For those who have met on Breastcancer.org and want to continue growing their cybersibling friendships beyond cancer.
Posted on: Jul 19, 2015 10:14AM - edited Feb 21, 2016 04:31PM by SlowDeepBreaths
I'm hoping there isn't another thread like this. I did a search and saw one for stage 4, but nothing for everyone else. My very special friend on BCO (Tomboy), and I have talked about a Crazy Town thread for awhile now. I know she will be happy I finally took the bull by the horns!!
I wrote a little story about visiting Crazy Town last year on my blog, and I received some lovely emails from women all over the world talking about how terrifying those feelings can become. I thought I would share that story with my BCO sisters. I know many of you can relate to the craziness of worrying about recurrence or progression. I think my experience epitomizes the crazy place our minds can go. I've found when I can laugh at myself, I always feel better.
"My master bath has its own little room for the toilet. The sink, shower and tub are all in the same room. At night when I have to use the bathroom, I always turn on the closet light which is right next to my sink. This way I don't have to turn on all the lights above the sink. They are very bright and there are a lot of them. I do this so the brightness doesn't wake up my DH. Being the OCD person I am, I always wash my hands after using the restroom – even in the middle of the night.
One night last week, I was doing my usual ritual and I caught a glimpse of a big blackish/brown mark on the upper left side of my chest.This thing was huge. I could feel my heart beating out of my chest when I caught a glimpse of it. I'm sure many of you will know what I'm talking about - that feeling of dread.I ran my fingers over it and it felt raised. I couldn't imagine what it could be – it was SO big. I thought, "Oh great, here we go again, now I've got skin cancer." Then I decided to risk waking DH up by turning on the millions of lights above the sink. Then I got a closer look. UNBELIEVABLE!!……it was a piece of chocolate from a cookie I had eaten earlier!!!!! Apparently it had melted into my chest and I went to bed that way. Can you imagine?? Now if that doesn't give you a good laugh, I don't know what will. CRAZY TOWN!!!"
I have many stories since diagnosis. I call it going to Crazy Town. Some of them are funny, others not so much. I usually go there in the middle of the night when everyone is sleeping, and my mind wanders. There are no trains, planes or busses out of Crazy Town in the middle of the night. I also go there at times when I'm waiting on test results. I hope we can all share our Crazy Town stories. Talking about it has helped me to stay on the outskirts of the town. I've been really good about not visiting lately, but this week it's been a real challenge.
If you have tests coming up, or you just have a day where you're worried more than usual, or if you just want to hang out and chat, please stop in to visit. It is my hope we can have some fun here and get each other through on difficult days with humor, kindness and hugs!!
Much love to all,
Beppy ツP.S. If you've just been diagnosed, I strongly suggest starting a blog. Whether it be just for yourself, or you'd like to share it with others. It's been a good outlet to get my feelings out as well as a wonderful timeline to refer back to when needed.
Great info about breast cancer and PTSD:
Posts 15781 - 15808 (15,808 total)
Feb 2, 2021 04:06AM MCBaker wrote:
Two friends have husbands who have chronic leukemia. Both partners got their shots when their hubbys'
Feb 3, 2021 05:51AM CeliaC wrote:
rain & octo - My daughter lives in Manhattan & my sister in Stamford, CT. Eagerly awaiting the time when I can travel again to see them both. Perhaps we can arrange for a rendezvous? Hoping that travel is possible in late summer or in autumn this year.
Feb 3, 2021 08:17AM rainnyc wrote:
Celia, absolutely! Always glad to meet fellow travelers on the BCO boards. Sending you a PM. The forced separation from family and friends is one of the hardest parts of this L*O*N*G year!
Feb 13, 2021 02:59PM octogirl wrote:
Celia: I'd love that! It is looking likely that I will be in NYC in early September...and it looks like I will getting my shot very soon, I am so ready...
M0mmy, in your pocket.
Feb 13, 2021 03:52PM Beaverntx wrote:
MOmmy, joining octogirl in your pocket!
Feb 14, 2021 01:58PM Lucy55 wrote:
Mommy ...in your pocket !
Feb 14, 2021 06:37PM ChiSandy wrote:
Jumping into your pocket, M0mmy!
Feb 15, 2021 03:51AM rainnyc wrote:
Good luck, Mommy. In your pocket!
Feb 17, 2021 11:02AM Beaverntx wrote:
Fantastic, woo-hoo, and great news!
Feb 17, 2021 11:37AM ChiSandy wrote:
Feb 17, 2021 11:50AM octogirl wrote:
Fantastic news M0mmy!!!!
Feb 17, 2021 02:20PM LillyIsHere wrote:
Hi Ladies, I'm feeling anxious. Tomorrow, I have 6-month appointment with MO and Zometa infusion. I also have few concerns I need to ask him about, hip pain that has been lingering for almost a year and it is getting worst, and also my right flank pain since December. Blood tests will check how my liver and kidney are handling medications. Wish me luck
Feb 17, 2021 03:42PM Lucy55 wrote:
Mommy .. wonderful news !!
Lilly ..in your pocket for your visit with MO ...Let us know how it goes ((hugs ))
Feb 18, 2021 06:28AM Beaverntx wrote:
In your pocket, Lilly. Hope you get the answers you are seeking.
Feb 18, 2021 01:29PM ChiSandy wrote:
In your pocket, Lilly. Hope all is well and your pain is strictly "structural."
Feb 18, 2021 02:14PM LillyIsHere wrote:
Hi beautiful Ladies! I have been feeling your positive energy. Thank you!
I am back, a bit tired after Zometa infusion but OK. This time, different from the last time when I had a list of questions, I did bit my tongue and didn't ask him any questions. He told me I look well and when I told him my right hip is very painful, day and night, he recommended an MRI. I also told him about the right flank but he said only hip MRI because he is not worried about my right side flank and also scans show many things that create unnecessary anxiety. I will let you know once I get the MRI. I note to myself, next time I will go with my PJ, I won't comb my hair and not shower so I won't look polished :)
Hugs to you all and thank you for thinking of me. It is now a good place to be. I saw so many sick young people today :(
Feb 23, 2021 01:22PM ChiSandy wrote:
Feb 24, 2021 03:16AM Melbo wrote:
so far in my cancer “journey” (I kind of hate that word, but I haven’t come up with a better one yet) the scariest words have been “we may want to send you in for a brain MRI.” Which my MO just said yesterday. Right now we’re just trying to figure out some odd symptoms I have been having and brain metsare a low probability, but hot damn the thought is terrifying.
Feb 24, 2021 06:03PM ChiSandy wrote:
In your pocket for the brain MRI, Melbo. I had some weird symptoms too (pulsatile tinnitus), but the brain/ear MRI revealed it wasn't mets but only an extra blood vessel abutting my internal auditory canal.