ROLL CALL ---- High risk oncodx and chose no chemotherapy
Just trying to find out if the following:
(People with hisk oncodx and no chemo)
Oncodx number
Number of years NED
Comments
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No chemo but did 4 years AI.
Oncodx 34
NED 5 years.
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For people high oncodx and chose no chemo
How long NED
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testing
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ok here is my post
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following
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34, year 10 ned
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Yay!! to 10 years NED. Nice to see you back Meow13!
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hello meow 13!!
What a strange year or so we’ve had! UK kind of opened up a bit now but who knows!?
Fantastic - 10 years!! Excellent
Anyway as you might recall I was in a state about having chemo as I’d been told I didn’t need it until my onco score of 30. I didn’t do it and it’s 2 and a half years out and ok. I’m thinking of coming off the hormone therapy as tamoxifen has caused thickening in womb lining and letrozole looks punishing!
It’s now clear that even with an oncotype score like that the latest studies show having chemo makes no difference and so we were right to question!
I hope you are doing ok and sending very best wishes to you across the pond!!! You were such a help to me will always be grateful…
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two and a half years:)
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I had an onco score of 44 and did chemo and 8 months into tamoxifen. I also do herbs from George Wong. My oncologist started me on 20mg, but I recently went down to 15 and am considering going down further to 10mg as I am really struggling, mentally and physically.
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10 years NED, fabulous! Following..
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34, on 11th year NED
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I would love to know also how many people who chose no chemo with a high onco score and how they are doing now. I have a score of 26 and I am choosing no chemo. ER/PR+, her2- Stage 1, 1.5 cm, grade 3 tumor. I start radiation next Wednesday.
update: 10 months out, mammo and lung scan both clear. I chose no chemo. I have been on letrozole since August and did a month of radiation.
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I chose no chemo. Felt obvious not to do it after much research. Onco score of 30. Estrogen positive. Stage1/2 grade 2
5 years now ok.
still anxious ! Good luck
sissy60
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Also a friend of mine just had a recurrence after 7 years - and her onco score was 8. She was led to assume she’d be fine. Oncotype isn’t definitive is it?
sissy60
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