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Topic: Recurrence after bilat mastectomy?

Forum: Second or Third Breast Cancer — For those confronting a new primary diagnosis or undergoing treatment.

Posted on: Jan 17, 2009 04:17PM

slmdavidson wrote:

I've just had a recurrence after a bilat mastectomy 15 months ago.  Just wondering if anyone else has had this??  I thought I was done with breast cancer after removing both breasts!  I did not have rads, chemo or tamoxifen last time.  Just had my "lumpectomy" and 5 LN taken out this week, and still waiting on the pathology report.  Looks like probably radiation this time and tamoxifen but not sure yet about chemo.  Will know more at my follow up appt this week.  I guess it was good I found it early - it was right there under the skin.  Seems like I read 1% recurrence rate after mastectomy but that seems high to me since I haven't read much about it.  Anyone else have this?  Thanks, Laura

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Aug 18, 2013 04:23PM SusansGarden wrote:

myers421 ~ In my humble opinion it's all a crap shoot in the sense that nothing is guaranteed.  Will you be one of the lucky 85% that don't need Tamoxifen, or will you fall in the 15%?  No one knows.  You have to weigh your own personal situation and how comfortable you are with the risks.  Both of not taking Tamoxifen and of potential side effects of Tamoxifen.

Another possibility is taking Tamoxifen for only 2 or 3 years.  Some studies show that taking it for at least 2 years is better than nothing....and it seems to be that the cummulative serious side effects happen after you've been taking it for awhile.  My MO doesnt' agree that there is enough definitive proof to support that however.

Or you could hop on over to the "alternative/natural" boards, or see a naturopath.  There are some natural supplements like DIM that some believe help with recurrence. If you choose not to take Tamoxifen , it might help with peace of mind that you are at least taking "something".

I also like to think...if I do get a recurrence, will I be filled with regret?  Or at peace with my decision?  Only you can answer that for yourself.  :)  Good luck.

"If you want to forget all your other troubles, wear too tight shoes." Dx 10/6/2010, IDC, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 11/30/2010 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 2/1/2011 Surgery 7/10/2013 Prophylactic ovary removal
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Aug 18, 2013 05:31PM barbe1958 wrote:

Amy, you should update your diagnosis line to include the IDC and its' hormone stats. You will confuse some people with comments if they think you "just" have DCIS. (I hate when they say that!!) I wasn't put on Tamoxifen as my surgeon had his own emergency heart surgery and I didn't see an Onc until 9 months after my masts!!! I am okay with that. It's been 5 years now and I've had a bunch of scares which I believe I would have had anyway! I am about to have yet another biopsy on a node in my axillaand it doens't worry me if it's cancer in the sense that I'm glad I haven't added yet another chemical into my system. With Fibromyalgia, I just couldn't possibly cope with ANY of the side effects of Tamoxifen, so I'd rather have had the last 5 years without the SE's and now recur than have taken the Tamox and also recurred! Do you know what I mean? I truly believe that if you're meant to recur, you will. I like the idea of DIM if you don't get any side effects. I was left so long that even my Onc said what's the point. I had a very, very rare breast cancer, Papillary Carcinoma which I don't put on my diagnosis line as it has scared newbies who have a Papiloma!!!

Dx 12/10/2008, IDC: Papillary, Left, 1cm, Stage IB, 2/5 nodes, ER+/PR+, HER2- Surgery 12/16/2008 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Dx 2/4/2016, IDC: Papillary, Left, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/11/2016 Arimidex (anastrozole) Radiation Therapy 2/17/2016 Whole-breast: Lymph nodes, Chest wall
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Aug 18, 2013 05:51PM Bren58 wrote:

Hi Amy, I was 41 when I had a dx very similar to what you have. I too chose to have a BMX, did not have rads or chemo. They did recommend that I take Tamoxifen, but I chose not to for a variety of reasons. I was very much at peace with having the BMX but very unsettled about taking Tamoxifen. Even though I did have a recurrance 12 years later, every doctor I saw told me it would not have made a difference if I would have taken the Tamoxifen for 5 years as they recommended. For me, I know I made the right decision, but each of us has to make the decision that we are comfortable with.

Faith is having the courage to let God have control. Dx 7/4/2000, DCIS, Stage 0, Grade 3 Surgery 8/28/2000 Lymph node removal: Right, Sentinel Surgery 8/28/2000 Mastectomy: Left, Right Surgery 12/5/2000 Reconstruction (left); Reconstruction (right) Surgery 12/2/2009 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Dx 9/11/2012, IDC, 1cm, Stage IIB, Grade 3, 1/29 nodes, ER+/PR+, HER2+ Surgery 9/11/2012 Lymph node removal: Right Targeted Therapy 11/30/2012 Herceptin (trastuzumab) Chemotherapy 11/30/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/25/2013 Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 7/25/2013 Arimidex (anastrozole) Hormonal Therapy 8/1/2014 Aromasin (exemestane)
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Aug 18, 2013 08:30PM tlew wrote:

Hi ladies,

I am part of the stage 1 sisters. I had my bmx last year and was told I needed no other form of treatment. I visited 2 oncologist whom told me I would benefit very little from Tamox. I was going back and forth trying to decide whether I should just request to take just for precautions. At the end, I decided not to.I still worry often that I there's a possibility that I would get a recurrence because I didn't take tamox.

So I see my BS and 2 oncologist every 6 months. After my BMX I was told by my BS and 1st onc that I don't get any type of surveillance other than manual breast check ups. And if I get any symptoms than they will look into it. I obviously was uncomfortable with not having any type of "real" surveillance, after all I did have invasive cancer. So Iast week I went to see my 2nd onc (I like to alternate) and he says its a fair decision to order an MRI just to see if everything is ok after a year. I quickly went to schedule one last week and was a complete nervous wreck waiting for the results. I was so happy to get the all clear on Friday. So glad I didn't have to wait the whole weekend!

Dx 4/2012, ILC, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+
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Aug 18, 2013 09:12PM 2nd_time_around wrote:

After debating about what to do, I started Tamoxifen yesterday as the SE's from Anastrozole were too uncomfortable. Planning on this being my good luck charm (at least in my mind)

**AKA 2TA ** Any day I wake up, it's a good day. ~ ~ "You don't know strength until strength is the only choice you have." (Author unknown)..... Yes, this is my 2nd occurrence, not recurrence; 1st in 1996, 2nd in 2012, bilateral recon in 2012
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Aug 18, 2013 09:29PM - edited Aug 18, 2013 09:30PM by Andrea623

I'm a 1a diagnose too. I had a BMX, followed by 25 tx of radiation due to the margins not being clear. I saw my MO twice; once at the beginning, then half a year later when he told me he didn't need to follow up with me unless I had a recurrence or new primary. He told me I'd continue to follow up with my RO, but I don't know for how long. No one's mentioned if I need MRIs in the future or any other type of tests. Is that how it usually goes? I know they can't get all the breast tissue even with a mastectomy, so could I get a recurrence in the same breast?

"Kindness to animals builds a better world for all of us." - Best Friends Animal Society Dx 8/16/2012, DCIS, 4cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-, HER2+ Surgery 9/5/2012 Lymph node removal: Sentinel; Mastectomy Dx 9/13/2012, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Radiation Therapy 11/6/2012 Breast Surgery 7/10/2013 Reconstruction (left); Reconstruction (right) Surgery 1/22/2014 Reconstruction (right) Surgery 9/9/2014 Reconstruction (left); Reconstruction (right) Surgery 6/15/2015 Reconstruction (right): DIEP flap Surgery
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Aug 19, 2013 09:43AM staynsane wrote:

Myers421- I too struggled with whether or not to take Tamoxifen.  I check in occasionally on this thread because recurrence is sometimes on my mind.  Although I am not as concerned as I once was and figure if it happens, I will deal with it, just as I did my primary.  I started taking it with the thought that if SEs were bad, I would simply stop taking it.  The worst SE for me has been about 3-4 hot flashes a day.  But I have them for a couple of months, then they go away for a couple.  Like my periods now.  I'm premenopausal, although at 54 I'm not far away from menopause.  I think I would start experiencing hot flashes soon anyway without Tam.  I have noticed that I have not lost weight after starting to exercise 3 months ago, but I haven't gained either.  A lot of women blame weight gain on Tam, but I think possibly it's due more to menopause than Tam.  I did get a bit sleepy in the afternoons, but exercising has me feeling better than ever.  I initially thought my eyes seemed a bit blurry, but again, I was looking for SEs and age probably plays more of a factor.  I will stop taking it if SEs seem to get worse.  But we are lucky in that we have a choice.

Dx 3/30/2012, DCIS, 1cm, Stage 0, Grade 2 Dx 3/30/2012, IDC, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 5/9/2012 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 5/24/2012 Surgery 11/19/2012 Reconstruction (left) Surgery 11/19/2012 Reconstruction (right) Surgery 3/20/2013 Reconstruction (left) Surgery 8/2/2013 Reconstruction (left)
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Aug 22, 2013 07:54AM Romyoscars1 wrote:

Hi there, had BL mast in 2011. A routine mam picked up DCIS 10cm's in right breast. As I have breast cancer gene I decided on having the left unaffected breast removed at the same time. I had skin sparing mast with reconstruction, no chemo or radio but was prescribed Tamoxifen. I have just been diagnosed with 2 small cancers again in my right breast (12mm) and am booked in for a full mastectomy next week with chemo and radio to follow. I raised the issue of also having my left breast removed on the basis that I have the gene so what's to say I couldn't get cancer in my left breast. My consultant is against it and says there is nothing to say that I will get cancer in the left breast. I just feel that whilst I'm having the full works this time, I may as well reduce my risks even further by having the left breast removed at the same time. I'm 44 with a 10 year old Daughter and am absolutely petrified of her growing up without a Mum. Anyone else been in this situation?

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Aug 22, 2013 09:59AM violet_1 wrote:

Romy,
YES!!! ME ME ME! I just posted about why double mastectomy was most necessary for me in another thread "Dr. Brawley" thread...
Go read...;) can't believe your doctor is not allowing that or suggesting that especially with your + breast cancer gene status!

violet_1 Surgery 1/30/2012 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 11/13/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Aug 22, 2013 10:01AM violet_1 wrote:

P.S.

In ADVOCACY /DR. BRAWLEY: HOW WE DO HARM... thread

violet_1 Surgery 1/30/2012 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 11/13/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Aug 22, 2013 10:38AM seabeal wrote:

If there was every anyone who needs another opinion it would be you Romy. Go for another opinion and another and another until someone listens. Go with your gut because in the end our gut is the only thing we can depend on.

Dx 2/17/2012, IDC Dx 2/17/2012, ILC, 5cm, Stage IIB, Grade 2, 0/9 nodes, ER+/PR+, HER2- Surgery 4/17/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 5/29/2012 Breast Hormonal Therapy 7/18/2012 Aromasin (exemestane) Surgery 11/6/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction
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Aug 22, 2013 12:17PM violet_1 wrote:

Romy,
I'm a bit confused...did u not have a FULL BMX in 2011? Is that why u want another BMX?

VIOLET

violet_1 Surgery 1/30/2012 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 11/13/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Aug 22, 2013 04:40PM myers421 wrote:

My BS recommend a bmx if I wanted with a DCIS negative BRACA test if I wanted and I did.  GLAD I did they found IDC in the breast they thought was fine!! DO THE BMX.

ALSO.. did you take the tamoxifin? and still have the reoccurance?

Amy Surgery 1/10/2014 Reconstruction (left); Reconstruction (right)
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Aug 22, 2013 05:31PM - edited Aug 22, 2013 05:34PM by Andrea623

Romy, I'm confused too. You had a BMX with reconstruction previously? Do you want to deconstruct and remove any remaining tissue?

If you are uncomfortable with your doctor's recommendations, please get another opinion. I find you shouldn't ignore your gut feelings.

"Kindness to animals builds a better world for all of us." - Best Friends Animal Society Dx 8/16/2012, DCIS, 4cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-, HER2+ Surgery 9/5/2012 Lymph node removal: Sentinel; Mastectomy Dx 9/13/2012, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER-/PR-, HER2- Radiation Therapy 11/6/2012 Breast Surgery 7/10/2013 Reconstruction (left); Reconstruction (right) Surgery 1/22/2014 Reconstruction (right) Surgery 9/9/2014 Reconstruction (left); Reconstruction (right) Surgery 6/15/2015 Reconstruction (right): DIEP flap Surgery
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Aug 24, 2013 09:54AM barbe1958 wrote:

If you keep one breast you will have to get recon or wear a foob. I had NO intention of doing either! I'd rather heal from ONE surgery than decide later I wanted the other one off. I, too, had ADHP in the "healthy" breast which is the one they were worried about when they found the cancer in the other one!! I go flat, and love it, but I could also wear protheses IF I wanted to. I LOVE not wearing a bra, ever again!!

Dx 12/10/2008, IDC: Papillary, Left, 1cm, Stage IB, 2/5 nodes, ER+/PR+, HER2- Surgery 12/16/2008 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Dx 2/4/2016, IDC: Papillary, Left, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/11/2016 Arimidex (anastrozole) Radiation Therapy 2/17/2016 Whole-breast: Lymph nodes, Chest wall
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Sep 14, 2013 08:54PM MinusTwo wrote:

I'm about to have more surgery for recurrence to to chest wall after BMX 2 years ago.  MO says implants need to come out so rads can be done on flat chest wall.  I will want the implants replaced down the road.  Anyone been through this?  Will I have to start over with new TE's (ugh)?  Any tips & advice would be appreciated.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 20, 2013 04:19PM violet_1 wrote:

Minus 2,
I'm so sorry. ..:(
How did they find the recurrence? Hope someone else can chime in to help here...
Violet

violet_1 Surgery 1/30/2012 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 11/13/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Sep 20, 2013 08:18PM Stix wrote:

Hi Violet-

I do not have the breast cancer mutation. Nor do I have a fm. hx. In 2010 I had high grade multi-focal dcis. I had a mastectomy/reconst. I had 3 surgical opinions. All 3 said they didn't recommend a bil. mastectomy.  I was 40 when diagnosed.  My chances of getting cancer in the non mast. side was only .5% per year. Fast forward 3 years later - I had a mammogram abnormality and an open biopsy which showed atypical lobular hyperplasia. I just had the other side removed- going thru it twice sucks....but, whatever I didn't need, chemo, rads and I am alive and well.

I would have a bil. if I had to do it all over ....

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/9/2010 Mastectomy: Right Surgery 8/16/2010 Mastectomy: Right; Reconstruction (right) Surgery 5/1/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/12/2013 Reconstruction (left) Surgery 7/30/2014 Reconstruction (left) Surgery 1/12/2015 Reconstruction (left)
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Sep 21, 2013 07:24AM Bren58 wrote:

Minus, I am sorry you are joining the recurrence club. My recurrence was in the lymph nodes under my arm, so I didn't have to have the implants out to have my ALND surgery.
Viktoria, sorry you are joining this group too. I didn't know you had a recurrence too from your PM. I had a 1-2% risk of recurrence after my BMX. I had no rads or chemo the first time around.

Faith is having the courage to let God have control. Dx 7/4/2000, DCIS, Stage 0, Grade 3 Surgery 8/28/2000 Lymph node removal: Right, Sentinel Surgery 8/28/2000 Mastectomy: Left, Right Surgery 12/5/2000 Reconstruction (left); Reconstruction (right) Surgery 12/2/2009 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Dx 9/11/2012, IDC, 1cm, Stage IIB, Grade 3, 1/29 nodes, ER+/PR+, HER2+ Surgery 9/11/2012 Lymph node removal: Right Targeted Therapy 11/30/2012 Herceptin (trastuzumab) Chemotherapy 11/30/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/25/2013 Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 7/25/2013 Arimidex (anastrozole) Hormonal Therapy 8/1/2014 Aromasin (exemestane)
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Sep 21, 2013 11:16AM violet_1 wrote:

Vik,
I hear ya...that's why I chose BMX...& low and behold, they found IDC in my other breast even though it didn't show up on any scans/tests prior to BMX. I had EXTREMELY dense breast tissue...
Hang in there!
Violet

violet_1 Surgery 1/30/2012 Lymph node removal: Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 11/13/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Sep 24, 2013 12:17PM adgirl5 wrote:

Hi ladies,

Thankfully so far I've not had a recurrence.. however I learned something that doctors failed to mention. This may seem a little OT but I follow this thread and want to spread the word.  Any breast cancer survivor is at a much higher risk of colon cancer.  Ask your onc. about it.  Some don't mention it, but it's true.  I'm having my first colonoscopy next week.  I didn't worry about it too much, even at my age since my CT and PET scans were clear.  But that's been over 2 years ago.  Back ON Topic, I look at it this way..  if we have a local recurrence we're much luckier than the millions of women who have distal recurrences from this crappy disease.  I'm so sick of losing friends... young women with kids to this disease.  I usually hang out on the triple negative site since it seems to be a different beast. I hate all breast cancer, although 3N is so darn aggressive and sneaky.   I don't believe the stats anymore after staying up with this thread.  Seems a lot of women with DCIS are having local recurrences.  I'm convinced these percentages mean very little sadly.  My love to all of you. <3   Live your life to the fullest!

DX: 7/11 Triple Neg, GRADE III, STAGE IIa growth from STAGE Ia. Neo chemo didn't begin until 10/11. Taxol aborted due to mass growth. FEC x 6. BMX 3/19. pCR. Radiation not rec. BRCA 1+
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Sep 26, 2013 04:49PM awb wrote:

yup, my mom had bc many years ago (almost 27) and has since had colon ca twice; but the good news is that was 11-12 years ago and she is still going strong at 84!  When I had my LCIS diagnosis at age 46, I was still 4 years early for my colonoscopy, but my doctor encouraged me to get one early, so I did within 6 months and now have every 5 years.

anne

"I don't know what the future holds, but I know who holds the future" Dx 9/5/2003, LCIS, Stage 0, 0/0 nodes Surgery 9/16/2003 Lumpectomy: Right Hormonal Therapy 10/30/2003 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/5/2005 Prophylactic ovary removal Hormonal Therapy 2/28/2009 Evista (raloxifene)
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Sep 27, 2013 10:44AM - edited Sep 27, 2013 10:44AM by adgirl5

Thanks for your input anne.  Kudos to your dear Mom. 

I gave some misinformation I need to qualify so that you're not misinformed like I was. A PET or CT scan doesn't detect colon cancer.  At least not the type we get when looking for mets.  There is a different CT scan specifically for the rectal-colon area that can pick up about 90% of what is seen by colonoscopy.  but if something is found you'd still need a colonoscopy.

Hope this helps someone.  If you would, please wish me well for my first colonoscopy.  I definitely have symptoms that could prove to be colon cancer, although I remind myself it could be so many other things too.  I appreciate all good wishes!  IF you believe in the healing power of God as I do.. prayers for a benign scan (procedure is next Thursday) would be wonderful!  Thank you so very much.

Live Blessed!

DX: 7/11 Triple Neg, GRADE III, STAGE IIa growth from STAGE Ia. Neo chemo didn't begin until 10/11. Taxol aborted due to mass growth. FEC x 6. BMX 3/19. pCR. Radiation not rec. BRCA 1+
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Sep 27, 2013 05:27PM Bren58 wrote:

adgirl, the prep is much worse that the actual colonoscopy. For me, at least, the procedure was a piece of cake.

Praying your results come back clean!

Faith is having the courage to let God have control. Dx 7/4/2000, DCIS, Stage 0, Grade 3 Surgery 8/28/2000 Lymph node removal: Right, Sentinel Surgery 8/28/2000 Mastectomy: Left, Right Surgery 12/5/2000 Reconstruction (left); Reconstruction (right) Surgery 12/2/2009 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Dx 9/11/2012, IDC, 1cm, Stage IIB, Grade 3, 1/29 nodes, ER+/PR+, HER2+ Surgery 9/11/2012 Lymph node removal: Right Targeted Therapy 11/30/2012 Herceptin (trastuzumab) Chemotherapy 11/30/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/25/2013 Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 7/25/2013 Arimidex (anastrozole) Hormonal Therapy 8/1/2014 Aromasin (exemestane)
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Sep 27, 2013 07:23PM adgirl5 wrote:

Bren- I love your name.  My precious middle granddaughter Brenlyn I refer to as Bren.

I'm not a bit worried about the procedure itself.  I've been the caretaker for many of friends and family who've had the procedure and they all say the same.  In fact, I've never been really worried about the many surgeries I had last year.. or the outcome.. the last being bilateral ovary and tubes due to my BRCA positive status.  I think it's because I feel so worn down right now that it's really getting to me.  Plus the fact that I'm 58 and have never, ever put off something so important and preventable with early detection.  I truly thought I could slide a bit due to a clean CT scan according to one of my doctors.   But blood in your stool is still worrisome, and I have certainly experienced that.  Last year I had 7 surgeries and wanted a break even knowing it's not a bad procedure at all.    I could shoot the doctor who mislead me about my scan. LOL

I'll gratefully take those prayers!  Thank you so much sweet lady!

DX: 7/11 Triple Neg, GRADE III, STAGE IIa growth from STAGE Ia. Neo chemo didn't begin until 10/11. Taxol aborted due to mass growth. FEC x 6. BMX 3/19. pCR. Radiation not rec. BRCA 1+
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Sep 27, 2013 09:33PM MinusTwo wrote:

Bren & Violet 1 - thanks for your thoughts.

Surgery was Tuesday and turned out to be mets to the lymph nodes, so she did ALND.  (Oh goody - another acronym to add to my store.)  Level 1 and level 2 lymph nodes were taken.  She left Level 3 to be treated by rads partly due to issues with lymphadema.  What every one thought was a chest wall recurrence tumor may have been only a clump of lymph nodes that somehow fused together.  Of course no definitive answers until the path labs come back in 10 days or so.  I just hope she did LOTS of biopsies. 

I'm actually feeling pretty good as long as I remember not to use my right arm.  I don't even mind the drain since it gives me less chance of seromas or other complications with fluids.  The radiation folks will give me 3-5 weeks before starting rads so I only have to do my regular every 3 week herceptin & perjeta in 2 weeks.  I'll take my son to the airport tomorrow to fly home.  He's a great caregiver but I'm feeling well enough to let him go.  Then I'll take a nap (or two).

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 28, 2013 08:24AM Bren58 wrote:

Minus, I am so sorry that you had to have the ALND surgery, but glad it was not in your chest wall. I hope you heal well with no complications. I am glad the drain is not an issue for you, mine was so painful I was very happy to get it out early when it became clogged. Make sure you rest and keep the arm elevated when you can. (((hugs)))

Faith is having the courage to let God have control. Dx 7/4/2000, DCIS, Stage 0, Grade 3 Surgery 8/28/2000 Lymph node removal: Right, Sentinel Surgery 8/28/2000 Mastectomy: Left, Right Surgery 12/5/2000 Reconstruction (left); Reconstruction (right) Surgery 12/2/2009 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Dx 9/11/2012, IDC, 1cm, Stage IIB, Grade 3, 1/29 nodes, ER+/PR+, HER2+ Surgery 9/11/2012 Lymph node removal: Right Targeted Therapy 11/30/2012 Herceptin (trastuzumab) Chemotherapy 11/30/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 4/25/2013 Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 7/25/2013 Arimidex (anastrozole) Hormonal Therapy 8/1/2014 Aromasin (exemestane)
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Jan 2, 2014 07:12PM - edited Jan 2, 2014 07:13PM by 1210donna

I had double mx with no recon, adapted wonderfully to being breastfree.  I'm immune deficient so didn't want any recon ops, but also felt natural being breast free. Dealing with a virus at present, having some peripheral neuropathy issues with one of my arm pits so found you folks.  I sure don't want to do any more treatments but guess I would if I had to.

ever the arty autie Dx 6/20/2011, IDC, 3cm, Stage IIB, Grade 2, 1/1 nodes, ER+/PR-, HER2- Surgery 7/27/2011 Mastectomy: Left, Right Chemotherapy 8/31/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/30/2011
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Jan 2, 2014 07:18PM 1210donna wrote:

hello fellow flatsy, I also went breast free, no recon, very happily... no foobies, I wear tops with yolks and gather and nobody even notices I'm breastless. 

ever the arty autie Dx 6/20/2011, IDC, 3cm, Stage IIB, Grade 2, 1/1 nodes, ER+/PR-, HER2- Surgery 7/27/2011 Mastectomy: Left, Right Chemotherapy 8/31/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/30/2011
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Jan 3, 2014 10:31AM barbe1958 wrote:

Donna, I'm still very happy being breast-free too and certainly not ashamed to go flat. To me it's proof that I fought and WON breast cancer! I often have people tell me that their {fill in the female friend/neighbour/relative} didn't get their breasts off and they wonder if they had would they still be alive!!! That's a question no one can answer but I do hate seeing it in their eyes, almost blaming the female for not having a mastectomy!!

I am STILL numb under my SNB armpit and I'm 5-years out. I have to be very careful when I shave.

Dx 12/10/2008, IDC: Papillary, Left, 1cm, Stage IB, 2/5 nodes, ER+/PR+, HER2- Surgery 12/16/2008 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Dx 2/4/2016, IDC: Papillary, Left, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/11/2016 Arimidex (anastrozole) Radiation Therapy 2/17/2016 Whole-breast: Lymph nodes, Chest wall

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