emails from women all over the world talking about how terrifying those feelings can become. I thought I would share that story with my BCO sisters. I know many of you can relate to the craziness of worrying about recurrence or progression. I think my experience epitomizes the crazy place our minds can go. I've found when I can laugh at myself, I always feel better.

"My master bath has its own little room for the toilet. The sink, shower and tub are all in the same room. At night when I have to use the bathroom, I always turn on the closet light which is right next to my sink. This way I don't have to turn on all the lights above the sink. They are very bright and there are a lot of them. I do this so the brightness doesn't wake up my DH. Being the OCD person I am, I always wash my hands after using the restroom – even in the middle of the night.

One night last week, I was doing my usual ritual and I caught a glimpse of a big blackish/brown mark on the upper left side of my chest.This thing was huge. I could feel my heart beating out of my chest when I caught a glimpse of it. I'm sure many of you will know what I'm talking about - that feeling of dread.I ran my fingers over it and it felt raised. I couldn't imagine what it could be – it was SO big. I thought, "Oh great, here we go again, now I've got skin cancer." Then I decided to risk waking DH up by turning on the millions of lights above the sink. Then I got a closer look. UNBELIEVABLE!!……it was a piece of chocolate from a cookie I had eaten earlier!!!!! Apparently it had melted into my chest and I went to bed that way. Can you imagine?? Now if that doesn't give you a good laugh, I don't know what will. CRAZY TOWN!!!"

I have many stories since diagnosis. I call it going to Crazy Town. Some of them are funny, others not so much. I usually go there in the middle of the night when everyone is sleeping, and my mind wanders. There are no trains, planes or busses out of Crazy Town in the middle of the night. I also go there at times when I'm waiting on test results. I hope we can all share our Crazy Town stories. Talking about it has helped me to stay on the outskirts of the town. I've been really good about not visiting lately, but this week it's been a real challenge.

If you have tests coming up, or you just have a day where you're worried more than usual, or if you just want to hang out and chat, please stop in to visit. It is my hope we can have some fun here and get each other through on difficult days with humor, kindness and hugs!!

Much love to all,

Beppy ツ

P.S. If you've just been diagnosed, I strongly suggest starting a blog. Whether it be just for yourself, or you'd like to share it with others. It's been a good outlet to get my feelings out as well as a wonderful timeline to refer back to when needed.



Great info about breast cancer and PTSD:

http://www.healthline.com/health-news/cancer-treatment-leaves-survivors-with-ptsd-scars-031215#3


Dx 4/2016, TN mets to lung. VATS left upper lobe wedge resection. "Fall seven times, stand up eight" Japanese Proverb Dx 7/2013, IDC, Left, 1cm, Grade 2, 0/0 nodes, ER-/PR-, HER2+ (FISH) Dx 7/2013, IDC, Left, 1cm, Grade 2, 0/0 nodes, ER-/PR-, HER2- (FISH)
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Feb 1, 2021 04:39AM M0mmyof2 wrote:

Rain, I’m in Western Connecticut

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Feb 1, 2021 12:06PM MCBaker wrote:

Two friends have husbands who have chronic leukemia. Both partners got their shots when their hubbys'

got them.

Mary Dx 10/3/2018, DCIS, Right, 6cm+, Stage 0, Grade 3, ER-/PR- Dx 11/16/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER-/PR-, HER2+ (IHC) Surgery 11/16/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement Targeted Therapy 12/19/2018 Herceptin (trastuzumab) Chemotherapy 12/19/2018 Taxol (paclitaxel) Surgery 6/28/2019 Reconstruction (right): Fat grafting, Saline implant
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Feb 1, 2021 03:41PM M0mmyof2 wrote:

Hope my hubby can get his soon too. He works at a college and I worry about him getting it.

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Feb 2, 2021 01:51PM CeliaC wrote:

rain & octo - My daughter lives in Manhattan & my sister in Stamford, CT. Eagerly awaiting the time when I can travel again to see them both. Perhaps we can arrange for a rendezvous? Hoping that travel is possible in late summer or in autumn this year.


Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/20/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/20/2017 Whole-breast: Breast Hormonal Therapy 4/4/2017 Arimidex (anastrozole)
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Feb 2, 2021 04:17PM rainnyc wrote:

Celia, absolutely! Always glad to meet fellow travelers on the BCO boards. Sending you a PM. The forced separation from family and friends is one of the hardest parts of this L*O*N*G year!

Dx 4/2015, IDC, ER-/PR-, HER2+ Chemotherapy 5/11/2015 Taxol (paclitaxel) Targeted Therapy 5/11/2015 Herceptin (trastuzumab) Surgery 9/21/2015 Mastectomy: Left, Right Radiation Therapy 10/31/2015 Lymph nodes, Chest wall Targeted Therapy Perjeta (pertuzumab)
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Feb 12, 2021 06:17AM M0mmyof2 wrote:

Routine CT scan on Monday.

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Feb 12, 2021 10:59PM octogirl wrote:

Celia: I'd love that! It is looking likely that I will be in NYC in early September...and it looks like I will getting my shot very soon, I am so ready...

M0mmy, in your pocket.


Octogirl

Dx 6/18/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 7/16/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 9/9/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/15/2015 Hormonal Therapy 1/15/2016 Arimidex (anastrozole) Hormonal Therapy 4/8/2016 Femara (letrozole)
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Feb 12, 2021 11:52PM Beaverntx wrote:

MOmmy, joining octogirl in your pocket!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 13, 2021 09:58PM Lucy55 wrote:

Mommy ...in your pocket !

Surgery 8/26/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014 Surgery
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Feb 14, 2021 02:37AM ChiSandy wrote:

Jumping into your pocket, M0mmy!

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Feb 14, 2021 11:51AM rainnyc wrote:

Good luck, Mommy. In your pocket!

Dx 4/2015, IDC, ER-/PR-, HER2+ Chemotherapy 5/11/2015 Taxol (paclitaxel) Targeted Therapy 5/11/2015 Herceptin (trastuzumab) Surgery 9/21/2015 Mastectomy: Left, Right Radiation Therapy 10/31/2015 Lymph nodes, Chest wall Targeted Therapy Perjeta (pertuzumab)
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Feb 15, 2021 02:11PM M0mmyof2 wrote:

Test done, now the wait forresults begins

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Feb 16, 2021 05:07PM M0mmyof2 wrote:

Results are in: NO Cancer!

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Feb 16, 2021 07:02PM Beaverntx wrote:

Fantastic, woo-hoo, and great news!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 16, 2021 07:37PM ChiSandy wrote:

Yaaaay!!!

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Feb 16, 2021 07:50PM octogirl wrote:

Fantastic news M0mmy!!!!

Dx 6/18/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 7/16/2015 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 9/9/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/15/2015 Hormonal Therapy 1/15/2016 Arimidex (anastrozole) Hormonal Therapy 4/8/2016 Femara (letrozole)
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Feb 16, 2021 10:20PM LillyIsHere wrote:

Hi Ladies, I'm feeling anxious. Tomorrow, I have 6-month appointment with MO and Zometa infusion. I also have few concerns I need to ask him about, hip pain that has been lingering for almost a year and it is getting worst, and also my right flank pain since December. Blood tests will check how my liver and kidney are handling medications. Wish me luck Hug

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole)
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Feb 16, 2021 11:42PM Lucy55 wrote:

Mommy .. wonderful news !!

Lilly ..in your pocket for your visit with MO ...Let us know how it goes ((hugs ))

Surgery 8/26/2014 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/14/2014 Surgery
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Feb 17, 2021 05:15AM M0mmyof2 wrote:

ty

Positive vibes Lilly!

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Feb 17, 2021 02:28PM Beaverntx wrote:

In your pocket, Lilly. Hope you get the answers you are seeking.

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 17, 2021 09:29PM ChiSandy wrote:

In your pocket, Lilly. Hope all is well and your pain is strictly "structural."

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Feb 17, 2021 10:14PM LillyIsHere wrote:

Hi beautiful Ladies! I have been feeling your positive energy. Thank you!

I am back, a bit tired after Zometa infusion but OK. This time, different from the last time when I had a list of questions, I did bit my tongue and didn't ask him any questions. He told me I look well and when I told him my right hip is very painful, day and night, he recommended an MRI. I also told him about the right flank but he said only hip MRI because he is not worried about my right side flank and also scans show many things that create unnecessary anxiety. I will let you know once I get the MRI. I note to myself, next time I will go with my PJ, I won't comb my hair and not shower so I won't look polished :)

Hugs to you all and thank you for thinking of me. It is now a good place to be. I saw so many sick young people today :(

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole)
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Feb 22, 2021 04:26PM M0mmyof2 wrote:

Happy dance time! Just found out that later next month I can schedule my vaccine appointment. Hubby can schedule his sooner than me.

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Feb 22, 2021 09:22PM ChiSandy wrote:

Yaaay!!!

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Feb 23, 2021 05:10AM M0mmyof2 wrote:

Yeah. Our governor said that the CDC’s tiered approach is good but lead to too much confusion in many states.

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Feb 23, 2021 11:16AM Melbo wrote:

so far in my cancer “journey” (I kind of hate that word, but I haven’t come up with a better one yet) the scariest words have been “we may want to send you in for a brain MRI.” Which my MO just said yesterday. Right now we’re just trying to figure out some odd symptoms I have been having and brain metsare a low probability, but hot damn the thought is terrifying.

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/20/2020 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/31/2021 Whole-breast: Breast, Lymph nodes
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Feb 23, 2021 12:05PM mistyeyes wrote:

Melbo,

I would be scared too. Hang on to the "low probability" and stay positive. I will be thinking of you.

IDC right- Stage IIA, Grade 3,ER-,PR+,HER2+ Dx 11/15/2016, Right, PR+, HER2+
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Feb 24, 2021 02:03AM - edited Feb 25, 2021 04:36PM by ChiSandy

In your pocket for the brain MRI, Melbo. I had some weird symptoms too (pulsatile tinnitus), but the brain/ear MRI revealed it wasn't mets but only a congenital extra blood vessel abutting my internal auditory canal. May your MRI reveal something similarly innocuous.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Feb 25, 2021 03:08PM CeliaC wrote:

Melbo - In your pocket as well for the scan! That is a scary phrase to hear, indeed.


Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/20/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/20/2017 Whole-breast: Breast Hormonal Therapy 4/4/2017 Arimidex (anastrozole)
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Mar 13, 2021 04:57PM M0mmyof2 wrote:

Sorry for not having been on much lately but I have been very busy hunting down an appointment for my hubby to get his first dose of the vaccine. Been searching at least 3-4 times a day to get one scheduled. Finally got one yesterday for next week! I’m eligible on the 22nd to sign up for an appointment.

If you value your freedom, thank a servicemember both serving and retired!

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