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Jun 7, 2014 05:33PM
At Kam - So funny you asked the question about "oncotyping" both tumors. My oncologist only ordered the oncotype on the bigger tumor. I had a second opinion with another oncologist a few weeke ago (after my Stage IV diagnosis) and she and I discussed that. She said that the smaller tumor may have indeed been the more aggressive tumor, as we are now learning that the size of the tumor does not have much bearing on the aggressiveness of a tumor!! I remember asking my first oncologist why we didnt send two samples a few years back and I think she said "i would have treated you the same regardless of the score", as far as giving me T/C??
So, someone above asked why the liver resection. Well, its a long story, and it certainly isn't standard of care when there are mets to the liver, but I am considered "oligometastatic" at least for now. IGoogle that word and see what you come up with. Just in the last few years, if you are young, very healthy, and have very small lesions on the liver, and cancer showing up nowhere else in the body, they will consider RFA, SBRT, or other aggressive procedures. They've been doing this for years with colon cancer patients and its starting to make its way over to breast cancer as well, with very selective patients. Anyway, I would have had SBRT (stereotactic body radiotherapy) to both lesions, but one was too close to the stomach and that was definitely a no-no as the radiation would have damaged my stomach. So, they recommended a resection. It was easy-peasy.....I was in and out of the hospital in two days and I am very fortunate. In addition, during the resection, they took an ultrasound probe and ran it over my liver to check for other lumps, bumps, possible freckles of cancer and nothing was found. I am in the process of having the other lesion treated with the SBRT....only have three more sessions left for a total of 5.
So, my hopes is that I will have a long period of NED from these procedures, along with ovarian supression with Lupron, (Probably going to have the ovaries removed in September) and I am currently on Arimidex too. I talked to my oncologist about having chemotherapy now, as opposed to waiting and she said she said its just not necessary, and the second oncologist also agreed. I have zero symptoms, LFTs are normal, tumor markers normal...why go through chemotherapy. I will eventually need it, but now apparently is not the time...not sure what I think about that though...UGH!
Who knows what will happen? Again, with cancer, it really is a crapshoot. And like the one oncologist said to me, there were certainly no "red flags" with my primary diagnosis.....to indicate that I would be sitting here Stage IV within three years!
Thanks for all the well-wishes. I have three beautiful kids and a husband whom I adore......My kids are 16&13 (boys) and an 11 year-old daughter. Have a lot to live for and that is exactly what I intend to do.....LIVE!.
Aug 2011, dx wth IDC Stage 2, oncotype 25, neoadjuvant chemotTC X 6, BMX with reconstruction, Tamoxifen March 2012, April 2014, two small mets discovered on liver. Arimidex, May 2014 Liver wedge resection. June 2014 SBRT of second liver lesion.
8/23/2011, IDC, 2cm, Stage IIA, Grade 2, 2/20 nodes, ER+/PR+, HER2-
9/29/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
5/7/2014 Arimidex (anastrozole)
2/8/2018, IDC, Stage IV, metastasized to other, mets, ER-/PR-, HER2-