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Mar 22, 2015 07:13PM
RebzAmy- I'm in your boat! Had the same thing happen. Growing up, I was dx'd with lactose intolerance at 1 yr,with environmental allergies (hayfever). As I grew up, I picked up a few more, and developed asthma and what I suspected was mild IBS. With chemo, my body went absolutely crazy! Reacted to everything! All the chemo drugs, bees and wasps, Herceptin, antibiotics, food (wheat, peanuts, chashews), flu shot, TB test, bandaids, plastics and every living plant in my environment. Even fillings from the dentist would cause bronchospasm and wheezing (resins)! Everything would cause a rash or worse. I gave up listing allergies for medical people and went with 'everything'. Asthma went to severe, and had anaphylaxis repeatedly.
Fast forward 4 years and things are some better. Now I just tell them I do not know what is going to do anything, guess we'll see. I always take an epi-pen and benadryl. To this day, the medical people will not admit that the chemo was the culprit, but nothing else was different. My allergist says I am the most allergic person he has treated. I was offered a new treatment called 'Xolair' which is another monoclonal antibody (like Herceptin) and I was too afraid to try it. Maybe in the future, Idk. It just feels pretty good to have some down time.
I went to a vegetarian diet, no lactose, gluten free and that seems to be helping. Never got the taste or texture for meat back, so that was easy.
I just wish some of this was talked about before the chemo. I was given very little side effect information before, mostly about NVD, and that was downplayed with 'we have meds for that'. Well, not for me, didn't work. I lost 100 lbs (fortunately had some room, haha!) and have gained 30 back. Hmmm, can stop now.
Thanks for listening and starting this thread. There was another along these lines, but I guess it has become dormant. I wish the best for you and recovery!
Non omnia terrentia nocent.
2/10/2011, IDC, 3cm, Stage IIB, Grade 3, 1/2 nodes, ER+/PR+, HER2+ (IHC)
9/16/2015, IDC, Right, 1cm, Stage IV, metastasized to liver/lungs/other, Grade 3, ER-/PR-, HER2+ (FISH)