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Jul 9, 2010 04:02AM
OK i have to chime in...
I had stage 0 dcis grade 3, no lymphnodes and no microinvasion in 2003 7 years ago. had three lumpectomies to obtan clear margins. The DCIS was strictly contained in the milk ducts but after the three surgieries no clear margins. Had to do right mastectomy but i chose to do double.
April 20107 years later-- found lump inside right side breast. Doc said probably scar tissue because chance of recurrence with early stage cancer and mastectomy was definietly less than 1%. The lump was attached to the skin and chest muscle. Doc wanted to see what type of cancer and try to do chemo to shrink first. First test, fine needle aspiration for the fluid only, showed yes cancer. Second test, core needle biopsy for 5 tissue sample showed benign (this is the more reliable of the two test). This completely thru my surgeron off. He spoke with tumor board and everyone agreed they were baffled and he should do the surgery and take the lump out.
Yes it was cancer again DCIS with 1.8 CM of IDC with lymphatic invasion but no lymphnodes involved. Sent to cancer doc, she said I definietly was not textbook case. She ordered the oncotype test and came back at 33 with a 22% chance of recurrence. This puts me in the low end of the high risk. Started first T&C chemo yesterday.
In my poor head, all I thought great I made it past the 5 year mark which in therory you should be further aware from the chances of this comong back but apparently not.
AND they are unable to tell me that this is definietly a recurrance because I have an invasive component this time so it could be a new breast cancer in the same breast. But none of the doctors can say either way with any confidence.
11/2002, DCIS, Stage 0, Grade 3, 0/3 nodes, ER+/PR+
4/2010, DCIS, 1cm, Stage I, Grade 3, 0/7 nodes, ER+/PR+
6/2013, IDC, Stage IV, mets, ER+/PR+, HER2-
Gemzar (gemcitabine), Taxol (paclitaxel)