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Jun 20, 2019 05:12PM
Fairydragonfly I'm so very sorry you're facing all this, AND my deepest condolences on losing your parents to cancer last year. That's just awful, and this is SO MUCH on your plate all at once in life.
I have a DX quite similar to yours in quite a few ways: size .9 tumor, Oncotype 59, grade 3, same chemo as you are scheduled to begin soon, also 0 positive nodes, also weakly ER+ You can read this on my signature and on my public Biography linked to my name.
One way to look at a high oncotype score is to feel assured that there IS benefit to going through chemo. When my MO pitched it to me that way, saying, "This is a tool that we have for you that has a high chance of being effective for preventing a recurrence," I felt more able to face it. Compared to The Old Days, when it was more guesswork. Oncotype DX is a helpful, additional prognosticator that didn't used to exist.
My oncologist gives me a 90% chance of being cured with my current TX plan. I am post-menopausal, so TX includes taking an AI, which he says has the most benefit for me of all of my treatment, and I am on an AI for at least 5 years (assuming I can tolerate it okay).
Has your MO given you any information about your final post-surgical staging, or any % chance of a cure with your treatment plan, or a % chance of a recurrence? I ask because I'm trying to figure out from your worried words whether you are just terrified and worried in general, or whether your MO has specifically painted a bleak picture.
Terrified and worried and overwhelmed is absolutely normal to feel. It will get better. You'll get through this.
By the way, I kept my hair during chemo, on TC x 4, by Cold Capping. Lost maybe 30% of it, but no one could tell! There's a Cold Capping thread on this site.
If this helps at all, I got through chemo, one day at a time, with excellent support on managing side effects, from a great oncology clinic, and good support from this community.
Warm and very supportive wishes and empathy to you.
3/2003, IDC, Right, <1cm, Stage IA, 0/2 nodes, ER+, HER2-
6/10/2003 3DCRT: Breast
8/8/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/25/2018, IDC, Right, <1cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR-, HER2-
5/22/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
6/25/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
11/6/2018 Arimidex (anastrozole)
1/2/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant