Posted on: Aug 8, 2008 09:54AM
Posted on: Aug 8, 2008 09:54AM
1ougirl wrote:
Is there any long term survivors who have had a high oncotype score. I know that this test is relatively new but I also know that it has been on the market at least 4 years. So I know that "long term" regarding this test isn't very long term. I had it done 3 years and 4 months ago. My oncotype score was 52. My onc told me that the test had been on the market only about 8 months. I'm just curious about others who have had an extremely high score and are still clear (so to speak). I am doing great with no signs of any kind. Is there alot of others out there? By the way, I love this site.
Log in to post a replyOct 13, 2015 10:53PM - edited Oct 13, 2015 10:54PM by mamagrammy
Oct 13, 2015 11:12PM mamagrammy wrote:
Preliminary results were released from the TAILORx trial validating low Oncotype scores not needing chemo. Higher scores are still being studied. But there is some good news from other studies that Genomic Health did announce regarding intermediate and high scores.
"Complementing the data from TAILORx, Genomic Health announced presentation of real-world clinical outcomes from a large cohort of patients in the Clalit registry. Over half of the 930 patients in the analysis were identified as low-risk and were treated with hormone therapy alone based on Recurrence Score results. A nearly six-year follow-up showed very high survival rates (99.8%) and low distant recurrence rates (0.5%) in this patient group.
Survival and recurrence rates in patients with high Recurrence Score results, most of whom received chemotherapy, were 96% and 4% respectively while for patients in the intermediate group survival and recurrence rates were 98.8% and 2.3% respectively."
Oct 14, 2015 03:08AM jojo2373 wrote:
Well its a year later and how is everyone? I too am Luminal B and am now 3 yrs out.
Dec 11, 2015 06:59AM squidess wrote:
Hey Jojo,
Also ER+/PR-/Her2-. Rounding the corner and heading into 9 years with no problems.
TYG!
Dec 11, 2015 07:24AM Wildflower2015 wrote:
"Survival and recurrence rates in patients with high Recurrence Score results, most of whom received chemotherapy, were 96% and 4%"
So is this actually saying the 6 year study only showed 4% recurrence in patients who had high oncotype scores and received chemo? I was told my risk of recurrence was somewhere around 15% with chemo and hormonal therapy. I would love to be able to see 4% instead.
Dec 11, 2015 08:59AM - edited Mar 10, 2018 12:40PM by BarredOwl
Dec 11, 2015 09:23AM 1ougirl wrote:
BarredOwl - I'm not sure what all that stuff actually means. Does it mean that if a woman with a high onco score has only 4% chance of recurrence AFTER doing Chemo? I started this thread 8 years ago and didn't know anyone with an onco score as high as mine (52). I just visited my oncologist and she said "it's patient's like you that made me want to practice oncology for the past 30 years". She was not meaning that I'm a fantastic patient - she meant that what she does in medicine does help a lot of people survive long periods of time, even with mean cancerous tumors such as I had. I am 10 years clean and feel great. I love to encourage woman with the dreaded "high score" that I am still here and they can be survivors too. I never want to say that I'm free of this forever because breast cancer can come back 25 years later. It's just that I rarely think about it anymore and I'm am so grateful to my Lord for allowing me to live this long to see my children get married and have children of their own. PTL. But BarredOwl if you could explain in layman's terms what exactly all this information means, many of us reading this form would be very appreciative.
Dec 11, 2015 09:37AM Wildflower2015 wrote:
BarredOwl,
Yes, it's still unclear to me, I don't even know what a confidence interval is
Dec 11, 2015 02:40PM - edited Mar 10, 2018 12:40PM by BarredOwl
Dec 11, 2015 04:10PM - edited Mar 10, 2018 12:40PM by BarredOwl
